What I mean is that I don't take prednisone every day I take it every two or three days my blood pressure was a bit high when I had my last infussion but since then my pressure is fine. I was supposed to see my Rheumy on 6/3/08 but cancelled because I can't afford the visits and pay for the infussion and my other meds and I have not re-sceduled I have never been explained anything regarding prednisone I must be doing something wrong. I also have really bad acid reflux and I had a full hysterectomy last year. I had carpel tunnel surgery 3 years ago both wrists. I'm 36 years old but I feel 80. I feel like a walking time bomb. PR Glo
I really know were you are coming from. I have RA and can't seem to get it under control. I am on Methotrexate every Monday, Remicade, Prednisone 30mg every day, Ibuprofen 800mg 3 times a day and continue to feel the pain and fatigue. I'm 39 and have 2 boys ages 2 and 4. I can bearly work, play with the kids and keep up the house. My husband really doesn't understand and my friends are sympathetic but just don't get it. Any ideas on what more I can do.
One thing I did find was that buying a pair of Crocs was the best thing I have done for myself in a loooog time. They are so comfortable. I have bad foot pain from the arthritis and heel spurs and since buying them I've been mostly foot pain free. They aren't very stylish but if you really want relief I'd try a pair.
The predinisone really needs to be consistant and then weaned off. Gaining weight is an unfortunate side effect but if may help if you use it consistantly and then wean off slowly.
My blood pressure also went up as a result of the meds and now I'm on Inderal also. It is helping.
Remicade has a financial assistance program. You can look it up on line. They really cover a majority of the cost. Check it out and hopefully you get some relief.