When they learned I had AS on top of my mild CD, it was strongly suggested by my GI and rheumy that I begin taking Remicade. The only other med that would not potentially cause the NSAID type gut problems was Sulfasalazine. However, it turned out that I was allergic to sulfa. So Remicade it was -- and that put my gut into remission and greatly improved my mobility and decreased my back/SI and joint pain. Then Remicade failed after 2.5 years. Took Humira which helped but not as good as the Remicade. It probably didn't work as well because I was working up to reacting to it after only 3 months.
The GI/rheumy put me on Celebrex because it has less gut issues than the other NSAIDs. That helped but I developed hyponatremia. Then the GI said that NSAIDs could be tried and if it impacted my CD he would fix it. Well, they really helped get the inflammation down but developed kidney problems and had to stop that.
So the current plan is to treat the enthesitis by withdrawing excess fluid and injecting cortisone in the problem areas plus pain meds. I have a huge long list of the joints and tendons I have treated. I had my right SI joint injected in September and it has really helped. I am now just getting some pain in that area if I sit too long. I take Tramadol and Neurontin together for my neuropathy but it also helps with the other pain. I have a stronger opiate for breakthrough pain. I also got a lot of benefit from seeing a wonderful physical therapist. I had a different PT for a couple years which was only marginally beneficial. This new guy has improved my strength, balance, and reduced pain in some areas.
I almost forgot - I also have a TENS unit which I can use. I used it alot the first two years on my SI joint. since getting my SI injected, I don't need it as much.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?