Good Moanin' HealingWell V62

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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 7/12/2008 12:02 PM (GMT -7)   
yeah yeah yeah Previous thread can be reached here.. please continue moanin' yeah yeah yeah


Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


Joan M
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Date Joined Jan 2006
Total Posts : 1973
   Posted 7/13/2008 4:16 AM (GMT -7)   
christina...yes we all know these helpful people who do not understand. i went though it with allergies and asthma. i guess they mean well but sometimes i think they are just dense. wait till something happens to them and that might wake them up. listen to helpful doctors and don't bother with all your family and friends sometimes "silly" ideas.

i feel i am on the other side of a river which i had to cross. it is the river of chronic illness but things can get better. take care of yourself...remember you must take care of yourself before you can take care of anybody else. your girls sound like gems and that much is good.

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/13/2008 7:13 AM (GMT -7)   
Today I woke up and didn't have the pain as I got moving.  Stiffness, yes.  Aches, yes.  Pain, no (not yet).  I think I will go ahead and take the girls to church. I'm only going to take MO instead of the script pain meds- at least while I drive to church.  We'll see how I am afterward as to what I take later.
 
One theing that I am afraid of is that I had an emergency appt made with a replacement rheumy for the 15th this month.  If I am getting better- will he believe that it got as bad as it did?  I wish that I had been able to get into the office while I was still in full flair, so he could see how bad it got.
 
This rheumy is only taking over while my original one is on maternity leave.
 
Got to get ready if I will get to church on time.
Christina
 
When you cannot stand, on whom do you lean?


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/13/2008 12:06 PM (GMT -7)   

Got to church and really got the pain surge.  I asked a friend to drive me and the girls home after church, then took a darvacet.  After an hour I took another one.  It makes me loopy, so I don't want to drive on it.

I have found that if I ice my knees, then use a heat pack, then ice again my knees start to feel a bit better.  It doesn't last long, but it is relief for a while. It helps my hands as well.

I really thought that I would be better today.  Maybe I juat pressed too hard this morning getting the girls ready for church.  I was ready to be better.


Christina
 
When you cannot stand, on whom do you lean?


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 7/13/2008 12:06 PM (GMT -7)   
they should believe you christina and this disease has a lot of ebbs and flows to it. it is known for flair ups.

Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 7/13/2008 12:47 PM (GMT -7)   

Hey Folks, Just been busy and sorry to be MIA for so long.  We will probably be going back in for surgery soon (stoma is prolapsed).  Hubby ready to get this over with.  Needs to gain more weight but may not be able to do so until he's put back together.  Anyway, I may disappear again for a while.  Will probably know tomorrow. 

I know I will be severely admonished for this but here goes.......I haven't taken time for myself.  Need to see rheumy and get meds adjusted or changed.  What I'm on now (Lodine) isn't doing it.  Next step is Methotrexate.  OK, OK, I'm going to do it.  Ahhhhh, I feel better just getting that off my chest and coming clean.

This is the hardest week of my entire year as the Youth Finals Rodeo is in town.  We usually work about 16 hour days during the rodeo but this year I released my position of picking up clothes at the rodeo grounds.  Told them to contact one of the other cleaners in town.  Not up to doing this without hubby.  Oh well, it's only money and my health is more important.  Besides, we may be in the hospital.  This is truly a relief for me. 

Have a good week and I'll be in touch as soon as I can. 

Boo


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/13/2008 2:49 PM (GMT -7)   
Christina, I too made an emergency appointment with my Rhuemy (last october) and as a new patient since I had not had a rhuemy for years. It still took 42 days to get an appointment so I had my primary script 30mgs/day of Prednisone so when I went in I felt really good. When I got to the appointment they had me fill in one of those lifestyle forms (how hard is it for you to... open a jar, dress yourself etc). Anyway I redated that form to the date I went to my primary and filled it in as if it were that day. Then I told the rhuemy how I felt the day I started the Prednisone and how I was feeling that day.
She had no trouble believing me. Even after that many days on Pred and how much better I was feeling my joints were still swollen (I couldn't tell but she could) and my labs were horrible. She said my CRP was the highest she had ever seen.
Your doc will believe you and treat you if she is worth her salt.

Boo, It sounds like you have soo much going on. I hope you can find some time to take care of yourself as well as your hubby. I know MTX is scary but I have decided I love it it got me off pred and totally out of pain. I hope something works as well for you soon.

