Does anyone know anything about JRA?

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Lurker
New Member


Date Joined Jul 2008
Total Posts : 10
   Posted 7/23/2008 7:06 AM (GMT -7)   
I have four kids and we have been dealing with dx joint pain with two of them for a long time now. They are the middle two my daughter is 6 and my son is 3 and it started with each of them when they were 13 months old. We have been to pediatrician, podiatrist, orthepedic, rheumy and even a chiropractor trying to find a dx and maybe some relief. I have been posting in the Lupus section because I know that we have at least one case of it in the family and I am researching all the options. Every doctor has told us they can't find anything so it must just be growing pains. They have taken ibuprofen or naprosyn at least once a day for 5 and 2 years and now my daughter is having kidney problems that they are doing tests for. In the month of July we have had, between the two of them, 7 days of pain during the morning hours. From the best of my understanding growing pains don't happen in the morning. They hurt more often at night but sometimes they hurt form the time they get out of bed for a full day or more. We have stopped giving them medicine for now because the nephrologist was worried about her taking it while having kidney trouble. I am sorry for being so long but all of that history was really to ask  if it is heard of to have JRA with only joint pain, no swelling or redness?

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/23/2008 2:11 PM (GMT -7)   
There are different types of juvenile arthritis. A really good article that discusses the types and the symptoms can be found here: http://www.medicinenet.com/juvenile_arthritis/article.htm
 
I hope that site helps since I don't have any personal experience.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


mouseyC
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/22/2008 2:58 PM (GMT -7)   

My daughter was diagnosed with JRA when she was around 3 years old.  It started with a small lump on her hand.  She was given tests for lyme, lupus -- negative.  Her RA factor has never been positive.  She was started on the basic naids, then graduated to trillisate, then indocin.  Her hands, knees and ankles are affected.  In spite of the meds. she was taking, her hands became very deformed and at the age of 16 had to have her wrists straightened and fused.  She is now 23 years old, a very beautiful girl.  When I look at her hands it makes me want to cry.   She is very limited as to what she can and can't do. 

Now that she is "grown" I cannot make her understand the importance of taking her medicine.

I guess what I am attempting to say is don't let these doctors tell you that your child cannot have JRA due to a negative ra factor.  IT DOES HAPPEN!  It is extremely important to aggresively treat your child.  I can look back now and say I wish I had been more assertive when it came to her care.  The resources weren't as available as they are today to "help the doctor" treat her.

Good luck!

 

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