Starting Orencia and need information...

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New Member

Date Joined Feb 2008
Total Posts : 10
   Posted 2/27/2008 4:21 PM (GMT -6)   
Howdy all!  Started Orencia, but am curious.  Those of you who are on Orencia, how long did it take before you noticed improvement with you RA?  I have heard everything from 3-6 months before any benefits.  Who can tell me their story...





Current Diagnosis-Serum Negative Poly Migratory Rheumatoid Arthritis, Serum Negative Sjogrens Syndrome (eyes, sinus, mouth, Possible Chronic Pancreas involvement), Chronic Pancreatitis, Acid Reflux, Depression.

Current Meds-Remicade (max dose, shortest time), Methotrexate 5 mg once weekly, Folic Acid daily, Lorazepam 2 mg at night, Lisinopril, Citalapram, Lipitor, Prednisolone Ophthalmic acetate, Pilocar 4% (1 drop oral 4 x daily), Tylenol PM at night, Prednisone (as needed), Oxycodone (as needed).  NEW - Prednisone 50mg, Hydrocodone 7.5mg and SOMA.

Testing/Surgeries-Sinus (twice) from reoccurring infections, Cataract surgery in both eyes from long term Prednisone use, Endoscopy 3 x (once with ultrasound), Colonoscopy, monthly blood work.

Current Issues-Bladder Infection, Sinus Infection, Salivary Glands Infection-on antibiotic #6  #7!.  Remicade no longer works after 4 years.  Issues with vision being blurred and out of focus.  Night vision has suffered.


Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 2/28/2008 10:14 PM (GMT -6)   
Sorry that no one has answered you it may be that not too many of us have been on orencia. Hopefully someone will come along with some info.

Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 2/29/2008 9:10 AM (GMT -6)   
I don't know of anyone on this forum that is on Orencia.. hang in there, someone will be along soon hopefully..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots

Regular Member

Date Joined Oct 2005
Total Posts : 251
   Posted 3/4/2008 11:36 AM (GMT -6)   
about 3 months.
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid

New Member

Date Joined Nov 2007
Total Posts : 8
   Posted 10/18/2008 5:26 PM (GMT -6)   
Hi. I have not been here for awhile, but I hope to change that. Anyway, my rheumy took me off Enbrel this past Monday. He wants me to try Ornecia or Rituxan. Depending on which one my insurace will approve, will be the one I take. I really get upset that my insurance has control of my life. However, I am like you and would appreciate any advice about either one of these drugs.

New Member

Date Joined Nov 2007
Total Posts : 8
   Posted 10/23/2008 4:29 PM (GMT -6)   
Well, I called my insurance today and they informed me that Orencia or rituxan will not be covered under my plan. Does anyone have any other ideas what the doctor will do next. I have already been on Enbrel, Plaquenil, Methotrexate, etc. He took me off the Enbrel due to an allergic reaction and off hte Plaquenil because I could not tell it was doing any good. I have been on the Plaquenil for over 4 years now. Anyway, I do not know what is next.
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