I hope everyone has enjoyed their weekend.
Sj

Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 7/13/2008 3:37 PM (GMT -7)   
Thanks, Sj.  My sister is on it and has no problems and in fact has felt great on it.  Says all her pain is gone.

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/14/2008 8:26 AM (GMT -7)   
Jody, I read some of the other posts and yes I'm still around and my summer classes did thankfully end!!! I managed to get out with B's but yikes! So much for my GPA eyes I will rethink that one for certain next time!! I'm enjoying summer and my daughter and I are taking cake decorating, and tonight we take our cakes and frosting and will learn how to decorate the cakes..this should be interesting! Still doing the weight lifting with hubby and my son and they have now talked me into benching? Anyway, I thought I was liftingt 10lbs, because the little cirlcles (I'm really clueless) say 10, and I'm thinking, gosh I'm really puney!!! because by the third set I can hardly lift these crazy things! and my son is spotting me, and it turns out it is actually 25lbs since you count the bar tongue
 
I'm glad to hear your mom is doing well, and I hope she gets to take her trip.  How are you? Do you have any summer plans? or will you be taking the trip with your mom if she goes?
 
Boo...It sounds like it's time to get to the rheumy, but I know you have been so busy caring for your husband. I hope you make an appointment soon (for you).
 
Christina..I think  you were talking about emergency appointments? I have had those and at one point didn't call my doctor but just went there in person.  I was in town, and it hurt even to drive and they gave me a script for Medrol.  Sometimes you just have to! I often have lots of break through pain too, even with Enbrel.
 
Ducky..Did you go see your ob/gyn yet? I haven't been on in a bit and I was thinking about you this morning.  I was doing my weight training and when I started lifting, I had a sharp, tearing pain on my left side, and I thought cyst eyes   pesty things!! and wondered how you are getting along.
 
Not much going on, a trip to the rheumy today, and I have to give up 200mg of my plaq most likely, not happy about that at all!! maybe he will forget he said it last appointment, and I'm not going to remind him.  I wish I could get rid of the MTX and the plaq but I can't seem to get by without any of these meds, its ridiculous! Now I find myself really dependent on the Enbrel and without that I hurt. Oh well, what can  you do?
 
I hope everyone has a wonderful Monday :-)

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 7/14/2008 12:54 PM (GMT -7)   
hi everybody...i am doing pretty good, very busy with my usual stuff. getting another poem published and just heard about that today. i got four acceptances in the last few weeks so i am feeling good about that. will be sending some more work off.

am finishing wash and heading to the pool.

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/14/2008 8:07 PM (GMT -7)   

:-)  Here I am.  It's the end of the day, and I haven't had any pain meds but a bit of 800 MO at the start of the day.  I've got some "twinges" in my fingers- particularly after driving, and in my knee, also after driving- but otherwise I am simply "aware" of my joints.   redface  I LOVE PREDNISONE. redface   It's my new best friend. yeah yeah   yeah  

I go to the new rheumy tomorrow, and I have printed out all of my posts through this flair, so I know what was going on, and can show him in my own words at that time.  I don't want to forget how bad it was when I start to feel better.

I can still feel the "gravel" in my joints as I move them, but the pain is well within manageable levels.  It's just stiff.  The only thing I worry about now is my mood level.  The longer I take the prednisone, the more distracted I feel, the more jittery I am, I have racing thoughts, and can't seem to tell myself no to things like cake, ice cream or chocolate.  I think this is a manic- since I am Bipolar also.  It's hard to tell (I am usually depressed, rather than high).

I will call my PSY doc about it right after the rheumy appt in the AM.

Keep U updated!


Christina
 
When you cannot stand, on whom do you lean?


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/15/2008 7:28 AM (GMT -7)   
Christina, I also like the pred and it can become your best friend! It does help with the inflammation so much, that is what I like about it and there have been many days lately that I have wished I had a script for it!!
 
 
I went to the rheumy yesterday, and everything is status quo for the next two months, and he forgot about reducing the plaq, thank goodness, but its coming up time for an eye exam and I know my eyeballs are getting a bit worse, probably from the plaq, but gosh I hate to give it up...its almost like the pred..almost! I told him I was taking a weight training class and he just sat there and looked at me, nodding his head, not really sure what to say? it was strange to say the least!! Anyway that was my visit smurf
 
I hope everyone else is doing well and staying cool, it is really hot here!!!

