Just a few questions for those on Enbrel? After the first injection did you have some sort of rebound? I'm not sure if it is because of the injection of Enbrel that I had or if I am just in a flare because I had a cold or whatever it was but I have a temp with pain in my elbows, knees, and my hands to the point that it was difficult to drain my pasta while fixing dinner. I have never hurt this much before and I was wondering if the Enbrel can have a rebound or maybe from not taking the plaquenil...sorry just wondering why I have a temp and hurting and if anyone else ever has a fever with their flares??
I hope everyone else is doing well, and will check in later.
Yally...I also decided to take the Enbrel on Friday and it seems that my batch of free auto injectors are bad because none of the buttons would push down on them and I ended up trying to use two, to no avail. Finally had to get out the premeasured syrynge's, warmed one of those and then THAT wouldn't work either!!! The needle had a clog in it this is
what my husband told me later...so finally on the fourth try and sweating buckets at this point because I"m such a needle phobe..I gave myself a shot of Enbrel. I felt great Saturday and Sunday but for some reason now on Monday the weather is crummy and I hurt! It feels as someone has punched me in the back? So the Enbrel lasts about two days :) I go back in a month to see the doc and will hate to tell him that not even shots of Enbrel put me out of my misery
Sj...I did that too with my prednisone, getting one last prescription filled and I know you feel great on it but I will admit on the higher doses my face would get flushed, I had hot flashes and my family told me I was cranky...but I sure didn't hurt! I hated giving up the pred too. Hang in there!
I hope this missive finds everyone in good health, well as good as can be expected with rheumatoid arthritis, equipment that doesn't work, scripts that run out, scripts that get cancelled, and scripts there simply aren't enough. Although I don't have rheumatoid arthritis like the rest of you I can empathise having a condition that seems to wake up every morning and try something different. It is said that things like this can only make us the stronger for it will if that's the case plenty of you people must be the strongest people in the world.
Anybody heard from e rin? Duckey said she had heard from her last week or so but has there been any hearings on since?boo are things going in Oklahoma? Seen any floods lately?Sorry to hear you are not doing too well lately my apologies for not mailing when I said I would but I promise I will mail this week.I can't name everybody here because my software simply won't do it what I will do one day is name everybody and see if you can all guess who you are and what appears in print but I will have two dry run its first to make sure that what is printed doesn't offend or insult even though a fence and insults can be quite funny at times. See what I mean? Spot the deliberate mistake ha ha!
What hope is there a woman or a black American president in 2009? Is America ready for it or will they true to form settle yet again the GOP? The chances are there are real change will the people grasp the nettle or fearful of being stung. It's getting quite some re portage over here and it will only be more so as the year progresses. Observers in the UK see this as a real test of the American electorate. Without wishing to be party political how do you people view it? Will this get past the thought police?
Is it still snowing in Buffalo yally? (I had to cheat and typee yally in].I leave it there as I am now very tired as my Parkinson's is starting to cause insomnia which normally would be alleviated by a kip in the afternoon but as I am now back at work this is not possible under normal circumstances but I have come home early I will now sleepuntil we meet again stay well peoplethe bear
Hello! hello! hello! I'm finally here again! So good to read everyone's posts. Joan, you're so funny....folks in NY having sex and all. The Gov sounds like a friend of my hubby's. Ooops! Sorry about that.
Bear, so great to see a post from you. I hope you're settled in and comfy. Just remember while the Witch is there, "this too shall pass".
I'm doing pretty good, I guess. Have some really low days and wonder if I'm doing the right thing by staying. If wedding vows are broken can they ever be "fixed"? That's the kind of stuff that goes through my head.
With meds adjusted I'm still losing weight. I was 160 lbs. at Christmas. Now at 126.
We are about to have some real bad weather, Bear. Severe thunderstorms and possibility (always in Oklahoma) of tornadoes. Due here in about an hour. I have a beautiful home but it is a manufactured home and I head for the underground when these things come around. So, Bear, I may just see some floods...as the river is just across the road from me. Keeping my fingers crossed (oh if I only could) that it blows over and I can get a nap in.
Love to All!!!!!!! Boo
Ok, ok, ok, Yally....like I haven't heard THAT one before.....lol. You know I am just kidding, I wouldn't expect anything less than to get teased by you...My hubby's family in Wisconsin has been razzing us something fierce, too. At least this time we are joined by Michigan..Hope you have a better day tomorrow, dear!
Thanks for the input, sj. Plaq hasn't ever bothered my stomach, darn it, wish it would have, at least a tiny bit. I've hit the 6 month mark though now, and she said that at that point you've reached the max of whatever the plaq is going to do for you. So..hope she has some new ideas on Friday.
Well it's spring break here for myself AND the kiddo's....they are already singing the song of boredom so we are going to go roller skating and I will have the honors of watching this time around, since my knee really hurts at the moment. However, we plan to go bowling and mini golf so hopefully I can get in on some of the fun!
Yally...that was crazy about the Enbrel and I was really starting to wonder if I was meant to take it since the week before the nurse and I had such a difficult time with it. I didn't realize you were on the pred...it does make a world of difference thats for certain. I hope you are feeling better until your Enbrel starts working for you.
Sj...that is all I ever had was 5mg...but I would take 3 at a time and would run out..I wish I had some right now because even with the MTX, plaq, and Enbrel, my knee and hands still hurt.
Jody..Good luck at your appointment on Friday and I have also heard that about the plaq and while it wasn't the magical pill I had hoped for without it I can't make it up my stairs, it feels like I'm walking in quicksand. My doctor doesn't even know I'm still taking it. After I found out I could still potentially take it with the Enbrel without anything dangerous happening to me, I had to get back on it.
Boo...congrats on the weight loss that is awesome!!! There is something about RA and possibly these crazy meds that triggers weight loss since I went from 120 to 104 a couple of years ago, right around the time I developed this crazy RA.
Although one depressing thought, I have noticed that some of my fingers are starting to become crooked and bumpy Anyone else have this?