newbie in waiting?

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nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 5/5/2008 4:47 PM (GMT -7)   
hello everyone. I have been lurking around..Saw a rheumy 2 weeks ago, still waiting for my follow up info for my diagnosis..short story. Im 43 and thought last year with wrist and hand pain it was carpel tunnel.  test negative..referral to rheumy sedrate 74 and rf was 104 and low on vit d. Sympyoms include achy joints of fingers,hand wrist,feet mostly. not much swelling..reynods symptoms and tired easliy.. I thought I was depressed until labs.  all my other labs are neg that rheumy did.ra?osteo?fibro? or sljens? is what the possibilitys....diane(nuttynurse25)

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/5/2008 5:41 PM (GMT -7)   
Obviously only a doc can give you a diagnosis but your labs and symptoms point toward one of the Autoimmune disorders such as RA.
I hope you get answers and even more importantly treatment soon.
Keep in mind that a diagnosis sometimes takes a long time but if your rhuemy starts treating your inflamation that is the important thing for now.
Nice to have you join us although we all wish that no one had to come here because the developed an illness.
Sj

nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 5/6/2008 7:37 AM (GMT -7)   
Thanks sj for your support...Sometimes I think animals get better treatment then humans...havivg to wait for dx,insurance companys not allowing lab work at an out network...because they allow me to go outof netwrk to see a rheumy but woudnot allow my labs to be done...so now a delay....diane

nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 5/16/2008 11:57 AM (GMT -7)   
Will I heard today from rheumy after much persistance..diagionosed with RA/inflammitory poly arthritis...starting on mtx.medrol pack,folic acid, and vit d and calcium for my vit d deficientcy...Will at least I know Im not crazy and getting help diane...

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/16/2008 12:10 PM (GMT -7)   
Sounds like a good start. Those are common drugs to start on with RA. Make sure you take the folic acid it is prescribed to counter the toxicity of Mtx. If you are interested in other peoples experiences with the Mtx we have a thread about starting on MTX. Just ignore my posts I was scared to death to take the stuff and whined a lot but I am on week six now feeling very good and glad I agreed to take it. The medrol should help you feel better quickly but if you find the symptoms come back as you get to the end of the pack tell your rhuemy he may be willing to give you pred for the six weeks or so the mtx needs to kick in.
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 5/16/2008 2:15 PM (GMT -7)   
Diane,
 
I"m glad you are getting results! Something with the Medrol..make sure you eat something before you take it, otherwise it can make your tummy hurt..a lot!! I found out the hard way!
 
I hope you feel better soon..and of course you're not crazy :-)

nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 5/20/2008 4:17 PM (GMT -7)   
Thanks for your support...Yes On my medrol pack I noticed relief the first two days , than my right hand that use constantly is really hurting....and im almost done with pack.Oh can you take motrin with mtx?    thanks diane

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/20/2008 6:04 PM (GMT -7)   
You should not take motrin with mtx unless you have your doctors approval. When studies have been done using NSAIDS with mtx they have caused increased toxicity-sometimes fatal. In RA mtx and NSAIDS are sometimes used together but your doctor must monitor blood counts and the key is to keep the level of NSAID constant. Type methotrexate and NSAID into google and you will find lots of information.
Sj

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 5/21/2008 4:38 PM (GMT -7)   
just popping in to finally say hi! sorry i have been mia.

i was told tylenol and mtx are ok ..... just no motrin or advil.

is that correct sj?

lata yally

nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 5/23/2008 7:41 AM (GMT -7)   
Thanks everybody for your support and advice...I have an appointment with my pcp next week and will ask her some more questions that I couldnt ask the rheumy over the phone.....I dont go back to him for 6-8 weeks....But anyways i received A letter from him with the exact wording diagonosis,,,,rheumotoid factor positve(ccp neg)inflammatory polyarthritiis....What exactly is this??????? confused

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 5/23/2008 6:06 PM (GMT -7)   
Hi,
Not sure, but that is the same diagnosis that I have? Let me know if you find out, I have always been curious!

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/23/2008 7:23 PM (GMT -7)   
Yally-yup, tylenol should be fine. The NSAIDS would be okay for someone who is established on both and followed by a doctor but if you aren't getting blood work done frequently or if not prescibed I would avoid the NSAIDS.
Sj
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