Thumb fusion for 21st july 2008

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tadfish
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 6/11/2008 5:23 AM (GMT -7)   
Hi there - I'm totally new here, so if this is in the wrong place or I've done something wrong, please let me know. I'm very nervous and woried and am desperately searching for some help/ reassurance.

I don't have RA (but do have A), but didn't know where else to put this. (I should mention I have hypermobility, which is the reason for the extensive damage according to my surgeon).

I got assaulted by a kid 4yrs ago in school and he damaged both wrists pretty badly (ligament snapped, nerve and vascular damage), as well as my neck and right shoulder. To the extent I couldn't hold a pen, lift anything up, write, etc. I re-taught myself to write again and spent years in physiotherapy.

I've now had 4 operations. All surgery has been concentrated on wrists - not a lot they can do for shoulder, but it seizes up, and fluctuates between losing a lot of feeling/ numb, to lots of pain. My 5th operation is due July 21st 2008. It's a thumb fusion and the reason I'm here

_History_
1st Operation 11/05
(RH). Removing bone in thumb, cutting up a tendon to make a ligament and weaving ligament through hand. Pin through 3 bones to hold everything together and give it time to attach.

2nd Operation 09/06
(LH) Severed a nerve in my wrist and other stuff I really can't remember anymore. Very similar to 1st op, but without the pin bit.

3rd Operation 04/07
(RH) Moved a nerve in my elbow as I've been losing feeling in my hand. went make into scar to try and desensitize it. Severed another nerve into wrist.

4th Operation 04/08
(LH) Removed 2 thumb bones. Severed nerve in forearm

_Planned_
5th Operation 07/08
(RH) Thumb Fusion.

6th Operation 03/09 tbc
(LH) Thumb Fusion. (hoping it wont be needed - will be assessed nearer the time)

7th Operation 07/09 tbc
(RH) Some operation going right into the middle of the wrist that I don't even want to think about yet, but is a definite apparently (he can't do that and the thumb fusion at the same time due to depth he has to go to into the wrist - if that makes sense?)


I thought I'd got my head around all of this, but speaking to my mum last night, she's messed everything up again (I know, I'm 31, I don't know why, but she's always doing this to me. My husband is also very concerned at what I'll lose with this op). I used to play the piano and am aware my mobility will be limited. I'm scared of losing functionality, or it going wrong, etc etc.

I'm so so sorry this is such a long post, but I don't know where else to turn, and to be honest, finding you guys here has been the light at the end of a tunnel for me. It's the middle bone my surgeon is looking at fusing. Can someone reassaure me? Has anyone gone through the same? (I'm aware different joints cn be fused) confused confused

Post Edited (tadfish) : 6/12/2008 12:35:20 PM (GMT-6)


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/11/2008 3:16 PM (GMT -7)   
hey there tadfish.. welcome to the forum... My goodness, you have been through so much! I've never had anything fused, yet.. but there are some people on here that have, and I'm sure they will be along shortly to tell their stories.. you hang in there, everything will be fine, we'll get you through this! take good care, and keep posting!

Duck
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tadfish
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 6/14/2008 4:05 PM (GMT -7)   
thanks :)

tadfish
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 3/16/2009 5:49 AM (GMT -7)   
Nobody seems to use this forum much! :(

Operation has been put back til July 2009, because I can't afford to be off school with my GCSE kids coming up to exams. Have been told that I can have a removable cast, which seems a bit weird, but I am hugely relieved that I don't have to wear a perm one in the height of summer! Fusion is on the right MCP joint. Also having a tendon release in the same hand.

Hope everyone is OK.

shell4
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/27/2009 9:20 PM (GMT -7)   
hello tadfish, iam sorry to hear about your hand problems,it sounds like a lot of operations! i have never had fusio n in my hand joints but i had my big toe (left foot) fused 4months ago.
I have severe Reumathoid Arthritis (RA) for the past 20 year., I am 47. My hands are pretty affected by RA, I have severe inflammations and I have lost all mobility in my letf thumb. Actually,middle joint has fused itself...I used to be a musician in my yearly years, but because i lost lots of mobility in my hands I had to change my career completely. At some point in time I was considering operation but then I decided not to go ahead.
Every 3month I have to see my reumathologist and I regularly have cortisone injections in different joints in my hands. They do help me with inflammation and pain.
4month ago i had operation on my left foot, this was because of pain and severe deformity of joints caused by RA. I had my big toe fused with 2 screws. I am stilll healing, I still have to use cruthes and I cannot fit into any footware as yet. I am still swollen and in pain. But I am trying to be positive.

By the way, I went back to work, full-time, 6 weeks after the operation, I was allowed partial weight bearing and was using crutches to move around.
Stay positive, and all the best with your recovery! many hugs. wink

Post Edited (shell4) : 3/27/2009 10:26:26 PM (GMT-6)


tadfish
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 7/7/2009 8:23 AM (GMT -7)   
Hey there,

Well my fusion was Thursday just gone (2nd), and apart from catching flu, I've been OK. Was expecting to wake up to a full arm cast, but not at all. I have my thumb and wrist in bandages, but that's it, I am terrified of knocking it! Stitches due to come out on the 13th July - 11days after op. I've been told I'll get an inflatable cast? Surgeon also told me I need the trapezoid in my wrist fusing but didn't have time to do it as he hadn't booked enough time in. Am gutted I'll have to go back again :( Once he's happy with the healing on the right, it's in for my left, and then hopefully no more surgery! It's like I can see a light at the end of the tunnel!!

http://www.handuniversity.com/topics.asp?Topic_id=29
http://www.handuniversity.com/topics.asp?Topic_id=45

tadfish
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 7/7/2009 8:24 AM (GMT -7)   
shell4, how're you doing now? :)

shell4
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 7/19/2009 10:23 PM (GMT -7)   
Hello tadfish,
I'am glad to know that at last you can see some light at the end of the tunnel! I hope your healing procees will be fast enough! I am doing fine at the moment, but could be better. It is now 8 month after the operation; my toe has fused 3/4 and that is how it is going to be; 1/4 of non-union is due to mis-aligned bones, so, my doctor didn't do a very good job... however, fusion doesn't bother me that much. I now walking a lot (a lot!) but I am still limping. the limping is due to the pain I have from my 4th little toe - I didn't have fusion there, only osteoctomy (re-alignment) of the joints, but, again, this toe was mis-aligned by the doctor. Now, when I walk it causing me grief.
It is still very difficult to find  a footware because my toes are still very painful and fusion doesn' bend. but at least I can walk and do some activities like going to gym.
So, things are not so bad..
Take care and keep posting!
shell4
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