AS? Fibromyalgia? Reiters Arthritis? Some advice please!

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New Member

Date Joined Feb 2008
Total Posts : 3
   Posted 2/3/2008 4:10 PM (GMT -6)   
Hi everyone,
I will try to make this as short as I can....
In Oct 2005, I went on L&I from my job and ended up with 2% loss of use in my arms.  They told me that it is nerve entrapment and epicondylitis.  Therapy helps, but it doesn't last long and the insurance won't give me anymore visits.  When I went back to light duty work in Jan 2007, the middle toe on my right foot started hurting.  Then it swelled up and was painful.  I went to a foot doc who said that it was a neuroma.  I went through the whole treatment of cortisone, therapy, etc., but nothing seemed to help.  He wanted to do surgery, but I got a second opinion. Second doc did MRI and said there wasn't any neuroma.
Starting in March 2007, I went to see a rhemy. My CRP was 27 and I tested positive for HLA-B27 gene.  He diagnosed me with Reiters Syndrome and put me on Plaquenil.  Didn't help at all.  He told me that he didn't know what else to do, so I told him bye and went to a different rhemy.  This one did all kinds of blood tests, MRI'S, etc, and said that he says I have AS, Fibromalygia and Reactive Arthritis.  He wants to put me on Enbrel when I see him on the 13th for his final treatment plan.
I have read the side effects of Enbrel and don't like what I read, but I don't like being in pain all the time either.  Any suggestions or helps?

Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 2/3/2008 6:03 PM (GMT -6)   
Hey there isonopain.. do you have psoriasis by any chance? When you mentioned that your toe on your rt foot was swollen and painful, it made of think of Psoriatic Arthritis.. that's how mine started, in my feet.. and I went through MANY different tests and diagnosis before I got a definitive diagnosis of PA.. Docs thought it was neuroma as well.. even went so far as to put me in a cast.. but when it spread to the other toes, they realized I needed to see a rheumy.. I am also HLA-B27 positive.. I have Spondylitis and PA.. I am on Enbrel as well.. I have been on it since March 2005, and haven't had any problems with any side effects, except for the itching around the injection.. I get bloodwork down ever 6 months and more x-rays.. the thing with biologics, is you have to think about your quality of life.. Enbrel can help you and slow the progression down, you will have days that you'll think you're a new person.. I know I did.. I too was very scared, but it has been the best thing for me.. I can play with my kids again.. I walk without a limp.. I can jump on the trampoline... I can take my dog for a walk.. I am in the military and work on airplanes for a living.. and I can do all that again.. without pain.. and that's thanks to the Enbrel.. I know that if I had not gone on it, I wouldn't be where I am now.. My kids say that I am the "healthy mommy" again.. you don't know how much that means.. So good luck to you.. and let us know what you decide.. ultimately the choice is yours.. best wishes.. Duck
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots

New Member

Date Joined Feb 2008
Total Posts : 3
   Posted 2/6/2008 5:44 PM (GMT -6)   
Hi Ducky,

I have some dry skin on my calf and ankle area, and a little occasionally on other parts, that can sometimes turn into little red bumps with halos around them, but nothing that seems uncontrollable. It sounds like you have had great results on Enbrel. The triage nurse at my docs office has only heard good results from people on Enbrel also. I hope that it works that way with me. My toe has been the worst all week and I really need to find something that works. I have new insurance (BCBS) so I hope that they a better about treatments than Group Health (my old carrier). Thanks for the vote of confidence. Has anyone else had good/bad results with Enbrel?
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