Long term prednisone use anyone?

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indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 3/19/2008 9:03 PM (GMT -7)   

Just curious if anyone has been on prednisone for a long time and what side effects you may have had from it. 

My Opthamologist recently put me on oral prednisone for my Scleritis and he said depending on what happens, I may have to take it every other day basically forever, depending on what happens with the inflammation in my eye(s). 

At the same time, it has really helped with all of the aches and pains I have been having recently. 

Anyhow thanks everyone!


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/20/2008 10:37 AM (GMT -7)   
confused  Gosh I wish I could offer you some solutions, I have been on predinzone many times, but never longer than a couple of months.  I feel like I am need of some now, back legs tail bone are killing me.
But as I have heard from others and drs, that long term predizone use actually makes your bones more brittle, leaving you suspectible to osteoporosis. Does your dr have you on anything else to help build up your bone density so that this doesnt happen to you?
Thats about all I know, Im sure others will be around soon and hopefully have more valuable info, like what the dr. should have you on to help prevent the osteoporosis. I cant rememeber the name of the certain meds, but I know they are out there.
I hope I have helped a little.... smurf ......
.......Love.....Sheryl
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar, she takes Abilify, Buspar, Celexa
MY son is bipolarw/migraines, he takes Risperdal,Topamax,150mg Zantac-acid reflux, Metformin- weight loss.
....God Bless...and have a Great Day!!...


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 3/20/2008 12:05 PM (GMT -7)   
The dosage of prednisone really influences the side effects. The higher the dose, the greater the impact. What dose does he have you on?

If you are going to be on long term steroid treatment, you should discuss with your primary doctor the possibility of getting a bone density test. The reason it would be good to get one now is to have a baseline of the density of your bones. Prednisone does make cause loss of bone density in some people. If you have a baseline and end up on prednisone for a long time, then yearly repeat density scans can monitor the impact on your bones.

I took 15 mg of prednisone for almost a year to control my asthma. I gained weight and in the beginning had some insomnia. My mother has been on low dose prednisone for over 15 years now. The biggest issue it has caused for her is extreme thinning if her skin. It is so thin it easily rips if she bumps into anything.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 3/20/2008 12:33 PM (GMT -7)   
That sounds like MIL, she on very low dose, and her skin bust open at the slightest thing. You can almost look at it and her skin will bust open she is 79.
What are some names of the meds they have for bone density after she gets her bone density test?.... smurf ......
.......Love.....Sheryl
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar, she takes Abilify, Buspar, Celexa
MY son is bipolarw/migraines, he takes Risperdal,Topamax,150mg Zantac-acid reflux, Metformin- weight loss.
....God Bless...and have a Great Day!!...


sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 3/20/2008 1:22 PM (GMT -7)   
Every other day dosing also helps minimize the side effects. Your opthamologist will monitor you closely for cataracts as prednisone increases the likelihood of getting them. You may also want to carry ID as a steroid user-like medical alert.
Sj

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/20/2008 1:40 PM (GMT -7)   
Thats a good idea, to carry a Id card, I carry one for my IC ( interstitial Cystitis) bladder malfuntion.
Im allowed to use any bathroom public or not becasuse of my condition.
 
But still curious what type of bone density meds are out there to take for one who has to be on long term pred. Its might not be long before i have to my slef, and curious too what meds can you take to counter the brittling of the bones.. smurf ....
.......Love.....Sheryl
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar, she takes Abilify, Buspar, Celexa
MY son is bipolarw/migraines, he takes Risperdal,Topamax,150mg Zantac-acid reflux, Metformin- weight loss.
....God Bless...and have a Great Day!!...


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 3/20/2008 2:06 PM (GMT -7)   
There are several meds to prevent osteoporosis (sp) boniva, actonel, and several others some you take weekly some monthly one is a once a year injection-I don't know all the particulars but someone will come along who has used them also you can google the names I gave you and get some info. Sorry I don't know more.
Sj

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 3/20/2008 2:11 PM (GMT -7)   
I just noticed a thread on osteoperosis meds just a few below yours reclast vitd and forte... It will give you more info and some stories from others who have been on these drugs.

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/20/2008 2:23 PM (GMT -7)   
Ok thank you very much!... smurf ...
.......Love.....Sheryl
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar, she takes Abilify, Buspar, Celexa
MY son is bipolarw/migraines, he takes Risperdal,Topamax,150mg Zantac-acid reflux, Metformin- weight loss.
....God Bless...and have a Great Day!!...


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 3/22/2008 10:01 AM (GMT -7)   
Thanks for your replies everyone!

I am currently taking 40 mg a day and tapering down. My doctor said that I may need to take 5 mg every other day to make sure the scleritis stays away. I am guessing that may not be too bad after all?

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/22/2008 10:11 AM (GMT -7)   
No thats not too bad, thats what my SIL and MIL are on. But please do be sure to ask your doctor about the bone density test, and if necessary to put you on a medication that increases your bone density....... smurf ..........
Excema, hypermobile...
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar(8), she takes Abilify, Buspar, Celexa
MY son(13) is bipolarw/migraines, he takes ,Topamax,150mg Zantac-acid reflux,
....God Bless...and have a Great Day!!..........Love.....Sheryl


Fluffytwo
Regular Member


Date Joined Sep 2006
Total Posts : 100
   Posted 3/22/2008 4:43 PM (GMT -7)   
Have Polymyalgia Rheumatica and fell broke shoulder 3 places in the spring last year. fell again this fall broke wrist went to Rheumy she ran $2000 worth of tests. Really soft bones and brittle severe vitamin D depletion. Put on 15mg prednisone for pain and Fosamax. The fosamax made me feel lousy and body pain. Wanted me to Take Reclast but after the fosamax I was afrai the side effects might last a year. Trying Boniva and will start the 3 month injection.I have a love hate relationship with Prednisone.

Was just put on Plaquinil said it takes 3 months to kick in and have to have eyes examined every 6 months from this medicine. It can cause cataracts I believe. Try anything for the pain and lousy feeling I guess.

Have a pain free Easter,
Fluffytwo

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 3/22/2008 5:01 PM (GMT -7)   
The pred is the one that can cause cataracts. Plaquenil can deposit on the back of your eye causeing visual field disturbance. Its rare and if caught early you can just stop taking the plaq to prevent it from getting worse.

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/23/2008 3:09 AM (GMT -7)   
Either way thats scary, got to take the meds to stay alive, but then they cause problems. Im sorry
Fluffy, I hope the bovine helps, you got to have somethign in there trying to protect your bones.
Happy Easter to everyone, as pain free as possible.... smurf ....
Excema, hypermobile,Chronic Bronchitus,Fatigue
Fibro-05--Had surgery one left knee, then on right knee, they are doing better!!
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar(8), she takes Abilify, Buspar, Celexa
MY son(13) is bipolarw/migraines, he takes ,Topamax,150mg Zantac-acid reflux,
God Bless,and have a Great Day!!.......Love.....Sheryl
God plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


sarahsmom
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/23/2008 12:36 PM (GMT -7)   
This is my first time posting here. I have been on low dose prednisone for 10 years. I started with 10 mg per day and then gradually over the last 4 years lowered to 10 mg every other day. Since the decrease, the physical side effects have diminished. But- because of the prednisone, I have developed an anxiety/panic disorder with depression. This has been hard to live with and my rheumatologist does not understand the impact that these symptoms have on my life

Oregonian
New Member


Date Joined May 2008
Total Posts : 4
   Posted 5/31/2008 11:08 AM (GMT -7)   
My 22 year old daughter has had asthma since she was 4 years old. She has been on Prednisone ALOT for her asthma and her JRA when she has had flare ups plus she was on other steroids for her asthma growing up. So far so go; no serious side effects except she did gain weight which is not good for her JRA. Now in the last year when she has a flare up of her JRA she refuses to go on Prednisone because she does NOT want to gain any more weight and in fact she has been working extremely hard to lose weight and has lost a little and now she is stuck because of the seizures. If it's not one thing it's another but she is determined to get through this. In school she was named Queen of Endurance. Unfortunately she wasn't able to finish high school due to her health problems but as soon as she can get stable she plans on going to get her GED and go to college and one day go to medical school. She wants to be a doctor. It's never to late!!!

ladyvol
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 6/1/2008 8:34 PM (GMT -7)   

I have been on predisone for about 10 years and the biggest side affect I have had is weight gain which I cannot stand.  I am on 10 mgs. a day but have been higher at certain times after being diagnosised. I do have to get a yearly bone density test because of the predisone makes the bones brittle.

Good luck to you,

pedodgeball  sad cool


nev
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 6/3/2008 8:14 AM (GMT -7)   

I took prednisone for 8 months, just finally weaned off of it.  Started at 5mg, went up to 10mg, then tapered off 1mg at a time from there.  I almost immediately started losing a SMALL bit of weight without trying.  Yay, but now I'm gonna have to work at it-in moderation. 

My most irritating side effect beside weight gain was my hair (already dark and thick) became more noticeable on my face, darker and thicker. I t makes me self conscious and I won't put my hair back to expose the side of my face.  I wondered if with long term use if I would eventually have more facial hair.  Definately not desirable for a woman. 

Also the shape of my face has changed a bit, not in a good way.  And not just from the weight gain. 

These are all regular noted side effects.

My rheumy explained that it's not a matter of if you will have side effects from this drug, but when.  A bit disturbing, since I usually don't have much of any side effects.

So I'm glad the doc took me off.

best to you with your meds,
nev

annalisa
New Member


Date Joined Jul 2008
Total Posts : 8
   Posted 7/22/2008 9:44 AM (GMT -7)   
confused
 
I AM NEW TO THIS FORUM, PREDNISONE CAUSE DELAYED STOMACH EMPTYING(GASTROPARESIS) BEEN ON IT OFF AND ON FOR MY ASTHAMA, BEEN DX WITH GP.
 
 

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/22/2008 8:19 PM (GMT -7)   
Hi Indigo,
 
I've been on prednisone for over 8 years now. I bounce around from 5mg to 20mg depending on my lupus, etc.  I try to stay around 8mg to keep out of any flare ups.  I also get a yearly bone density test.  So far I'm doing pretty well on it.  I got cataracts in the beginning when I was on high doses - 30mg or higher, but they went away when I tapered below 20mg.  So they're not permanent if you can stay away from the high doses.  5mg is a good small dose. I hope it works really well for you!
 
Ginny 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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