Good Moanin' HealingWell V58

New Topic Locked Topic Printable Version
59 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 4/22/2008 9:27 AM (GMT -7)   
yeah   yeah yeah   Previous thread can be reached here.. please continue moanin'! yeah yeah yeah
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 4/22/2008 10:51 AM (GMT -7)   
Hi everyone,
Hope you are all well...and feeling a bit better...things have been the usual hectic pace here, and I know owe a few of you e-mails..please bear with me, I'll be catching up over the next couple of days.  The weekend was  a bit scary, my mom fell in the bathroom and had to go to the emergency in the middle of the night Saturday.  Thankfully, she is ok, had to have her forehead "super-glued" and her knee x-rayed, but other than that and some nasty looking bruises, she is alright.  I guess it was the rest of us that took it the worst!  All I could think of was how so very glad I was that she wasn't alone at her house anymore!  I thank God that she was with my sister, and that someone was within "yelling" distance. We spent the last couple of days pampering her, until she got sick of all the fussing and told us all to leave her be. Lol.   Gosh, I just don't like this time of my life...mom looks so small and frail..I get choked up just thinking about it, not ready for this stage her (or my) life.
On a lighter note, the paint is all bought, and next weekend, our family room shall be the color "peanut butter".  Best part is that I don't have to paint it!! One of the daycare parents offered to paint it for us for a ridiculously low price, and we jumped at the chance.  No offense intended here, but my family teases me that I paint  like Helen Keller.  They always tell me to buy twice as much paint as I need, and just start out by sticking both arms in the paint up to my elbows. and dumping the rest over my head.  I must confess that they are absolutely right, cuz that is exactly what I end up looking like.
Went to the rhuemy yesterday, and she was very happy with the improvement since starting enbrel.  Wants to leave everything as is, and I will see her in 6 weeks.  I told her that I had tried unsuccessfully to cut the Celebrex down to one a day, and she wants me to stay on 2.  Says it's too early for that yet,  that the enbrel needs more time before I should try to start cutting other things back.
Mom, about the back and kidney pain, can't say I have noticed that but I do find that come Sunday night, I have more of an ache in my hip...I don't know if it's the enbrel, or just that fact that my latest dose hasn't really kicked in yet. Or, is it just that I'm busier on the weekends?  Maybe it's one of those "chicken or the egg" questions.  But, seems like I remember you feeling similar when we first started the mtx????  Hope your presentation went well...been thinking of you!!   hey Yally, how did the party go??  What a menu you planned, girl!  Bet it was fantastic!!
gotta go tend to the littlest one....hugs to you all...Joan, Mary, Raven, Ducky, Erin, CaMama, Bear, boo, sj, hope I didn't miss anyone..take care all.
Love,
Jody

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/22/2008 1:22 PM (GMT -7)   

Hi Jody,

I'm happy that your appointment went so well, it sounds like  you are doing much better with the Enbrel and I hear that is how it works for so many people. I think I need to drink more water! I know I always tell people to drink more water but it is hard to drink all of the water that you are supposed to when taking these meds! I think someone else said they get tired of drinking water? It does get tiresome..

 Sorry to hear about your mom though sad  Bless her heart!!  My mil was caring for her mother and finally had to find a place that could care for her she just couldn't do it physically any longer but now has her father staying in a small house on her property, it seems to be working well, so we will see how long she will be able to care for him.  You are right they get so frail and then what do you do?? I'm glad she only needed some x-rays and a stitch or two.

Sounds like you have the painting all figured out and that isn't easy I know :-) The presentation went fine, I just get really nervous and the other girls in the group were nervous as well so you can imagine how it went tongue


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/22/2008 2:51 PM (GMT -7)   
Jody, I know what its like having your mom start to get a little older. Mine is getting to the point where we won't let her drive at night at all and we are starting to think she should not drivee at all-but how do you tell her that.
I am laughing my butt off at the image of you dripping paint from your hair-mainly becasue I resemble that remark.
I am glad the enbrel is working for you.
momto3 I am glad your presentation is behind you and it went well. Here is a chyrstall light toast to you-I am not allowed anything stronger or it would be champaign.
My rhuemy told me today that I was right she only told me to cut my prednisone during our last meeting because she wanted me to figure out for myself that I needed to be on mtx. Now I get to keep the pred as long as I want it.
Hope everyone has a great evening.
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/22/2008 6:33 PM (GMT -7)   

Hi Sj,

That is great news about the pred..I'm actually jealous and wish I had some at the moment, since this bug or whatever it is that my husband and son have passed on to the rest of family is really making the joints hurt!

Thanks for the toast! I would love to have a drink as well, but the Enbrel and MTX, I'm sure I would be really sick, so I like your idea better:)


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/23/2008 2:57 PM (GMT -7)   

The board is a bit slow or I talk too much!

