Would like some feedback/opinions/thoughts

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iluvbaseball
New Member


Date Joined Dec 2007
Total Posts : 1
   Posted 12/30/2007 11:41 AM (GMT -7)   
I have been "stalking" these forums for a little while, but just decided to join today.
 
In August 2007, I went to the gynecologist for my annual exam (basically for the purpose of getting a refill of my thyroid medication).  My blood pressure was sky high (160/100) and the doctor was concerned.  He had me go get an EKG.  After he got the results which was a little abnormal, he called me and said I needed to go see my family doctor or an internist because he wasn't a heart doc.    I called my family doc (I don't go to him for female issues because I went to high school with him).  He put me on Altace for my blood pressure and had me monitor my blood pressure for a couple of weeks and report back to him.
 
A few days later, I hadn't felt well and sat in the recliner all day!!!  I looked at my left leg and it was very swollen and a reddish-purple color (hubby says almost black).  Of course, I think the worst --- blood clot --- but didn't dare say that to my husband or he would freak out!!!   He called the family doc and they had me come in.  Of course it isn't quite as swollen or discolored by the time I get there, but he sends me to get an ultrasound to rule out blood clots.  No blood clot found.  He also did some labs and when he got the results I went back in to see him.  My ANA titer was 1:2560.  He said it is the highest he has ever seen and asked me if I was having pain.  I told him I have a lot of pain but don't go to the doctor for it --- I just figure you live with it.  He said the high ANA indicates an autoimmune disorder.  He put me on methotrexate and naproxen and rechecked the labs six weeks later --- no change.  So, he said I need to go see a rheumatologist.  I asked him if I could just go to an internist since we don't have a rheumatologist in town (I would have to drive 300 miles).  He said that should be fine for now.  So, I did just that.  The internist also said he had never seen ANA levels that high and wanted me to see a rheumatologist.  He did some more labs to check my RA factor and I definitely have rheumatoid arthritis, but he isn't convinced that is all.
 
So, I have an appointment in February with the rheumatologist (earliest appointment they had).  In the meantime, the pain is getting worse and worse --- it is really hard to describe it but I get these sharp pains (mainly in my left leg) and I think it might be the nerves. 
 
I guess my question is if it is quite likely to be diagnosed with RA and lupus at the same time --- the reason I am so worried about lupus is because a high school classmate recently died from complications of lupus (I am only 43).
 
 

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 12/31/2007 8:36 PM (GMT -7)   
Hi and Welcome, So glade that you found us all though sorry thay your having to go through all of this.For your question yes a person can have more than one autoimmune disease.I will say this I have crohns,RA,OA,and PG'so the Crohns and the OA are both autoimmune diseaseas to where RA is not an auto disease.It is not uncommom to retain fluid(edema)and inflamation as well.Do you have any thing that you can take for pain if not you may want to talked to your doctor and see if he/she will script something for the pain just untill you can get in to see the Rheumy.Good luck and let us know how your appointment with the new Rheumy.
Curley
.........
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/31/2007 10:19 PM (GMT -7)   
Hi Baseball!
 
Yeah, as soon as I read your ANA titre, I thought of lupus.  It's very common for an ANA to be that high or higer with lupus.  Are you having any other symptoms?  Come on over to lupus-land and talk with us.  I'm curious to know what other "stuff" you have going on.  Sorry you're dealing with this. I know it's scary......
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/1/2008 3:56 PM (GMT -7)   

Curly got the RA and OA mixed up-RA is the autoimmune. Other than that I agree I would be concerned about lupus and I would retest the leg for clots they often miss things like that.  Also you should take note of what other tests were ordered and are ordered at your next appointment. 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 1/3/2008 10:41 PM (GMT -7)   
Sorry about that Sjkly is right thr Ra is autoimmune not the OA.
Curley
.........
 

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