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/15/2008 2:54 PM (GMT -7)   
Christina, I know exactly what you mean when you say gravelly feeling in your joints my shoulder stayed that way until I started mtx. I too love prednisone. I am glad your feeling so much less pain-the cravings and jitteriness from pred usually go away as you lower the dose but in your situation I think you are doing the right thing by calling your psych. I am so glad your doing better.

Joan congratulations on having your poems published. That is quite an acomplishment.

Momto3-I am glad your doc "forgot" to reduce you plaq. I wish mine would I had to do a lot of fast talking to keep mine at the last appointment.

I am planning a trip to Tennesee-an 8 hour drive-at then end of the month. My sister just moved out there and wants me to see where she is living. I plan on taking along the pred I have been hoarding as I can't imagine surviving 8 hours in a car without that.
Sj

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 7/16/2008 5:59 AM (GMT -7)   
eyes   eyes my podiatrist told me to go ahead and use the voltaren gel on my feet.  she said don't put it on the soles of your feet because the skin is too thick to absorb it but use it on your toes and ankles.  last night was my first night to trying it.  i am using it on my knee too.  i intend to use it just at night and you have to be careful not to overuse it.
 
she also said i might want to try the tens unit around my ankle and see if that will help.  have not done that yet.
 
i am too excited about the poetry getting published and should send more out but have been tired from my usual activities, swimming, housework, etc.  it has been very hot and humid here.  i will be going to a fireman's gala on thursday night.  perhaps i can light some handsome man's fire?
what do you think? eyes eyes

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/16/2008 12:07 PM (GMT -7)   

Happy Hump Day!! 

How is everyone??  Still wet and rainy here in the Sunshine(?) State..think we are beginning to mold.  Mom got her clearance from the surgeon yesterday so we get to make our trip Friday yeah!  But, the flip side of that is that now I have to pack for that trip...yikes. I hate packing!  Never can decide what to take, what to leave, always end up with twice as I could ever use, sitting on the suitcase to close it, etc lol. Traveling with enbrel, is a whole different story, too, not sure how to go about that, so have to call the airlines today, I guess.Will be great to spend time with my sister, though, and I'm hoping the weather in Michigan is a bit cooler than here, that would be most appreciated! So, tomorrow is the last day with the little ones until the 30th...I do need the break. Hubby and I are planning to go out to dinner tomorrow night, it's our anniversary...26 years( can't believe it!), then we leave early Friday am.   My sister doesn't have a computer, so probably won't be able to check in with all of you until then, so sending enough hugs to all of you to last!!  I will be keeping you all close in thoughts and prayers, though,  hoping that you all stay well.  How'd the cakes go, mom?  That sounds like so much fun...always wish I could do that...but I'd probably lick all the icing before it got to the cake heehee. How are the boys doing? That's great about the weights, too. Don't worry, before long you'll be bench pressing your son! lol.  Isn't it a great feeling to do that though, really? My boys tease me alot about weight lifting, but then they're like "hey mom, would you come move this?" Hubby just tells them to "watch out, she'll take you" Congrats again on the poetry, Joan, that is so neat, and have fun at that gala!  I'll bet those men wouldn't know how to handle you! Have a good trip sj, it's great you're up to the drive , sure says how far you've come, doesn't it?  Yally....don't know if I'll talk to you again before I go, but only a text away, my dear,.  I'll have my cell with me...just don't know how good the signal will be at my sister's place.  Kind of out in the country, last time service was sort of spotty.

Gotta run, kids are waking...once they leave I have to try and tackle the dreaded suitcase....wish me luck!

Love, Jody


Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 7/16/2008 12:51 PM (GMT -7)   

Happy Anniversary, Jody!  And I hope you have a great time on your trip.

Boo


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/16/2008 1:37 PM (GMT -7)   

Oh thank you so much Boo!!  You know you and hubby will be in my prayers next week...I sure wish there was some way you could let me know how things go....hope you have a wonderful wonderful time this weekend.

Love and hugs<

Jody


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/16/2008 2:29 PM (GMT -7)   

Good moanin' - or afternoon really

Yesterday I went to the rheumy.  It was the new one, and he was really, really good.  Enough that I think I will switch practices to go with him when my other one returns.  I hope that doesn't make trouble.

