Had to stop MTX....lung problems

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IsabellesMommy
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted 7/8/2008 7:24 AM (GMT -7)   
Any one else had to stop MTX due to decreased function of your lungs?  I noticed being short of breath and about a month earlier had bronchitis but went to get checked out anyway.  No sign of bronchitis so they did a Pulmonary Function Test.  It showed decreased lung function and I have to stop the MTX and get retested in 6 months.  I am starting to hurt again, just taking Aleve and stuff right now.  It has been 2 1/2 weeks since my last dose of MTX.  Has anyone else been through this?  What comes next?  Will my lungs get better?  They said I had to wait and see....but, I am impatient!  Does the breathlessness get better?  Thanks!

jackcc
Regular Member


Date Joined May 2006
Total Posts : 80
   Posted 7/8/2008 12:50 PM (GMT -7)   
Yes it happened to me. I thought I was going to die. Had all kinds of serious lung tests including a lung biopsy. Its called dyspnoia. We finally decided it was the methotrexate. I stopped the methotrexate and didn't go back to the rheumatologist. My pulmonologist pulled me through it and I'm fine. You should get over this. But you will have to wait and see. I hope it gets better soon. SOB is a side effect of methotrexate.

Post Edited (jackcc) : 7/8/2008 1:55:26 PM (GMT-6)


JoolsRA
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/8/2008 2:33 PM (GMT -7)   
What do you do now instead of Methotrexate?  How do you manage the pain.  I'm a recently diagnosed RA patient and I'm having a hard time keeping up with all of the meds and side effects.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/8/2008 3:45 PM (GMT -7)   
Oh WOW!! I'm sorry to hear this happening to you!! I hope everything turns out ok for you!!
I hope you don't mind me asking how long you have been on it?
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/8/2008 4:26 PM (GMT -7)   
LBJ-the methotrexate lung problems are rare and can occur at any point during therapy from immediately after the first dose to after several years of treatment-they are generally concidered to be non dose dependent. They really are rare so I don't even worry about it but if you develop shortness of breath or pnemonia or something do tell the doc about you mtx and do tell your rhuemy about the problem.
sj

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/8/2008 4:43 PM (GMT -7)   
sjkly said...
LBJ-the methotrexate lung problems are rare and can occur at any point during therapy from immediately after the first dose to after several years of treatment-they are generally concidered to be non dose dependent. They really are rare so I don't even worry about it but if you develop shortness of breath or pnemonia or something do tell the doc about you mtx and do tell your rhuemy about the problem.
sj
Thank you Sj!  Could you tell I was freaking a little????  LOL  
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/9/2008 1:41 PM (GMT -7)   
Yeah, we all freak a little when we hear something like that. I figure its my job to worry about the day to day side effects and changes that I notice as they occur but things like possible lung problems, liver problems and stuff like that-that's my rhuemys job. She is good at it and has seen everything. So I don't worry about it other than to know to look out for possible trouble.
Sj

IsabellesMommy
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted 7/9/2008 6:18 PM (GMT -7)   
I have (had) been on MTX for around 9 months.  I am on nothing right now except Aleve and I am so stiff I can't stand it.  I have an appt tomorrow (Thursday) with the Rheumy.  We will see what he does now.  I had bronchitis about a month before all this and maybe with the MTX slowing the developement of certain cells...well, maybe the 2 just didn't mix.  I don't know.  I will ask tomorrow.  Thanks for the support.  My hubby doesn't understand so much, doesn't realize that there is so much pain.  I don't swell all the time with this, mostly the stiffness and pain part of it.  This sucks.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/9/2008 7:32 PM (GMT -7)   
Let us know what your Rheumy says!! Good Luck!!

My throat started feeling a little sore today and I kept thinking about your situation. I'm hoping this is nothing but going to keep
an eye on it. I'm going to be so upset if I can't take this MTX. :-(
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


pr glo
Regular Member


Date Joined May 2008
Total Posts : 78
   Posted 7/10/2008 8:29 AM (GMT -7)   
I am so sorry to hear Methotrexate affected your lungs I hope you feel better soon. But thanks for posting this because I too take Methotrexate and I have been feeling short of breath and lots of pain in my ribs where my lungs are almost like bronchitis where I even have some flem coming up I need to have that checked out ASAP. Thanks for the information it is very helpful.  Keep your head up We will someday feel better God will take care of us. PR Glo 
 

IsabellesMommy
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted 7/10/2008 10:21 AM (GMT -7)   
OK, I am back from the Dr and he said to stay off the MTX. He said it is a rare effect, but it does happen. I told him that if it is going to happen, it will happen to me! He is putting me on ARAVA. I guess it works kind of the same way, but the main side effect to watch for is severe diarrhea. He said to take 5 pills a day for the first 3 days and then one a day every day after that. He said it will help it build up in my system. Here we go again! He also did a chest X-Ray and I will let you guys know if there are any different results. I am going to put out a post asking people if they have been on Arava, too. Thanks!

IsabellesMommy
Regular Member


Date Joined Feb 2008
Total Posts : 24
   Posted 7/14/2008 1:00 PM (GMT -7)   
The chest X-ray came back and there is some density that they need to check out more closely. They are doing a CAT scan on me tomorrow afternoon. Now I am really freaking out. I am only 33. I don't smoke, but I was raised with a smoker. I am just freaking. BAD. I will let you know as soon as I know something. Any ideas or stories, let me know. Thanks!

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/14/2008 3:34 PM (GMT -7)   

Hi there,

I know this sounds easier than it is....but try to relax.  I went throught EXACTLY what you are going through a few months ago, and I know how scared you are!  I went in for my annual check-up in March, had a routine chest x-ray done, and the nurse called and said there were some "cloudy" areas that needed a closer look.  Well, I had a cat scan, and it showed two small nodules in my lungs.  Too small to be concerned about, and I have to have the scan repeated in 6 months to keep an eye on things.  I have since learned that RA can cause nodules all over our bodies, lungs included. I'm a bit older than you, and I was a smoker for many years, so this absolutely put me into nervous fits, but the doctors have assured me that there is nothing to worry about....so I'm trying really hard not to.

Hang in there, and let us now how you do, you'll be in my prayers!

Jody

P.S.  Just wanted to add something.....since you've had bronchitis for a bit, it's entirely possible that the areas they are seeing could have something to do with that, perhaps some scar tissue, etc.... try not to worry..Hugs!

Post Edited (babyplace) : 7/14/2008 9:26:07 PM (GMT-6)

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