I went to see the rheumy this afternoon and it went really well.  I told him that the Enbrel seems to wear off by Weds, and he says this is very common so I will finish out the shots that I have and then start taking two per week (25mg twice a week) and since I have had this cold, I have had horrible joint pain and I told him my pain level was a 9 today and he was very concerned and prescribed me darvacets 100/650, they are huge horse like pills.  I have taken lots of pain meds over the years for surgeries and have never taken pain pills this strong, I didn't think anything about it at the office and I couldn't read his chicken scratch otherwise I would have asked for something less.  I was hoping for some prednisone...but no such luck!!  Time to go and load the dishwasher while I can still function.

How is everybody else????


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 4/23/2008 7:23 PM (GMT -7)   

Good evening everybody,

You're right Mom, the board has been awfully quiet.  So many of our little family here  are dealing with some major stuff...these are some tough days for alot of people.   Hoping and praying that they will all be able to come back soon....they are missed so much!

But, no, you sure don't talk to much...I'm the one with the mile-long posts LOL!!   It's so good to have you back here posting again...really missed you when you weren't.    So very happy that the appt went well!  I'm glad the doc took you seriously this time...have read about the twice a week enbrel before...here's hoping that does the trick for you. Can you cut those pain pills in half if those are too strong? Congrats on your presentation, at least that is behind you now.  How much school do you have left?   SJ, so you're a fellow painter, too lol?  I didn't there could possibly be anyone out there as bad as me!  Looks like we may have to wait a couple more weeks to get it done, the guys who's doing it had some things come up.  Hubby says it's worth waiting for him rather than trying it ourselves.  So, you get to keep your pred?  I'm glad since it helps you so much...maybe the mtx will kick in for you sooner than usual....hope so.

Better go hit the hay...still trying this 5am stuff...yuck..but at least I;m starting to get some exercise in...take care all, and hugs to everyone...

 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/24/2008 4:42 AM (GMT -7)   
ol yallers back! teehee. sounds like everyone is busy and adjusting to meds. me i cant believe but sorry raven i have to complain about all the heat i have been in and cant wait for today as the high will only be in the high 60's i think....... been in high 80's for a week it followed me to boston and the air in our only 3 year old car failed!!!!!!!!! ugh so we were packed to the gils in a car for 9 hours 88 degrees and no air..... mind you this is not a B session just a go figure...... session. all in all my sweetheart is home for the summer and no longer a freshman away at college.

walked much of boston and even broke out the heels for dinner. i must have been crazy forgot how many stairs the city has near quincy sq. but hubby held onto my arm and we trucked our way to little italy for a great dinner and even better dessert!

now my family room looks like a dorm exploded in it and i have to do damage control and figure where all the junk is going to go? i think we have crammed everything possible into storage areas of our home..... but i am certain we will find a spot to make room ....... til later hugs to all yals

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/24/2008 8:10 AM (GMT -7)   

Hi Jody :-)

I decided to cut the pill in half, after I  almost poured a full bag of sugar into a pitcher of tea that I was preparing instead of the glass container that I was supposed to put it in...thankfully I managed to salvage most of it, however, my daughter who was fixing dinner with me thought it was hilarious and couldn't wait to share my almost disaster with my husband eyes She really thought mom was whacky and I was!!!

Don't worry about your mile long posts, I alway enjoy reading what you have to say! It sounds like your 5am's are going well, and I have to say you are so awesome to be able to do that and take care of the babies, I am bowing to you right now! I would love to have your energy...If I could have some of Sj's prednisone I could hop out of bed and go all day but no such luck eyes At this point my house is in dire need of a good scrubbing and a spring cleaning..The 9th of May is my last final and then summer classes begin on the 19th of May.  Hopefully I will be able to squeeze in some much needed chores in between.

Yally...80 is pretty hot! I'm assuming you went to get your daughter? Sounds like you will have mom and daughter time for a few months until she returns to school :-)   I'm looking forward to spending time with my little girl who is going into 6th grade, she is growing up way too fast for my taste.  That is crazy about your car, only 3 years old? I would have been fuming! And taking it back to the dealership mad I'm sure they won't mind fixing it..

Thinking about all those who are unable to post right now..


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1972
   Posted 4/24/2008 2:24 PM (GMT -7)   
hi...had to go to urgent care on monday as my knee was getting worse.  the doc told me to elevate it and put ice on it as it looked puffy and probably had excess fluids on it.  so I have been hanging around and putting my foot up...pretty boring stuff sad sad
 
it is pretty out but i am suppose to do rice which means rest, ice compresses and elevate!  if it does not get better i might have to seek further treatment.
 
the tens unit has worked for the post shingles pain and i am happy about that.  they are going to let me use it for one year.  the doc thinks that the problem will have gone by then.
 
so long everybody and feel well but continue moaning! 

iMarzz
Regular Member


Date Joined Apr 2006
Total Posts : 103
   Posted 4/24/2008 2:51 PM (GMT -7)   
Hi Everyone,

So sorry to see that so many of us are not doing well at the moment. But this is the place to come to moan, right. Feel so bad for Ducky. How is Erin and Bear?

