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kaymac
Regular Member


Date Joined Jun 2008
Total Posts : 40
   Posted 6/4/2008 3:41 PM (GMT -7)   
Can anyone relate with my symptoms and story please?
 
Have Fibro for 6 years...last year it flared it's ugly head and wouldn't relent. I work full time and I was going downhill so fast. I could barely make it thru a work day and I had no other life. Weekends were on the couch and you know the rest of the chronically ill story, so I began Lyrica in October for the FM (my first experience with a rheumy) and it helped WONDERFULLY! Muscle pain and fog cleared so I could do some routine things, like dishes, laundry, and sometimes even grocery shopping! My life was getting better!
 
I have had bouts of joint pain off and on the past few years. I now am diag with OA of the knees.
 
My new symtoms began last year as well with the finger and toe pain. Lots of burning and achiness and stiffness. Rheumy said maybe FM.
 
Lots of swelling in ankles and hands now. Hands stiff and fingers ache and harder to use them at time.
 
Ankle and foot pain. Arches falling??? Rheumy said possible.
 
Joint pain in elbows wrists and lower back.
 
Achilles tendonitis now....since April 1st and will not get better.
 
Upper back pain now times 2 weeks and it is severe. My Primary doc put me on a steroid pak till I can get in to see new rheumy. Severe burning, worse as days goes on since I sit at desk alot too. To the side of my spine and up toward my neck.
 
Bouts of burning in my elbows, forearms, back, but NO swelling or redness. Knees are horrible but I assume from OA...I cannot stand 1 minute without them locking up, so I try not to straighten them out.
 
The joint pain in my hands and fingers and toes are increasing this past week. The burning and back pain is increasing too till I am struggling to sit up or go into work. I've missed 2 days already with joint pain this past 2 weeks.
 
I am going to a new rheumy (due to bad exp with old one) and my new appt is not till Aug 23. All my doc can do is rx steroids and pain pills.
 
My xrays at last rheumy were normal in my hands only. That is all he xrayed.,
 
My other symptoms I'm experiencing are again new fatigue since my FM fatigue eased up. Muscle weakness, nasal sores, some psoraisis (that old rheumy suspected but not confirmed by dermatologist)on scalp, ear, and etc...
 
My blood work showed normal for RA and Lupus, but CRP was high and remained high for the past 5 months and all he said was inflammatory arthritis and we will keep watching he said. Now all this new pain and I'm so confused as to what I have.
 
I've read all the different types of arthitis and searched boards looking for anything that sounds like me.Can anyone relate??

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/4/2008 5:05 PM (GMT -7)   

When I got to the part of your story about the Achilles tendonitis, I have a good hunch what the doctor should be looking at. Please go to this link and click on the section titled about SPONDYLITISThen click on the section titled UNDIFFERENTIATED SPONDYLOARTHROPATHY [USpA]. After you read the intro about USpA, continue to the symptoms section. I think you will find a lot of similarity with what you are experiencing.

http://www.spondylitis.org/main.aspx?YYZ=NAV01



Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 

Post Edited (Ides) : 6/4/2008 6:08:46 PM (GMT-6)


kaymac
Regular Member


Date Joined Jun 2008
Total Posts : 40
   Posted 6/4/2008 6:19 PM (GMT -7)   
Wow! It is like my photo should be posted next to that article! I have all those symptoms! I haven't been diag with Iritis yet, but I happen to work for a OD and I've been diag with dry eye, and this past week, my dry eyes flared up to where I had to increase my drops. They have been burning just like my muscles and he mentioned it is just all part of the auto immune disease!
 
Thanks for pointing me that way. It helps to pinpoint some names even if we do not want to believe we have such diseases.
 
kamac

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/4/2008 8:06 PM (GMT -7)   
kaymac - You are wlecome. I certainly hope that you do not have such a problem. I know I had problems for years that the doctors wrote off as "age", osteoarthritis, over-doing it, etc. In fact, I have spondyloarthropathy that severely impacts my tendons and has caused lots and lots of permanent damage due to non-treatment. I now have a fantastic rheumatologist that is trying to preserve what function I have left. I hope that you can get a correct diagnosis and some help to get you back on your feet.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


kaymac
Regular Member


Date Joined Jun 2008
Total Posts : 40
   Posted 6/5/2008 7:27 PM (GMT -7)   
When you say your tendons have been damaged, what type of symptoms were you having during that undiag phase?

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/6/2008 5:04 PM (GMT -7)   
Have you ever had tendonitis, like tennis elbow or in the wrist from over doing something? If so, you understand the pain - that sharp zing when you move the affected part. Then the zings turn to a constant ache and burning type pain. My quadriceps, biceps, Achilles and some finger tendons are partially calcified. When the inflammation rages out of control for too long, the tendon calcifies. Therefore, anytime I move my knees, upper arm, stretch the calf too far, or use my fingers I get sharp pain. The rest of the time they ache.

For too many years the doctors just said that I had overused or injured my various parts and that is why I had tendonitis. Just recently I discovered that 5 years before I was diagnosed that there was evidence of this problem on a knee xray. The radiologist's report noted extensive calcification of two tendons and said it was suggestive of spondyloarthropathy. My doctor at the time told me that the xray was "normal."

Do not give up trying to get a name for what is going on with your body. While it stinks to have a health problem it is far better to know what it is. Good luck!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


kaymac
Regular Member


Date Joined Jun 2008
Total Posts : 40
   Posted 6/6/2008 6:27 PM (GMT -7)   

Hmmm...interesting. I currently have achilles tendonitis, diag first of April, out of the blue, had pain bad enough to leave work and go to the clinic. He said rest, Steroids, NSAIDS, heat, ice, etc....and no walking as exercise for 2 wks. I abided.....it remained

It is very difficult to walk. It has been over 2months and not better at all. As a matter of fact, it throbs so bad at times I cry. So this week I called my PCP to complain only after the SAME type of pain has spread in my back and fingers, limited on my elbows and one thigh bone. Knees always have, but now more so than ever. Back is so flared I am taking my pain meds and working.

I have FM, I know that pain. My body is on fire in certain spots, from joints to these muscle area, intense burning. 2 fingers on one hand, and one finger on the other.

I happened to read about the calcification thing today and that bothers me. I dont kno what to do since my heel especially isn't better and my next appt isn't till Aug. I'm a new pt there so I kno they won't take me in earlier. All I kno is I hurt all over and now I am so grouchy and irritable because it won't let up!

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