He says that my previous med level was rather light, but that was because I was responding so well to the initial treatment, there was no reason to be aggressive.  Now that this flair had happened, and I am still swollen and sore, it is time to treat the RA aggressively.

We talked about the changes in how I felt, and what I could expect in the way of recovery.  He stated that the goal is not going to be absence of pain (although some lucky souls do get complete recovery like that), but that the pain is not constant and is not consuming.  It needs to be manageable.

He explained that the pain meds were not to eliminate the pain - for inflammation pain it would knock you out before taking all of the pain.  The goal was actually to 'curb' the pain and assist the pain tolerance level till the prednisone got a chance to work.  it explains a lot, and changes what I thought the darvicat was doing.  he wrote me for a lot more darvicat and said that I could take it and MO for pain regularly.  He also left me on the prednisone for another 2 months, but is weaning me down from 20 mg a day to 10 mg a day.  He also added Methotrexate to the list of medications, and I take my first dose tonight.

I was told that I did not eat/drink/do anything to cause the flair, nor could I have eaten/drank/done anything to prevent it.  He said that my weight would not effect the RA, although the inflammation is not good for my body, and any side effects may be easier to handle in a healthy body.  I should strive to eat/be healthy, and if that causes me to loose weight- so be it.  He also said that I did not have to get on the cursed elliptical machine again.  Until I fell a lot better I should be doing most, if not all, of my excercise in the pool.  This is good news because I really enjoy the water arobics class that I am in.

The hair thinning of the mex had me worried- I used to have fine, but very full hair.  Lately I have had alot falling out.  All day long, sitting on my pillow in the morning, in my hand or brush when I run it through my hair.  I get handfuls when I wash my hair.  I can see where my hair is thinning- I don't want to loose much more.

Also, for the GI and mouth side effects I have started today some of the "healthy yougart".  I plan to eat one of the yo+ yougarts every day to promote a healthy bacteria in the GI tract that will aggravate the GI mucus less.  I don't knkow what to do about my mouth.  I have a broken tooth, so it rubs on the inside of my lip, causing a scratch there sometimes.  maybe I can convince the insurance company now that it is a health issue for me to fix it now.

If you have any ideas on what I can do too, please let me know.
 
Christina
 
When you cannot stand, on whom do you lean?


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/16/2008 3:01 PM (GMT -7)   
Christina, everything you report your doctor saying is right on. Sounds like you found a keeper. I would say to take at least 1 mg of folic acid today before you take the mtx and then at least one every day. I would also suggest taking the mtx at bed time and drinking a ton of water.
Jody, enjoy your trip.
I hope everyone has a good week.
Sj

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/17/2008 1:35 AM (GMT -7)   
hi everyone just popping in to say howdy folks! : )

jody happy anniversary!

well middle of the night and i have to go to work- sounds like a storm brewing here thunder and saw the sky light up so i am gonna sign off. hugs to all yals

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/17/2008 7:17 AM (GMT -7)   
Jody..good to hear from you..and the cake decorating is a lot of fun, except for the Wilton teacher is a bit of a **** and seems to forget that we are all beginners!! Since you are a baker, I could easily see you decorating beautiful cakes :-)
 
Christina...you mentioned  you have a tooth that needs to be fixed?  you really need to get that taken care of before you get too heavily into your immune suppresants so that you are prone to infections.  Trust me!! I had one, and mine tooth infection within a couple of days it took two different antibiotics to get rid of and my face swelled up like a chipmonk, it was terrible. It might be worth a trip to the dentist to make sure all is in order. 
 
Jody, by the way Happy Anniversary :-)   I hope you and your hubby have a wonderful and romantic dinner!
 
Yally, nice that you popped in, I wish we would get one of those storms here!
 
Have a great day everyone :-)

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 7/18/2008 11:57 PM (GMT -7)   
yeah  g'moanin g'moanin g'moanin and welcome from sunny uptown st Austell in deepest Cornwall where the bear is escaping from the mother in law and doing a weekends work in the rain. How is everybody? I have been very busy running around the country in the last few weeks having spent time in Liverpool, Peterborough - no don't go there - Birmingham and Coventry and will be visiying Liverpol again [with the big cub] Ediinburgh, Kent and Peterborough again in the next three weeks. My pd has appeared to have stabilised enough not to worry me too much at present and sincee my hip replacement last year I have had no real problems with my athritis so for these small mercies one is truly thankful  
 
