Got to church and really got the pain surge. I asked a friend to drive me and the girls home after church, then took a darvacet. After an hour I took another one. It makes me loopy, so I don't want to drive on it.
I have found that if I ice my knees, then use a heat pack, then ice again my knees start to feel a bit better. It doesn't last long, but it is relief for a while. It helps my hands as well.
I really thought that I would be better today. Maybe I juat pressed too hard this morning getting the girls ready for church. I was ready to be better.
Hey Folks, Just been busy and sorry to be MIA for so long. We will probably be going back in for surgery soon (stoma is prolapsed). Hubby ready to get this over with. Needs to gain more weight but may not be able to do so until he's put back together. Anyway, I may disappear again for a while. Will probably know tomorrow.
I know I will be severely admonished for this but here goes.......I haven't taken time for myself. Need to see rheumy and get meds adjusted or changed. What I'm on now (Lodine) isn't doing it. Next step is Methotrexate. OK, OK, I'm going to do it. Ahhhhh, I feel better just getting that off my chest and coming clean.
This is the hardest week of my entire year as the Youth Finals Rodeo is in town. We usually work about 16 hour days during the rodeo but this year I released my position of picking up clothes at the rodeo grounds. Told them to contact one of the other cleaners in town. Not up to doing this without hubby. Oh well, it's only money and my health is more important. Besides, we may be in the hospital. This is truly a relief for me.
Have a good week and I'll be in touch as soon as I can.
Here I am. It's the end of the day, and I haven't had any pain meds but a bit of 800 MO at the start of the day. I've got some "twinges" in my fingers- particularly after driving, and in my knee, also after driving- but otherwise I am simply "aware" of my joints. I LOVE PREDNISONE. It's my new best friend.
I go to the new rheumy tomorrow, and I have printed out all of my posts through this flair, so I know what was going on, and can show him in my own words at that time. I don't want to forget how bad it was when I start to feel better.
I can still feel the "gravel" in my joints as I move them, but the pain is well within manageable levels. It's just stiff. The only thing I worry about now is my mood level. The longer I take the prednisone, the more distracted I feel, the more jittery I am, I have racing thoughts, and can't seem to tell myself no to things like cake, ice cream or chocolate. I think this is a manic- since I am Bipolar also. It's hard to tell (I am usually depressed, rather than high).
I will call my PSY doc about it right after the rheumy appt in the AM.
Keep U updated!
Happy Hump Day!!
How is everyone?? Still wet and rainy here in the Sunshine(?) State..think we are beginning to mold. Mom got her clearance from the surgeon yesterday so we get to make our trip Friday yeah! But, the flip side of that is that now I have to pack for that trip...yikes. I hate packing! Never can decide what to take, what to leave, always end up with twice as I could ever use, sitting on the suitcase to close it, etc lol. Traveling with enbrel, is a whole different story, too, not sure how to go about that, so have to call the airlines today, I guess.Will be great to spend time with my sister, though, and I'm hoping the weather in Michigan is a bit cooler than here, that would be most appreciated! So, tomorrow is the last day with the little ones until the 30th...I do need the break. Hubby and I are planning to go out to dinner tomorrow night, it's our anniversary...26 years( can't believe it!), then we leave early Friday am. My sister doesn't have a computer, so probably won't be able to check in with all of you until then, so sending enough hugs to all of you to last!! I will be keeping you all close in thoughts and prayers, though, hoping that you all stay well. How'd the cakes go, mom? That sounds like so much fun...always wish I could do that...but I'd probably lick all the icing before it got to the cake heehee. How are the boys doing? That's great about the weights, too. Don't worry, before long you'll be bench pressing your son! lol. Isn't it a great feeling to do that though, really? My boys tease me alot about weight lifting, but then they're like "hey mom, would you come move this?" Hubby just tells them to "watch out, she'll take you" Congrats again on the poetry, Joan, that is so neat, and have fun at that gala! I'll bet those men wouldn't know how to handle you! Have a good trip sj, it's great you're up to the drive , sure says how far you've come, doesn't it? Yally....don't know if I'll talk to you again before I go, but only a text away, my dear,. I'll have my cell with me...just don't know how good the signal will be at my sister's place. Kind of out in the country, last time service was sort of spotty.
