increased pain after starting medications

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/5/2008 6:16 PM (GMT -7)   
I have been diagnosed with RA for 7 months.  At that time I had an R factor of 580, slight swelling, pain and no x-ray results. I started Plaquanil, and it took a great deal of the pain away. but never all.  When I went bact for a check-up, I had no real pain to speak of, (just an 'echo' of pain) and little inflamation.  Over the past 2 weeks the swelling and pain has returned.  The worst are the joins joining the fingers to the hands.  It started as the 1st 2 fingers, then the 3rd and 4th got worse.  Now everything hurts, hands, elbows, knees, ankles, hips, back, sholders- expessially my hands and knees.  I can't grip a pencil, or walk without pain.
even if the 400mg of plaquanil started out working, is it possible that it could 'just stop' working?  Did I just get worse?  Should I call into my rhumy even though I don't have an appointment for 4 more weeks?  Is this something I should just expect to happen sometimes? do I go to my regular doc between rhumey appointments?  What do I do?
Christina
 
When you cannot stand, on whom do you lean?


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/5/2008 6:38 PM (GMT -7)   
Do call your rhuemy. This disease "flares"-you will have periods where you just get worse. However if your current medicatio is allowing you to flare that much you may need to add something. I love plaquanil it made my fatigue and morning stiffness go away-however, it was not enough by itself to get the inflamation undercontrol and get me off prednisone.
When you call your rhuemy he/she may suggest pred until your appointment or maybe see you sooner. You will probably need to add another Disease modifier such as MTX or a biologic such as Enbrel-though usually mtx comes next because they like you to be on mtx and Enbrel at the same time.
However, that is only what my doc is likely to do each one is a little different. I would call the doc and I would not expect to be left with that much pain and disability.
If you can't get to your rhuemy and he/she does not change your meds over the phone-concider going to you regular doc and asking for steroids to get you through to your rhuemy appointment-but, I personally would talk to my rhuemy first the other would only be if the rhuemy could not get me in early.
Sj

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/5/2008 11:43 PM (GMT -7)   
Because I am also bipolar I can't take steroid-type meds.  My psych says it will drive me into a manic phase.  I have to 'OK' all of my meds through both docs since one might affect the other.
I'm up late b/c my toes and fingers hurt.  I can't get it to go away.  This is through OTC NSAID pain meds and Ambien.  800mg MO, 1000mg TY, 220mg Aleve 2 hours ago. Is there anything else OTC that works?
I will have to wait till monday to call my rheumy.  I hope she can/will help.
Christina
 
When you cannot stand, on whom do you lean?


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/6/2008 8:03 AM (GMT -7)   
Unfortanately the other meds your rhuemy will be able to give you will take some time to help. Some people swear by warm parafin wax to help fingers and toes. I hope you are able to get some relief soon.

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/8/2008 8:33 PM (GMT -7)   

When I called my rheumy I found that she is on maternity leave- and doesn't have a replacement.  The office is directing all PT's to their regular Doc.  I called the Doc's office, and tried to explain to the receptionist that I had RA and that I am having A LOT of joint pain and that I needed to see the regular Doc b/c of reason above.  She scheduled me for today, after my summer school class.  When I went in they were not expecting me to be in the condition of pain that I was in.  He assumed that I just suspected that I might have RA.  I gave him my story- includuding that the pain is becoming unbearable.   If my pain tolerance is high, then I can get through- but through the day, or with stress, the tolerance goes down and by the end of the night I am weeping.  Today I as compairing joint pain to labor pains.  At least with labor pain it was localized in my abdoman and back.  I get twinges that feel like burning needles stuck through by joints and run pain up my arm/leg to the trunk which stiffens and makes my back and head hurt.  My body is in pain and i've done everything I'm supposed to do to make it go away and it won't.

The doc is gooing to hook me up with a diffrent Rheumy to see where the s#&*t hit the fan.  I have to wait for their office to contact her office and schedule me an appointment, The the 1st doc will call me to let me know when it is, and was that aright for me.

