Sacroiliitis and epidural questions

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Red_34
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   Posted 2/23/2008 6:53 AM (GMT -7)   
I was diagnosed with Sacroiliitis in December and had an epidural injection - xrays showed that I only have minimal arthritis in my spine/hip area.  This helped relieve my pain for 2 months (I was hoping it would last longer!) so yesterday I had another epidural injection.  I got to thinking...is there any long term ramifications to having multiple steroid injections?  If so, what are they?  How many injections can one person have?  Is there anything else out there that can help take care of the inflammation in my SI joint?  FYI, I am unable to take any sort of anti-inflammatory medication due to my Ulcerative Colitis (causes me intestinal bleeding).
 
Thank you for any responses!  :-)
 @--->--SHERRY--<---@
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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teddybearweiser
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Date Joined Oct 2004
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   Posted 2/23/2008 1:06 PM (GMT -7)   
Hi, Have you tried Remicade or Humiria, I am on Remicade for my Crohn's but it does nothing for my Osteo-Arthritis or my Rheumitoid Arthritis. My Crohn's is in remission do to the Remicade,
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Ducky
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   Posted 2/23/2008 6:15 PM (GMT -7)   
Hey Sherry.. Can you take any of the DMARDs? I know you can't take the NSAIDs, but wasn't sure about DMARDs.. teddybear brings up a good point too.. what about the biologics? Seems as though you've told me this before, but I am getting old and suffer from CRS.. Can't Remember S.. uhm, Stuff.. ha! Talk to you soon!
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Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Red_34
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   Posted 2/24/2008 6:17 AM (GMT -7)   
LOL Ducky, I think we all suffer from CR-ummm stuff at one time or another! What is DMARDS? They use Remicade for UC but usually only when the patient don't respond well to all other medications. Remi is a last ditch effort before colon removal in UC. I don't really want to start on Remi unless I absolutely have to but if it was proven to help in Sacroiliitis then I guess it can have the added benefit to my Uc. I have an appt with my pain doc in 2 weeks and I plan on asking him the same questions, but I thought I would get a little head start here first.

Thank you too Teddybear :)


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Boo
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   Posted 2/24/2008 6:35 AM (GMT -7)   

Hello Red.  I took the spinal injections for several years, I think 3 to be exact.  I finally got to a point where I was having them farther and farther apart and then finally stopped all together.  It seemed to "toughen up" up my spine or something.  I have bulges and degeneration in C-6 and C-7 from an altercation with a horse.  Ha!  The horse won, but I haven't told him.  The epideurals were a miracle for me and I've never regretted having them.  I know that for about a week after having one I would have a little trouble sleeping and I would have hot flashes from "you know where".  But overall they worked great for me and I don't walk like a question mark anymore.  Where I had them done was in the ambulatory surgery part of my ortho's office.  They would put "happy medicine" in my IV and then the injection and home I went, never remembering a thing.  I know everyone doesn't have a successful outcome with these but I did. 

Good luck!  Boo


Red_34
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Date Joined Apr 2004
Total Posts : 23427
   Posted 2/24/2008 7:27 AM (GMT -7)   
Darn, now I feel robbed! I don't get any happy medicine! :) All I get is lidocaine and xray guided needles. Yeah, the steroid injections are a ride for sure! I can't sleep after I get them and I feel wired up, but I never regretted getting them either because they sure do make me feel better. And boy do I know about those hot flashes - phew! I had a doozy of a one yesterday. I was walking around stripping out of my sweater and walking outside in the cold - my husband was looking at me like I lost my mind! LOL But you've given me hope Boo, thank you :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Ides
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   Posted 2/24/2008 9:44 PM (GMT -7)   
Sherry,
I have had many joints injected, some repeatedly. My rheumy and back guy will only inject a joint three times in a calendar year. Repeated injections do have consequences. I had a problem in the left foot and it could no longer be injected due to the severe thinning of the skin over the area.

In regards to the inflammation in your SI joint -- my back guy told me at the time of my SI injection that he hoped that I would get at least 3 months of relief from my injection. He also said that he preferred to inject the SI only when it became really troublesome.

Because you have sacroiliitis, have you been worked up for enteropathic arthritis or ankylosing spondylitis? Sacroiliitis is very often associated with these diseases. As far as Remicade being used as a "last-ditch" med in UC, it is a first line of defense in AS. My Crohn's was categorized as mild but I had severe and progressively debilitating AS. I was started on Remicade more for my joint inflammation than for the Crohn's. Please consider seeing a rheumatologist if you haven't already. They are best equipped for evaluating the joint issues often associated with UC and CD.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Red_34
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Date Joined Apr 2004
Total Posts : 23427
   Posted 2/25/2008 4:57 AM (GMT -7)   
Thanks Ides :) I have a horrible tendancy of waiting until whatever ails me is at it's limit before I break down to see a doctor. So when it comes to my injections, unfortunately I was already at my limits. I told the doc that last Friday and he mentioned that sometimes it's best to get it taken care of before the inflammation gets too severe so the injections will be more effective - faster and the injections less tender. I just get so tired of seeing doctors! As for the AS, I had an xray taken of my hips and lower spine and the report came back good actually (very minimal arthritis was shown) but I haven't seen a rheumy yet. But maybe I should persue that eh?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Ducky
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Date Joined Mar 2005
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   Posted 2/28/2008 2:01 PM (GMT -7)   
Hey Sherry.. sorry for the late reply.. I've been snowed in a cabin for the past couple of days... DMARDs are Disease Modifying Anti-Rheumatic Drugs.. I think they are supposed to be easier on you than NSAIDs.. Some DMARDs are: Methotrexate, plaquenil, sulfasalazine and of course the biologics.. how are you doing?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Red_34
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Date Joined Apr 2004
Total Posts : 23427
   Posted 2/28/2008 4:17 PM (GMT -7)   
Darn that snow! I am tired of it myself to tell the truth and counting down the days until spring.

I'm doing better now that I had the injections. No more constant pain so the steroids are doing their magic! When I see my doc in a few weeks I will ask him about the DMARDs except the sulfasalazine since I'm highly allergic to sulfa.

Thanks Ducky :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 2/28/2008 10:31 PM (GMT -7)   

Hey Ducky,

 that CRS you have, down here we call it KRAFT, Kan't Remember A ******* Thing.(ok so the spelling ain't perfect).  As per the steroid injections, my Rheumy will only give them a few times a year.  Says too many are hard on the ticker (heart).

Raven


When you get to the end of your rope, tie a knot and hang on!!!!
 
Current Diagnosis-Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis. Stress!!!!!!
Current Meds-Methotrexate 20mg s/c weekly, Plaquenil 200 mg BID, Celebrex, Folic Acid daily, Cesamet, Oxycontin 20 mg BID, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID, Calcium, Vitamin D


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 2/29/2008 7:14 AM (GMT -7)   
KRAFT... that's a good one.. I'm gonna have to remember that.. tee hee hee.. :) :) :)

When do you go back to see your rheumy Sherry?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23427
   Posted 2/29/2008 7:52 AM (GMT -7)   
I don't actually see a rheumy yet. Right now, I'm just seeing a doc of rehabilitation medicine (or pain doc) and my primary. But I go see my pain doc in a week or so.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 2/29/2008 1:21 PM (GMT -7)   
Ah, ok.. gotcha.. sorry.. is just habit to say rheumy.. :) well at least you are seeing the doc soon! You'll have to keep us posted..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots

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