Anyone else had arthritis since childhood?

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NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 12/29/2007 1:57 PM (GMT -7)   
 I have had arthritis 33 years.  I also have worked on my feet for 24 of them.  I am dumb, but I love helping others.  I have bone spurs and displacement of my left hip.  I feel like I need a new hip.  I lost 1/2 my range of motion and barley can put my sock on the left foot.  I am still young though..anyone have thoughts or ideas....or experiences. 
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, noticable breakdown in hips


TeNNiSd0C09
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Date Joined Jul 2007
Total Posts : 1303
   Posted 12/29/2007 2:10 PM (GMT -7)   
Hey Nurse,

Sorry to hear what you are experiencing. I do not have Arthritis, at least not that I know of. Although, for a few years my was pasted around to many different docs. I have a Rheumy, whom I dont like very much, but he thought I had JRA for some time. He tried me on several meds, I cant remember any but Mobic. But, none of them worked for me. I think he finally gave. All my docs gave up actually, they pretty much sent all around and ended up passing me back to each other! What a mess!

I am only 16 now. This all started when I was about 10 or 11. But, I didnt know then so, I never started going to the doc until I was 12. I was just recently diagnosed with Fibro. I was started on Lyrica and its the first time in my life a medicine has helped me! So, hopefully, I have found my answer.

You mentioned bone spurs, my mom and I both had surgery a year apart on our left foot for spurs. Both were successful. But, we both went an entire year, and I know that was the most painful year I had. They are no fun at all. My mom had a spur in her right foot twice, but luckily they went away, I guess.

I usually dont post here, as I dont have Arthritis, but I wanted to share that with you.
Take Care of Yourself
Dx: Tendonitis(L knee), Chondromalacia Patella(R knee), Fibromyalgia, Plantar Fascitis(erased with surgery July 05)
Not Dx: Depression, Anxiety/Panic Attacks, Social Phobia, Mild OCD

Meds tried: all the OTC stuff, Mobic, and Lyrica.
"Healing is an energy phenomenon. Hope is another word for Healing.
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"If I talk and laugh too loud...its because I am trying to forget that I am sad."
"Sometimes it is best to forget what you feel and remember what you deserve"
"Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 12/29/2007 6:33 PM (GMT -7)   
Thank you for your response. You know how pain affects a person for sure. Chronic Disease is a pain in the butt some times. It makes me nervous... surgery.
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, noticable breakdown in hips


teddybearweiser
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Date Joined Oct 2004
Total Posts : 3042
   Posted 12/30/2007 3:21 AM (GMT -7)   
Hi Nurse,
I was diagnosed this year with osteoarthritis. And now feel its moved to RA. I now my body real well. Right now pain meds are not helping me. So I can't imagne what you have been going through with your arthritis. I dad had hip replacement surgery and he is doing real good. So if you need it I would recommened it.
teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Joan M
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Date Joined Jan 2006
Total Posts : 1978
   Posted 12/30/2007 7:50 AM (GMT -7)   
I was born with dislocation of the hip and bad feet and have had arthritis and other health problems in my 20's. Mobic is a miracle drug for me but I am also allergic to medicines and have very odd reactions. Am very tired of being in pain and allergies to name just two of them acting up right now. They say to "keep moving" if you can. I would be afraid of surgery too but I am a terrible scaredy cat.

TeNNiSd0C09
Veteran Member


Date Joined Jul 2007
Total Posts : 1303
   Posted 12/30/2007 1:43 PM (GMT -7)   
I know of a many who has had his hip relaced twice. And a few other things also! He is doing just fine. He is always outside tending to his yard, he stays on the move! So, if you need it, I guess it would be worht trying.

Joan, my Rheumy thought I had arthritis for the longest time. He put me on Mobic, it never did work, so I guess he finally got the message that I didnt have arthritis. But, I probably will, RA runs in my family, and my mom just found out that she probably has Osteo.

Take Care and have a Happy New Year!
Dx: Tendonitis(L knee 02'), Chondromalacia Patella(R knee 02'), Fibromyalgia (07'), Plantar Fascitis(L foot Nov.04' erased with surgery July 05')
Not Dx: Depression, Anxiety/Panic Attacks, Social Phobia, Mild OCD

Meds tried: all the OTC stuff, Mobic, and Lyrica.
"Healing is an energy phenomenon. Hope is another word for Healing.
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"If I talk and laugh too loud...its because I am trying to forget that I am sad."
"Sometimes it is best to forget what you feel and remember what you deserve"
"Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."


NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 12/30/2007 7:29 PM (GMT -7)   
Thank you for all for the response.  I know that it will be better in the long run.  I want to put it off for a little bit to see if my hip improves any.  Also, need the financial part.  But, it is a pain unlike any that I have had so far.  The lack of motion is ok with me now as far as surgery.
But if anyone else out there is familiar please share!  Thank you. smurf
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, noticable breakdown in hips


FLgirlfsu
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/3/2008 1:10 PM (GMT -7)   
I am 28 yrs old and was diagnosed w/ JRA when I was 3. I know the kind of pain your talking about w/ your hips - it's horrible!!

However - I can tell you from experience that hip replacement surgery is WONDERFUL!! I had horrible pain in my left hip - it would get stuck, very limited range of motion, trouble walking anywhere (even just to my car), and a hard time getting in/out of cars. I put off having it replace until I couldn't stand it anymore. I finally bit the bullet & had the surgery Jan. 4th, 2005 (tomorrow will be 3 yrs!!). It was the best decision I ever made for my arthritis. I also had to have my right hip replace (Dec. 2005), but I didn't let it get nearly as bad because I saw the benefits of the replacement.

I now have more mobility & range of motion in my hips than I've ever had in my entire life!! I always had trouble w/ socks & shoes - basically anything that required bending forward. Now it's a breeze!! I'm doing things now that I couldn't do when I was a kid, and that other people take for granted.

If you want more info about the surgery & recovery, I'd be more than happy to tell you - but I don't want to bore you w/ too many details. If you have any questions, please feel free to ask - I don't mind. I've been there before and remember how hard it was to make the decision to go through w/ the surgeries (the first one in particular). :)

NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 1/10/2008 3:17 PM (GMT -7)   
Thanks for your input FLgrl.  I may have to take you up on that offer.  I have spoke to a few older people.  I really want to get along with my life.  yeah
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, degenerative hip disease


FLgirlfsu
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/10/2008 3:31 PM (GMT -7)   
Feel free to ask me any questions. I've been there before and know what a hard decision it is to make!

NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 1/11/2008 3:55 PM (GMT -7)   
I think my biggest obstacle now is that I need to save a little more in advance for surgery. I hate being in the pain and the mobility, walking tolerance. So many people think I am young. But, my disease isn't young. Do you have any children Flgirlfsu? I have none of my own. Probably won't have any. But, I wasn't too sure once I reached adulthood.
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, degenerative hip disease


FLgirlfsu
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/11/2008 5:57 PM (GMT -7)   
Nurse1stik - Do you have short term disability insurance? I had AFLAC for my second surgery (didn't think of it for the first). It really helped out; although I still had to save. If I had thought of it before the first, I probably could have been able to afford to do it sooner. It is hard to save up - for a few years I felt all I was saving for was surgery! ugghh.. The results, though, have been well worth it.

I have the same problem with people understanding! People think I'm young, but they don't understand that my JRA is also 28. I feel like people would be more sympathetic if I was 78 and had been dealing w/ the pain, fatigue, etc. since I was 50. I have a really hard time getting people at work to understand (mostly my bosses). I'm very reliable, but there are times (like the day after a long trip, reactions to meds) that I just am too tired & in too much pain to work.

I don't have any children. I'm single - still haven't found the "right" guy (sometimes feel like JRA is one of the reasons). I haven't quite made up my mind yet about kids. When I was younger I wanted 2 or 3 kids. Now I would like to have a child someday, but I don't know if that will happen. I worry about not having the energy to take care of a child - I have a hard enough time just trying to take care of myself & house stuff :) I also think about how I would juggle flare-ups or surgeries while trying to care for a child - what if I my hands hurt so much I couldn't pick up my baby. If I ever meet a man that would be able (willing) to help a lot w/ the house & a child, then I would really like to seriously consider having a child one day.

Hope I haven't complained too much :) It's nice to know I'm not the only one that struggles w/ trying to live as a young adult w/ RA.

NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 1/12/2008 4:07 PM (GMT -7)   
Thanks for the ideas on how to get through it all. It sounds as though you may have gotten a worse case of the disease then myself. I was in swim therapy when I was around 11. There were kids with less mobility than I and more. Bigger boobs too. But, there was a boy who looked more afflicted than I appeared. Guess we don't all have the same pains. Do you have muscle pain..like fibromyalgia symptoms? I tend to have it... so I was curious. It took me a long time to find someone understanding. And he isn't enough at times... but.. I can not understand his differences either! LOL
I had and have alot of your thoughts about my future life so feel free to tell me, I will listen. If you would like to find me I am on Yahoo...jannabelle2001
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, degenerative hip disease


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/12/2008 4:52 PM (GMT -7)   
I too have muscle pains like fibro but I found two things that really help with that and I am sure you have heard them before the first is lots of sleep. Ten hours a night tends to eliminate the muscle pain for me and decrease the flares as well. The second is using the right NSAID for me I tried five of them before deciding to stick with sulindac as it did more to relieve the systemic symptoms including muscle pain then any of the others did. I said two right well there is a third plaquenil definitely has been helping with that and the daytime fatique. Obviously what meds you take are up to your and your doctor and from my experience everyone has a different perfect combo.

spanish_girl
New Member


Date Joined Jan 2008
Total Posts : 7
   Posted 1/15/2008 1:06 PM (GMT -7)   
Hey,

So sorry to hear your having problems. I have degenerative Arthritis/TMJ, my doctors have now said surgery is in my near future. Im only 16 but was toled I had arthritis at 11.
Surgery sounds scary but maybe it is something worth looking into. Wish you the best of luck.

-Spanish_girl

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/15/2008 4:17 PM (GMT -7)   
Have you tried trigger point injections for the TMJ. I used to work for a TMJ specialist and he was often able to delay surgery for his patients for years using these injections

rahad
New Member


Date Joined Dec 2007
Total Posts : 11
   Posted 1/16/2008 12:52 AM (GMT -7)   
Well I don't have arthritis but I know so much about it.The pain in that is terrible I saw my uncle is suffering from that.I always like to search more treatments and knowledge about this for helping him.

Post Edited By Moderator (Ducky) : 1/16/2008 8:16:16 AM (GMT-7)


NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 1/16/2008 11:16 AM (GMT -7)   
  I hope you don't have to have too many surgeries that young.  I think trigger point injestions are a great thing.  If I could find someone to give me a few.  I'd be happy.   The lidocaine patches help with muscular spasms in that you can't feel the pain.  But, it is just there later. 
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, degenerative hip disease


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1978
   Posted 1/27/2008 4:06 PM (GMT -7)   
hi, everybody...i came down with the shingles recently and the lidocaine patches help me. I do not know what the tmj problem is. am taking lyrica to try to keep cool, elavil when i am really bad. wish they would put the news on instead of all these MALE SPORTS. Been trying to lose weight but don't feel very successful at it. so long for now (heard hip replacement is good for some -- i would never allow it as my hip was already dislocated) eyes eyes eyes

Post Edited (Joan M) : 1/27/2008 4:10:04 PM (GMT-7)


NURSE1STIK
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 2/7/2008 10:43 AM (GMT -7)   
I found out yesterday that I probably have Avascular necrosis in my hip according to an Xray in January of last year . I have all the symptoms. I am so happy that I don't just have arthritis. It gives me a reason to have the pain. I say this because I feel my Rheumatologist sees my RH factor is under control... and it seems she thinks I should be pain free. The way she talks with me at appointments. My kneecaps sit so high that I also have patellar tendonitis, bad hips and I ache still with my deformities even if not noticable to the passerby. I have been going here for 15+ years. Does anyone else feel like they are not listened too by their MD. Do they get offended when you confront them? I know as a nurse...doctors are easily offended by my confrontatins of issues.
Age 3 fell on my knee.  I have Juvenile Rheumatoid Arthritis in all my joints, Patellar-Femoral Syndrome, GERD, degenerative hip disease
Medications routine: Mobic, Plaquenil, Methotrexate, Flexeril, Nexium.

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