 I cried in the doctor's office today.  I apologised for being enotional about.  He didn;t care if I was.  I am at the point that small and smaller thing eill make my tolerance just go away and the only thing that consumes me for that moment is how bad my body feels.  He got the idea that life simlply could not continue for me in the level of pain that I was in daily.

He put me onto prednizone 2 20mg pills 2X daily (short term, till I get into see the other rheumy he will find for me.)This is the med that my PSY is worried about b/c it;s use could through me into a manic phase.

He put me on Darvercet 1-2 taba every 8 hours, if needed.  This should control the pain I was in.  I have to say that I was in a lot of poin this afternoon coming from th doctors office.  I cried walking in the doors- and scaired my kids half to death.  It felt like burnung needles being incerted into the joint.

.................................falling asleep.................................

 

The sleeping ones are taking control, I will updater

 

 
Christina
 
When you cannot stand, on whom do you lean?


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/9/2008 4:31 AM (GMT -7)   

Last night the last thing I remember was signing off here.  I don't remember shutting down.  My husband says he put aspercream on my back hands and feet, I don't remember it at all.  I must have gotten to bed, because I woke up there.  It's a strange feeling to not remember a large chunk of the night.

Today I am better than I was yesterday.  ANYTHING is better than I was yesterday.  At it's worst yesterday I would compare the pain to labor, but all over my body.  Like burning needles going through my joints- and not being able to control it.

Once I got the Darvacet into my system I felt a lot better, but still felt the 'twinges' in my hands like I would if I was simply having a 'good day'.  My knees also felt 'weak' like they were in alot of pain- but I couldn't feel it. The Darvacet only worked about 6 hours for me- and the bottle says to take it every 8.

The storms have passed over this area.  It has been stormy and crazy humid for 3 days now.  If that had anything to do with it I hope it will be better now.  I was also thinking that the execercise that I did last Thursday could have triggered it.  I really had a good workout on the eliptical machine (a low-impact workout) and really worked my thigh muscles.  Could the rebuilding process after the workout have triggered the flair?  It started the day after and got worse after the 3rd day (2 days before the worst of the storms)

I will keep you updated on how I do today- maybe the trial is over this time.


Christina
 
When you cannot stand, on whom do you lean?


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/9/2008 9:33 AM (GMT -7)   

The trial is not over.

I went to class and before I even left I was starting to have hand and knee pain- but not terrible.  Mostly stiffness, like I had no lube in my hinges.  As I got going the stiffness and twinges turned to pain and got worse.  I took a 2nd Darvisat (sp?) at 7:30 and went to class. ( Yes I drove, but I felt fine. ) 

I got a writer for class, so I didn't need to write anything other than the homework quiz, and that was just 2 questions.  I CAN grip a pencil, but it gets stiff and painfull quickly.  It hurts to press.  As the class went on it got worse and I took 800mg of MO.  After that I got loopy.  I couldn't do simple math, although I could understand complicated system concepts.  I just kept my mouth shut.

I called my DR to find out if there was anything that I could take for the breakthrough pain that I was having.  When they called me back they said that I could take EITHER Aleve OR 800mg MO. (I'm taking 1-2 325mg tablets of Darvacet)  They also decided to lower the prednisone from 40mg 2X daily to 10mg 2X daily per the rheumy that they referred me to.

Remember I said that when I called my rheumy's office saying that I was in pain and wanted to come in they told me she was not in and they were referring everyone to their primary care doc?  When the primary care found a referral rheumy to send me to it was a replacement rheumy in the office that I go to!  Obviously they simply did not feel that I should see the stand in.  I undestand if they are screening calls for limited hours and sending those who don't get in to PCP's, but if a PT is calling complaining of a lot of pain I would think that I could get in.

I'm mad.  I'm mad at the pain more than anything, but I am also annoyed that I had through all these steps to get treatment.

anyway, thanks for letting me ramble on what is happening to me- it helps for me to get it out and lets me keep a log of what is going on.  When I go the other rheumy I will print it out and bring it with me.  It also helps me to know that other people are reading it, like I am talking to a friend.

