When I called my rheumy I found that she is on maternity leave- and doesn't have a replacement. The office is directing all PT's to their regular Doc. I called the Doc's office, and tried to explain to the receptionist that I had RA and that I am having A LOT of joint pain and that I needed to see the regular Doc b/c of reason above. She scheduled me for today, after my summer school class. When I went in they were not expecting me to be in the condition of pain that I was in. He assumed that I just suspected that I might have RA. I gave him my story- includuding that the pain is becoming unbearable. If my pain tolerance is high, then I can get through- but through the day, or with stress, the tolerance goes down and by the end of the night I am weeping. Today I as compairing joint pain to labor pains. At least with labor pain it was localized in my abdoman and back. I get twinges that feel like burning needles stuck through by joints and run pain up my arm/leg to the trunk which stiffens and makes my back and head hurt. My body is in pain and i've done everything I'm supposed to do to make it go away and it won't.
The doc is gooing to hook me up with a diffrent Rheumy to see where the s#&*t hit the fan. I have to wait for their office to contact her office and schedule me an appointment, The the 1st doc will call me to let me know when it is, and was that aright for me.
I cried in the doctor's office today. I apologised for being enotional about. He didn;t care if I was. I am at the point that small and smaller thing eill make my tolerance just go away and the only thing that consumes me for that moment is how bad my body feels. He got the idea that life simlply could not continue for me in the level of pain that I was in daily.
He put me onto prednizone 2 20mg pills 2X daily (short term, till I get into see the other rheumy he will find for me.)This is the med that my PSY is worried about b/c it;s use could through me into a manic phase.
He put me on Darvercet 1-2 taba every 8 hours, if needed. This should control the pain I was in. I have to say that I was in a lot of poin this afternoon coming from th doctors office. I cried walking in the doors- and scaired my kids half to death. It felt like burnung needles being incerted into the joint.
The sleeping ones are taking control, I will updater
Last night the last thing I remember was signing off here. I don't remember shutting down. My husband says he put aspercream on my back hands and feet, I don't remember it at all. I must have gotten to bed, because I woke up there. It's a strange feeling to not remember a large chunk of the night.
Today I am better than I was yesterday. ANYTHING is better than I was yesterday. At it's worst yesterday I would compare the pain to labor, but all over my body. Like burning needles going through my joints- and not being able to control it.
Once I got the Darvacet into my system I felt a lot better, but still felt the 'twinges' in my hands like I would if I was simply having a 'good day'. My knees also felt 'weak' like they were in alot of pain- but I couldn't feel it. The Darvacet only worked about 6 hours for me- and the bottle says to take it every 8.
The storms have passed over this area. It has been stormy and crazy humid for 3 days now. If that had anything to do with it I hope it will be better now. I was also thinking that the execercise that I did last Thursday could have triggered it. I really had a good workout on the eliptical machine (a low-impact workout) and really worked my thigh muscles. Could the rebuilding process after the workout have triggered the flair? It started the day after and got worse after the 3rd day (2 days before the worst of the storms)
I will keep you updated on how I do today- maybe the trial is over this time.
The trial is not over.
I went to class and before I even left I was starting to have hand and knee pain- but not terrible. Mostly stiffness, like I had no lube in my hinges. As I got going the stiffness and twinges turned to pain and got worse. I took a 2nd Darvisat (sp?) at 7:30 and went to class. ( Yes I drove, but I felt fine. )
I got a writer for class, so I didn't need to write anything other than the homework quiz, and that was just 2 questions. I CAN grip a pencil, but it gets stiff and painfull quickly. It hurts to press. As the class went on it got worse and I took 800mg of MO. After that I got loopy. I couldn't do simple math, although I could understand complicated system concepts. I just kept my mouth shut.
I called my DR to find out if there was anything that I could take for the breakthrough pain that I was having. When they called me back they said that I could take EITHER Aleve OR 800mg MO. (I'm taking 1-2 325mg tablets of Darvacet) They also decided to lower the prednisone from 40mg 2X daily to 10mg 2X daily per the rheumy that they referred me to.
Remember I said that when I called my rheumy's office saying that I was in pain and wanted to come in they told me she was not in and they were referring everyone to their primary care doc? When the primary care found a referral rheumy to send me to it was a replacement rheumy in the office that I go to! Obviously they simply did not feel that I should see the stand in. I undestand if they are screening calls for limited hours and sending those who don't get in to PCP's, but if a PT is calling complaining of a lot of pain I would think that I could get in.
I'm mad. I'm mad at the pain more than anything, but I am also annoyed that I had through all these steps to get treatment.
anyway, thanks for letting me ramble on what is happening to me- it helps for me to get it out and lets me keep a log of what is going on. When I go the other rheumy I will print it out and bring it with me. It also helps me to know that other people are reading it, like I am talking to a friend.
Is this trial similar to what you have been through? Is this a basic flair? What can I do to make it better next time?