Gotta run, kids are waking...once they leave I have to try and tackle the dreaded suitcase....wish me luck!
Happy Anniversary, Jody! And I hope you have a great time on your trip.
Oh thank you so much Boo!! You know you and hubby will be in my prayers next week...I sure wish there was some way you could let me know how things go....hope you have a wonderful wonderful time this weekend.
Love and hugs<
Good moanin' - or afternoon really
Yesterday I went to the rheumy. It was the new one, and he was really, really good. Enough that I think I will switch practices to go with him when my other one returns. I hope that doesn't make trouble.
He says that my previous med level was rather light, but that was because I was responding so well to the initial treatment, there was no reason to be aggressive. Now that this flair had happened, and I am still swollen and sore, it is time to treat the RA aggressively.
We talked about the changes in how I felt, and what I could expect in the way of recovery. He stated that the goal is not going to be absence of pain (although some lucky souls do get complete recovery like that), but that the pain is not constant and is not consuming. It needs to be manageable.
He explained that the pain meds were not to eliminate the pain - for inflammation pain it would knock you out before taking all of the pain. The goal was actually to 'curb' the pain and assist the pain tolerance level till the prednisone got a chance to work. it explains a lot, and changes what I thought the darvicat was doing. he wrote me for a lot more darvicat and said that I could take it and MO for pain regularly. He also left me on the prednisone for another 2 months, but is weaning me down from 20 mg a day to 10 mg a day. He also added Methotrexate to the list of medications, and I take my first dose tonight.
I was told that I did not eat/drink/do anything to cause the flair, nor could I have eaten/drank/done anything to prevent it. He said that my weight would not effect the RA, although the inflammation is not good for my body, and any side effects may be easier to handle in a healthy body. I should strive to eat/be healthy, and if that causes me to loose weight- so be it. He also said that I did not have to get on the cursed elliptical machine again. Until I fell a lot better I should be doing most, if not all, of my excercise in the pool. This is good news because I really enjoy the water arobics class that I am in.
The hair thinning of the mex had me worried- I used to have fine, but very full hair. Lately I have had alot falling out. All day long, sitting on my pillow in the morning, in my hand or brush when I run it through my hair. I get handfuls when I wash my hair. I can see where my hair is thinning- I don't want to loose much more.
Also, for the GI and mouth side effects I have started today some of the "healthy yougart". I plan to eat one of the yo+ yougarts every day to promote a healthy bacteria in the GI tract that will aggravate the GI mucus less. I don't knkow what to do about my mouth. I have a broken tooth, so it rubs on the inside of my lip, causing a scratch there sometimes. maybe I can convince the insurance company now that it is a health issue for me to fix it now.
Hey All! Boy, what is it, once a month I finally get online? Things are busy, to say the least.
Welcome Christina (yeah, a little late), it sounds like that new doctor you saw is a good one. I think you should continue to see him. someone mentioned to make sure you drink lots of water and get a good amount of folic acid in daily, I will support that comment - both are VERY important. I lost a lot of hair on mthx as well, but though I felt I must be going bald because my hair was always EVERYWHERE, I didn't get more than some thinning - and that scare got me to take really good care of my hair! Also, a good B Complex supplement daily is a good idea as well (this also contians folic acid).
Who is getting published for poetry? I forgot...congrats! Boo, good luck with hubby's surgery. I read a 17-year old Italian boy for someone else??? OY!! Good luck!!!!! 17-year old boys from ANYWHERE, geesh, that's got to be a handful!
Okay, my fingers have had enough I haven't said 'hi' to you all - I hope you know I'm thinking of all of you constantly and praying everyone's health and joints are holding up w/o too much hassle. ***