Is this trial similar to what you have been through?  Is this a basic flair?  What can I do to make it better next time?


Christina
 
When you cannot stand, on whom do you lean?


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/9/2008 1:59 PM (GMT -7)   
Christina,
I am so sorry you are still having to go through this. I would suggest that as a general rule you should avoid "working out" swollen joints. There are some carefully controlled stretching exersizes that are okay when your joints are still hot but no strenuous work for hot or swollen joints it just causes pain. At your new dose of prednisone it will take several days to a couple of weeks for you to feel a whole lot better but it should come. One of the good/bad parts of prednisone is you FEEL better before you ARE better so you might start to do something thinking your feeling okay and partway in you crash with no energy left so please be careful with yourself.
Do continue to use a writer for your classes when ever you can. Pamper your hands. Rest when ever you can I understand with classes and kids etc there are not a lot of opertunities but a two hour nap sometimes will relieve my pain.
I feel so bad for you. Last October I had a horrible flare I was sicker and in more pain than I had been in 7 years-I had not felt that bad since I was first diagnosed and treated. I too had to jump through hoops to get initial treatment but once I got my rhuemy appointment (I did not have a rhuemy until then since I had been doing so well) everything started getting better and now two drugs later (plaq and mtx) I feel great. I hope this does get resolved for you so you go back to feeling well.
Sj

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/10/2008 6:18 AM (GMT -7)   
eyes  Yesterday was one of the worst days. Even with the darvacet (sp?) Prednisone, and 800mg MO I was still in a lot of pain.  I wouldn't want to know what my day would be like if I didn't have the pain meds.  Last night I went to church, they found me a plush chair to sit in, but by the end of the night felt worse then ever.  The irritation, burning, stabbing pain in every joint was unbearable.  It was even in my neak and jaw that last night.
 
Today I decided to skip class.  I'm using my voice recognition program to check in, I just want someone to know how I feel.  My husband is caring, and does anything he can, but I can tell that he is frustrated that he can't affect the pain.  I wonder if he Feels I am being a big baby?  I'm not. He says that some people just have lower pain tolerance than others do.  He doesn't understand- I have a high pain tolerance, expecially after living with this condition for awhile.  Every day hurts somewhere, some days more than others.  I still go about my life, survive each day, but when the pain levels reach this high, and stay there this long,anyone's tolerance would be overrun.
 
I wonder about the type of pain that I have been having. confused   In the morning, right when I wake up, it feels more like stiffness than pain until I move.  But after a few minutes of being awake it's like my joints "check in" with first a twinge of discomfort, then true sharp pain.  The pain tolerance is higher in the AM, simply because I have had all night in blissfull (medicated) sleep, but as the day wears on, I can take less and less of it- and it doesn't lessen all day.
If I move, it hurts, and increases in pain the more I move.  If I say still, it's still painful, but I go all stiff, so if I flinch it shoots pain though my body, and when I have to move to release the built up pressure of stiffness, It hurst the most.
 
I have noticed that my veins hurt in my hands and forarms.  They throb, expessially when I have increased pain in my fingers and wrists.  It brings the pain all the way through my elbow.  I have not heard this as a condition associated with RA, do other people get this too?  They are not red or warm to the touch, but when they hurt they seem huge, puffed put, and bright blue.  ( I have VERY fair skin)
 
Anyway, thanks for letting me rant, the house is waking here, so I need to get to work, such as I can.

Christina
 
When you cannot stand, on whom do you lean?

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 5:22 AM (GMT -7)
There are a total of 2,733,418 posts in 301,117 threads.
View Active Threads


Who's Online
This forum has 151256 registered members. Please welcome our newest member, Monkeyjungle.
230 Guest(s), 4 Registered Member(s) are currently online.  Details
Bololidat, Tagier, tickbite666, Tudpock18


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer