I'm happy that your appointment went so well, it sounds like you are doing much better with the Enbrel and I hear that is how it works for so many people. I think I need to drink more water! I know I always tell people to drink more water but it is hard to drink all of the water that you are supposed to when taking these meds! I think someone else said they get tired of drinking water? It does get tiresome..
Sorry to hear about your mom though Bless her heart!! My mil was caring for her mother and finally had to find a place that could care for her she just couldn't do it physically any longer but now has her father staying in a small house on her property, it seems to be working well, so we will see how long she will be able to care for him. You are right they get so frail and then what do you do?? I'm glad she only needed some x-rays and a stitch or two.
Sounds like you have the painting all figured out and that isn't easy I know The presentation went fine, I just get really nervous and the other girls in the group were nervous as well so you can imagine how it went
That is great news about the pred..I'm actually jealous and wish I had some at the moment, since this bug or whatever it is that my husband and son have passed on to the rest of family is really making the joints hurt!
Thanks for the toast! I would love to have a drink as well, but the Enbrel and MTX, I'm sure I would be really sick, so I like your idea better:)
The board is a bit slow or I talk too much!
I went to see the rheumy this afternoon and it went really well. I told him that the Enbrel seems to wear off by Weds, and he says this is very common so I will finish out the shots that I have and then start taking two per week (25mg twice a week) and since I have had this cold, I have had horrible joint pain and I told him my pain level was a 9 today and he was very concerned and prescribed me darvacets 100/650, they are huge horse like pills. I have taken lots of pain meds over the years for surgeries and have never taken pain pills this strong, I didn't think anything about it at the office and I couldn't read his chicken scratch otherwise I would have asked for something less. I was hoping for some prednisone...but no such luck!! Time to go and load the dishwasher while I can still function.
How is everybody else????
Good evening everybody,
You're right Mom, the board has been awfully quiet. So many of our little family here are dealing with some major stuff...these are some tough days for alot of people. Hoping and praying that they will all be able to come back soon....they are missed so much!
But, no, you sure don't talk to much...I'm the one with the mile-long posts LOL!! It's so good to have you back here posting again...really missed you when you weren't. So very happy that the appt went well! I'm glad the doc took you seriously this time...have read about the twice a week enbrel before...here's hoping that does the trick for you. Can you cut those pain pills in half if those are too strong? Congrats on your presentation, at least that is behind you now. How much school do you have left? SJ, so you're a fellow painter, too lol? I didn't there could possibly be anyone out there as bad as me! Looks like we may have to wait a couple more weeks to get it done, the guys who's doing it had some things come up. Hubby says it's worth waiting for him rather than trying it ourselves. So, you get to keep your pred? I'm glad since it helps you so much...maybe the mtx will kick in for you sooner than usual....hope so.
Better go hit the hay...still trying this 5am stuff...yuck..but at least I;m starting to get some exercise in...take care all, and hugs to everyone...
I decided to cut the pill in half, after I almost poured a full bag of sugar into a pitcher of tea that I was preparing instead of the glass container that I was supposed to put it in...thankfully I managed to salvage most of it, however, my daughter who was fixing dinner with me thought it was hilarious and couldn't wait to share my almost disaster with my husband She really thought mom was whacky and I was!!!
Don't worry about your mile long posts, I alway enjoy reading what you have to say! It sounds like your 5am's are going well, and I have to say you are so awesome to be able to do that and take care of the babies, I am bowing to you right now! I would love to have your energy...If I could have some of Sj's prednisone I could hop out of bed and go all day but no such luck At this point my house is in dire need of a good scrubbing and a spring cleaning..The 9th of May is my last final and then summer classes begin on the 19th of May. Hopefully I will be able to squeeze in some much needed chores in between.
Yally...80 is pretty hot! I'm assuming you went to get your daughter? Sounds like you will have mom and daughter time for a few months until she returns to school I'm looking forward to spending time with my little girl who is going into 6th grade, she is growing up way too fast for my taste. That is crazy about your car, only 3 years old? I would have been fuming! And taking it back to the dealership I'm sure they won't mind fixing it..