Anyway Jody thank you for always cheering us up with your funny stories. Yally, Camama and momto3 hope you are well. Anyone I may have missed I'm sorry.

Took MTX last night and had a Remicade infusion this morning so I'm hoping to get to bed early tonight, just feeling pooped.

Thinking of you all. Will write again soon.

Mary

iMarzz
Regular Member


Date Joined Apr 2006
Total Posts : 103
   Posted 4/24/2008 2:54 PM (GMT -7)   
Sorry Sj and Joan - hope you are both well, too.

Mary

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/24/2008 5:05 PM (GMT -7)   
Well I am too sleepy to answer everyones posts but have enjoyed reading them.
Although my rhuemy told me on tuesday when I saw her that the mtx definetly was not causing me to be drained and worn out all of the time she forgot to mention that mtx causes very severe anemia which is causing me to be exhauseted all the time. We are getting to be good friends-we chat nearly everyday-she called me as soon as she got my labs back on wedensday to tell me to start taking iron and remindme to feed the vampire she keeps in her closet in ten more days.
So now I am too tired to read or play computer games most of the time. I can work because I am busy and focusing but the minute I get home I start to doze off.
I hope everyone has a wonderful day
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/28/2008 5:33 PM (GMT -7)   

I hope everyone is doing well since there are no new posts? Sj, are you feeling better and not so puny? Jody? I know some of us are having difficult times right now.

Not much going on here, some nice weather this week, in the 70's and final's week is now here so just a lot of stress!! Other than that I finally get to take the Enbrel tonight before bed and hopefully stop taking these crazy pain pills :-)

Have a great week everyone..


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/28/2008 5:51 PM (GMT -7)   
Momto3 I hope the Enbril works for you.  Being in pain is miserable.
I feel better now that I have been taking iron for a week I actually feel better than I did at this point last week even though I took more mtx.
I hope everyone has been having too good a weekend to post and that you all have a wonderful week.
Sj 

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 4/29/2008 8:01 AM (GMT -7)   

Hi guys,

Yes, I'm still here, just having a crummy couple of days.  Perhaps my love affair with enbrel is over with already, or else I'm in a nasty flare...who knows.   Only thing I know for sure is that I would really LOVE a new pair of feet and ankles!!  Took my shot on Friday like a good girl, but I sure wouldn't have know it.....rough, rough weekend. last night just kind of wanted to throw in the towel, but today's another day, maybe it will get better???   Daycare kids are passing a stomach virus so perhaps that is affecting me as well.  I got the flu in my feet? lol. On top of it we've had a weather front move in, so it's coming at me from all angles.

Kids are kind of wound up, so think I will try and get them outside for a bit to play. The next few days are supposed to be pretty nice, not too hot. We need to take advantage of it...the heat will be coming soon enough.

Will check back with you all later...hugs to everybody!!

Jody


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/29/2008 10:16 AM (GMT -7)   

sad   sad   Everybody,

Sj, it is good to hear from you..do you take a multivitamin? since you haven't been feeling well maybe you have been in need of some for awhile? Although I thought if I took fish oil and such it would do away with the inflammation eyes Ha! no such luck, but I'm happy to hear that the iron is making an improvement :-) I have not had that problem on the MTX so far, I think it can make us a bit tired or maybe that is just the inflammation..it is so hard to tell what is what since we are usually just tired!

 

Jody sad Oh no...I felt that way on Saturday..could hardly turn over in bed, I was so stiff, but that was without Enbrel, and I still have not taken my shot..I will take it this afternoon before I go pick up the kiddos..everything was just so hectic and stressful last night all the way up until bedtime, I didn't get around to it..too bad they can't make it in pill form, it would make it a lot easier!! Can you call your doctor and tell her your pain level is just too high and you need something right now? That is what I did last time I was in, I just told my doctor point blank that my pain level was at a 9, and he was extremely concerned. There is no sense in being in pain, if it can be helped. If the Celebrex is not working, you need to call sweetie.

We are supposed to have weather coming in on Thursday with cold and snow..again sad I'm getting really fed up with this weather! Here it is almost May...MAY!! and we are going to have SNOW..it is ridiculous! OKay I'm done venting :-) I know we need the moisture, and I wish it would just rain without snow..

 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 4/29/2008 2:22 PM (GMT -7)   
hey everyone just a quick howdie to ya all! hope all is well i read posts later been tired but other than that doing well. hope to post more later but wanted to send a hug your way with a smile!

