I found infusions to be extremely tiring as well. They did get better over time. One other thing I did helped as well - I cut the benedryl they gave me down to 1/2. They were giving me 50mg of the stuff which knocked me down to feeling like a 2-ton brick where I couldn't get off the couch if my life depended upon it. But, I don't recall ever having some of the other symptoms you are describing - I stopped taking it almost 3 years ago, so my memory is failing me here....
Good luck to you. Have you discussed this with your doctor? What did he/she say? Remicade used to have a hotline you could call too - they took every call pretty seriously.
Hey everybody, my first Remicade infussion went ok. They gave me a antihistamine prior,and something for my tummy and away we went. I was extremely tired for a couple of days, but other than that. okay. My hands,shoulders,and feet are still aching, but I would imagine the Remicade takes awhile to kick in huh? My next infussion is on the 6th of April.
Hope everyone is doing good.Joy