Thinking about all those who are unable to post right now..
I hope everyone is doing well since there are no new posts? Sj, are you feeling better and not so puny? Jody? I know some of us are having difficult times right now.
Not much going on here, some nice weather this week, in the 70's and final's week is now here so just a lot of stress!! Other than that I finally get to take the Enbrel tonight before bed and hopefully stop taking these crazy pain pills
Have a great week everyone..
Yes, I'm still here, just having a crummy couple of days. Perhaps my love affair with enbrel is over with already, or else I'm in a nasty flare...who knows. Only thing I know for sure is that I would really LOVE a new pair of feet and ankles!! Took my shot on Friday like a good girl, but I sure wouldn't have know it.....rough, rough weekend. last night just kind of wanted to throw in the towel, but today's another day, maybe it will get better??? Daycare kids are passing a stomach virus so perhaps that is affecting me as well. I got the flu in my feet? lol. On top of it we've had a weather front move in, so it's coming at me from all angles.
Kids are kind of wound up, so think I will try and get them outside for a bit to play. The next few days are supposed to be pretty nice, not too hot. We need to take advantage of it...the heat will be coming soon enough.
Will check back with you all later...hugs to everybody!!
Sj, it is good to hear from you..do you take a multivitamin? since you haven't been feeling well maybe you have been in need of some for awhile? Although I thought if I took fish oil and such it would do away with the inflammation Ha! no such luck, but I'm happy to hear that the iron is making an improvement I have not had that problem on the MTX so far, I think it can make us a bit tired or maybe that is just the inflammation..it is so hard to tell what is what since we are usually just tired!
Jody Oh no...I felt that way on Saturday..could hardly turn over in bed, I was so stiff, but that was without Enbrel, and I still have not taken my shot..I will take it this afternoon before I go pick up the kiddos..everything was just so hectic and stressful last night all the way up until bedtime, I didn't get around to it..too bad they can't make it in pill form, it would make it a lot easier!! Can you call your doctor and tell her your pain level is just too high and you need something right now? That is what I did last time I was in, I just told my doctor point blank that my pain level was at a 9, and he was extremely concerned. There is no sense in being in pain, if it can be helped. If the Celebrex is not working, you need to call sweetie.
We are supposed to have weather coming in on Thursday with cold and snow..again I'm getting really fed up with this weather! Here it is almost May...MAY!! and we are going to have SNOW..it is ridiculous! OKay I'm done venting I know we need the moisture, and I wish it would just rain without snow..
We got home from the hospital last night. He is so sick and so needy. He is very scared too. I will surely be interrupted in a minute or two.
He weighed 160 wirey pounds a mere month ago. He now weighs 132. The Home Health nurse just left. She made me feel better and not so alone. His pain meds make him unreasonable at times and he doesn't want me to sleep as he may need something. It's been this way for two weeks. I finally made him understand last night that if I don't sleep he has to go a nursing facility to recover because I won't be alive anymore.
This has taken its toll on my health as well. But I believe we are on the road and things will improve from here on out.
Thank you for your loving support (yet again) for Crazy Boo.
Its good to see more posts!
Oh Boo, I'm happy to hear from you, did your husband have surgery? I'm so sorry he is ill, may I ask what is wrong? and is he going to recover okay? and soon? You do need to take care of yourself, although it can difficult when we are expected to be in the caregiver role so often.
Erin..I have never heard of a hot gallbladder, will you need to have it removed? A few months ago, I had to take prometrium and while on it, after I would eat, mine really bothered me..hopefully yours is nothing serious.
haven't posted lately, sorry. Hope everyone is well. I had my last epidural/steroid injection in the spine today and i've actually gotten some pain relief. The elbows, fingers and shoulders are still painful but my Rheumy says I am still in active disease. I've also applied for disability pension with the Canada pension Plan. My doctor says that the chances of returning to work is very guarded, whatever that means.
The weather has been pretty good here other that today, we had some flurries.
Stay well everyone, i need to catch up on some reading.