I haven't posted in quite a while, as I've been relatively well since I began Remicade infusions about a year ago ... but in the past few months, my Crohns symptoms seemed to be creeping back, not terribly, but noticably. My GI decided to increase my dosage from 5mg to 10 mg, every 6 weeks. I also take Imuran 100 mg daily.
I had first 10mg dose of Remi. about 10 days ago. about 48 hours afterward, I began to have allergy or cold symptoms, soon after that I completely lost my voice, which is still gone (7 days now), and the glands in my neck swelled up and became extremely sore to touch. I almost feel asthmatic, like when I breathe in deeply, it's congested, and dificult to get enough air. Anyway, this could just be a summer cold, or allergies to one of the many things in bloom here in Virginia, but it's very uncommon for me, and I'm wondering if there might be a link to my recent Remicade infusion, especially with regards to the swollen and painful glands. That has me worried.
Has anyone else had an experience like this, or any information to share before I head to the doc? I need to be well, chasing around my 2 year old twins! I'm really hoping my Remicade isn't turning on me ...
symptoms since college days thought to be IBS, now 34 - finally dxd with CD 3 years ago after colonscopy and SBFT. Have one great husband and 6 great kids, including two sets of boy/girl fraternal twins!