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/30/2008 6:47 AM (GMT -7)   
Hi Yally..
Glad to hear you are doing well..did you ever get your car repaired?
 
Jody, I hope you are feeling better today, thinking of you.
Sj, hope you are still doing well ..
 
No news to report, so Happy Hump Day  :-)

Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 4/30/2008 10:58 AM (GMT -7)   

We got home from the hospital last night.  He is so sick and so needy.  He is very scared too.  I will surely be interrupted in a minute or two.

He weighed 160 wirey pounds a mere month ago.  He now weighs 132.  The Home Health nurse just left.  She made me feel better and not so alone.  His pain meds make him unreasonable at times and he doesn't want me to sleep as he may need something.  It's been this way for two weeks.  I finally made him understand last night that if I don't sleep he has to go a nursing facility to recover because I won't be alive anymore. 

This has taken its toll on my health as well.  But I believe we are on the road and things will improve from here on out. 

Thank you for your loving support (yet again) for Crazy Boo.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/30/2008 2:43 PM (GMT -7)   
Boo, my thoughts and prayers are with you both. I hope things improve soon. You are right you need to take care of yourself in order to take care of others.
Mom, Jody I hope you both start feeling better soon.
Wouldn't you know it we go for a week with 80 degree tempetures and my AC not working-I live in a loft so even hotter in the apartment. Then just as soon as they get the AC replaced its 62 and I have the heater on.
On the other hand it seems that my mtx may actually be starting to help and I seem to be tolerating at least the low dose I am on (I haven't made it back up to 4 pills yet but I will try that again on Friday).
I hope everyone has a wonderful day.
Sj

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/30/2008 3:08 PM (GMT -7)   
oh dear lord Boo...don't ask for help, demand it!  nows the time for family to crawl outa' the woodworks.
 
oh my my...this moanin' thread should would make a truly lovely novel, should be published.
 
i've been doing quite some readin' O' the posts here this week.  hands are doing well, but tire easy.
 
sooooo...long story short: been barfing since february (at least 3 episodes/week). saw my JZ this afternoon and he thinks i "may" have a HOT GALLBLADDER.
now, i know i'm quite the catch but this just takes it too far.
 
anywhoo...yally, where do all the gallbladders go??????????
 
ultrasound tomorrow.  no food by mouth. on antibiotics.
 
i think it'll be fine.
keep ya posted.
luv
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation.
Meds: Remicade 600mg Q3weeks; 6MP; Prednisone; Entocort; Tigan; LidoDerm; Dilaudid; Oxycodone. 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/30/2008 3:46 PM (GMT -7)   
Erin, its so good to hear from you. I have missed you. Its good to hear that your hands are doing better but I wish you would have the chance to just feel well all over all at the same time.
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/30/2008 4:22 PM (GMT -7)   

Its good to see more posts!

Oh Boo, I'm happy to hear from you, did your husband have surgery? I'm so sorry he is ill, may I ask what is wrong? and is he going to recover okay? and soon? You do need to take care of yourself, although it can difficult when we are expected to be in the caregiver role so often.

Erin..I have never heard of a hot gallbladder, will you need to have it removed? A few months ago, I had to take prometrium and while on it, after I would eat, mine really bothered me..hopefully yours is nothing serious.

Sj, Glad to hear the MTX is working out so well!

Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 4/30/2008 7:04 PM (GMT -7)   

Moanin Everyone,

haven't posted lately, sorry.  Hope everyone is well.  I had my last epidural/steroid injection in the spine today and i've actually gotten some pain relief.  The elbows, fingers and shoulders are still painful but my Rheumy says I am still in active disease.  I've also applied for disability pension with the Canada pension Plan.  My doctor says that the chances of returning to work is very guarded, whatever that means.

The weather has been pretty good here other that today, we had some flurries. 

Stay well everyone, i need to catch up on some reading.

Raven


When you get to the end of your rope, tie a knot and hang on!!!!
 
Current Diagnosis-Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis. Stress!!!!!!  New diagnosis of Fibromyalgia 04/08
Current Meds-Methotrexate 24mg s/c weekly, Plaquenil 200 mg BID, Celebrex, Folic Acid daily, Cesamet1 mg @ bedtime, Oxycontin 20 mg 3 x day, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID, Calcium, Vitamin D

New Topic Locked Topic Printable Version
59 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Saturday, December 03, 2016 12:56 PM (GMT -7)
There are a total of 2,732,183 posts in 300,998 threads.
View Active Threads


Who's Online
This forum has 151161 registered members. Please welcome our newest member, Geef.
262 Guest(s), 11 Registered Member(s) are currently online.  Details
Wdan, countess18, Tick41, Starlight*, DennisinNY, ChickenArise, Traveler, bdavis, NotQuiteAntonio, julymorning, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer