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lifestudent
New Member


Date Joined Jan 2008
Total Posts : 2
   Posted 1/9/2008 10:16 AM (GMT -7)   
 
I have had RA and chronic fatigue for about ten years now and have jumped around with doctors and meds... i don't feel too comfortable with the idea of taking drugs to "control" my illness and mask my symptoms, and if i could go back to the beginning of my treatment, i may very well have decided to go completely natural. I sort of feel like it's tto late now, what with doctors scaring me pretty good with stories of terrible flares once going off meds, and irreversible damage. However, the idea of going off my meds is still in the back of my mind.
Currently i am on 5omgs of mtx, and a plaquinil every other day. The stomach issues that started a few years back are getting worse, what with lack of appetite and even very slight nausea has started quite recently when eating. I think these are mtx side-effects, and how i would love to go off it. Over the years i have incorporated, bit by bit, natural healthy regimes into my life, starting with nutritional supplements and milk thistle for my liver, i quit drinking and smoking, which i'd done a lot of, started eating healthier and launched myself on a spiritual path of facing my reality instead of running from it... two years ago i started taking yoga classes and although i still have a love/hate relationship with it, it has been the one thing - along with my other spiritual practices that has made the most difference in both my body and my spririt. I almost ran away several times because during these yoga classes one is confronted with one's illness in all it's various forms and limitations, and i would get very angry and sad etc when i couldn't do what the others were doing. But my teacher was wonderful and kept telling me to go slow, to do the positions in whatever way worked for me, and not to look at anyone else, keep my eyes to myself.
I am considering going on Enbrel to save myself from the stomach issues. Has anyone been on it for quite a long time and can let me know their experiences?

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 1/9/2008 12:33 PM (GMT -7)   
Welcome to the forum and congrats on the yoga! Stretching can really help a lot. I'm not on Enbrel but I am sure you will hear from some who are. I take Plaquenil daily at 100mg per day, and MTX at 20mg per week, I did not know you could take it at such a high dose and my doctor cuts it off at 8 pills. I didn't have any stomach issues with the plaquenil but when I first started on the MTX that was another story!

I have also thought about going off of meds and did so at one time and I just could not function to a level where I could get along daily. The pain (and fatigue) were just too much. I hate the meds, and I'm sero-negative which means I don't even have a positive RA test to show for my misery. In my mind one of these days I will wake up pain free because two years ago, I was pain free and this just did not exist!

I think its wonderful that you have made so many strides towards a healthy lifestyle! I wish you the best in your search for the right treatment.

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/9/2008 2:34 PM (GMT -7)   
I actually came to the forum today to ask for advice about plaquinil side effects   then when I saw your post it seemed you had some of the same ones so you might need to figure out what drug is causing them.
 
So has anyone else had problems with plaquenil? I had to go off of it seven years ago even though it was the best med I had ever been on.  Then three months ago I had a horrible flare and had to go on prednisone and begged to start plaquenil again.
 
Unfortunately the side effects are back as well. I feel like I am motion sick- it comes in unpredictable waves lasting one to thirty minutes and they seem to be getting worse-any ideas for controlling this?

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/10/2008 3:11 AM (GMT -7)   
Hi and Welcome to Healing Well. There are many ppl whom are on Enbrel. I am not on Enbrel. But I have heard wonderful things about this drug.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 

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