I had an interesting train journey down here esterday from London in the 'quiet' coach where all electrical stuff is switched off and people have he option of a relatively peaceful and undisturbed journey. Well that was the theory but when one is surrounded by a large group of 20 something young men heading for a Cornish resort for a mate's stag night that is difficult. Add to the the fact that the train had been horribly overbooked and also had one  coach missing it was a recipe for high blood pressure for many travellers who could not make allowances for the situation. The young men were not rude, or offensive, nor were they drunk but they were LOUD - in the QUIET coach. A heinous crime particularly when you consider that they were often standing for hundreds of miles [allowing older people to have their reseerved seats]. The bleaters and the sheep were in their element 'I've had to listen to you forthe last two hurs and enough is enough' she railed at ME! I'd been minding my own business with my mp3 on my ears. Well I wasn't going to take that lying down so I stood up and gave her a kiss!!! Such an act act in this country can often mean a court appearance for sexual assault but it seemed to work - she went right red and sat down shocked at having been kissed by what appeared to be a yeti on vacation. But it seemed to calm her down some.   
 
I know we are not allowed tto talk politics or religion here but observations from across the pond. We have Barak over herre at the moment and he is incredibly popular despite people knowing nothing much about him - the press are incredibly polite about him - dig that eh? The british press, affectionately known as the reptiles over here, polite to nd about a politician, it just doesn't happen in this country.
 
I am a member of a user driven forum for people with pd over here and if you have 5 minutes to spare give it a visit - google PDUK for people with PD and you should find a link. If you end up in the PDS forum you should've turned right at Allberquerque or  somewhere equally elegant. It was set up by John P who for the last 6 years has gone the rounds of neurologists merely being told what he hasn't got during which time he has deteriorated and still does not know what he HAS got. A remarkable man. He has finally been referred to a professor in London but why hhas it taken his doctor 6 years to reach this decision? The vagueries of the British health system.
 
On courfse for the road trip next year - my Washington confeence is in July and I will hopefullly be spending a couple of weeks afterwards visitng people - form a line over there please. I'm due to retire end of May so .................watch this space.
 
I do ohpe all of your individual problems don't hurt tooo much but to all of you; boo, yally, [more obtuse calls next yeareh?]  erin, ducky, babyplace [thanks for the mail but I will respond], camama, mom2hundreds, joanie [well done on the  publishing front girl] elcamino, raven [where are you]  and to everybody I haven't mentioned or known
staywell
The bear
 

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 7/19/2008 8:09 AM (GMT -7)   
well bear...glad to hear from you. hummmm, kissing irrate travelers in public.........shame on you! had a great time at the firemen's gala...ate all the bad fair food, fries, sausage and peppers, etc and an icecream sundae.

whoever said that the men around here could not handle me...you are right. i can be very aggressive and the women here are very subservient...this ain't Brooklyn with the tough mommas.

well happy about the poetry and thanks for all your good thoughts. I just finished all my christmas cards (about 40 of them) and it is too hot to do much else today. i must make sole slaw for the pot luck tonight. so long folks.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/19/2008 10:04 PM (GMT -7)   

Hey All! Boy, what is it, once a month I finally get online? Things are busy, to say the least.

Welcome Christina (yeah, a little late), it sounds like that new doctor you saw is a good one. I think you should continue to see him. someone mentioned to make sure you drink lots of water and get a good amount of folic acid in daily, I will support that comment - both are VERY important. I lost a lot of hair on mthx as well, but though I felt I must be going bald because my hair was always EVERYWHERE, I didn't get more than some thinning - and that scare got me to take really good care of my hair! tongue   Also, a  good B Complex supplement daily is a good idea as well (this also contians folic acid).

Who is getting published for poetry? I forgot...congrats! Boo, good luck with hubby's surgery. I read a 17-year old Italian boy for someone else??? OY!! Good luck!!!!! 17-year old boys from ANYWHERE, geesh, that's got to be a handful! tongue

Okay, my fingers have had enough I haven't said 'hi' to you all - I hope you know I'm thinking of all of you constantly and praying everyone's health and joints are holding up w/o too much hassle. ***


 


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1973
   Posted 7/20/2008 3:48 PM (GMT -7)   
i have been eating up a storm at potlucks, picnics, etc. and went to a membership appreciation day at the jewish community center. all these calories are going to be tough to work off!!!!!!!!!!
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