Sacroilitis ?? please read

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irish63
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Date Joined Jan 2006
Total Posts : 242
   Posted 7/25/2008 1:13 PM (GMT -7)   
Is this a dx that can only be made by x ray or can an xray be normal and you still have Sacrolitis.  I have terrible hip pain and lower back pain.  My GI did an xray but said it's normal.  I have been on steroids ALOT over the past 3 years.  The hip pain wakes me up at night and sitting to long in one spot is killer.  Lower back pain is not near as bad but aggrivating.  Just interested in how you were dx.
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Ginny
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Date Joined Feb 2003
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   Posted 7/25/2008 2:07 PM (GMT -7)   
Hi again!
 
I talked about the xray/bone scan in my other post to you just now.  So no.  If you have an xray done it won't show if you have sacroiliitis.  It'll just show if you have any fractures, bone spurs, etc.
 
Interesting that you have been on steroids.  For your chrons?  Oral prednisone won't help sacroiliitis. But steroid injections will.  Definitely try to get in to see a rheumatologist.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/25/2008 2:11 PM (GMT -7)   
hanks so much for responding Ginny. Yes, I was on the steroids for the Crohn's/ I have an app with the Rheumotologist in Sept. I have had a steroid injection into the hip and it did help however my PCP did that. I see him next week so I'll ask if he will give me another injection.
Again, many thanks..
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 7/25/2008 9:54 PM (GMT -7)   
Sacroiliitis in its early stages can usually only be seen on MRI or bone scan. Also, an injection into the SI joint needs to be performed by a specialist under xray guidance. It is a very small area that one cannot just "stab at" and hope of hitting. I'll be back tomorrow to write more about this because I am short of time now.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Red_34
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Date Joined Apr 2004
Total Posts : 23418
   Posted 7/26/2008 5:23 AM (GMT -7)   
Sorry to butt in here but I seen the title of the post so I thought I would share :) I too have Sacroiilitis but I wasn't a clear cut case. I had both xrays and MRI's both of which came out normal. But whenever the doc would press on my SI joint, it would send me thru the roof. I had 2 steroid injections into my SI joint and Ides is right. They use an xray guided machine to get into the SI joint. It isn't a pleasant procedure but it does help.

You mentioned that you have been on steroids from your CD. Have you ever had a bone scan done? If not, then I recommend you get one. Long term steroid use has the potential of causing bone necrosis.


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irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/29/2008 1:26 PM (GMT -7)   
Thanks Ideas and Sherry!! I guess I'm in "waiting" until the MRI. They are doing both hips for comparison.
I dread it....
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


starrnr
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Date Joined Dec 2005
Total Posts : 1782
   Posted 8/1/2008 8:57 PM (GMT -7)   
My sacroiliitis was quite apparent in xrays -- due to its advanced stage. The same xrays taken 10 years earlier showed nothing remarkable. That was how my rheumy finally dialed in my AS diagnosis (amongst other things). My SI joints look horrid...still. I wish you luck in finding relief.
Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Back to Enbrel 5/08 (I've gone full circle!), also currently taking .7ml (17.5 mgs) injectible Methotrexate weekly, 2 mgs Folic Acid daily


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 8/2/2008 1:48 PM (GMT -7)   
I went to a rumy also they did xrays and i feel for you the lower pain in spine gets me i did injections also i have tried it all p/t,messages,pain meds ,pain patches some days our better then others but i have two forms arthtris,fm,and now they say facial pain.So now i don't realize what is what have the time you treat one thing and something else hurts i just take it one day at a time .Take care Deb

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 8/3/2008 11:59 AM (GMT -7)   
I have severe arthritis of my spine - all levels. My tail bone broke when I gave
birth 35 years ago. Now it's causing all sorts of problems the worst being itching.
My entire spine itches. My shoulders itches. My tail itches. Arghhh.
I suppose the itching could be an allergy. Any ideas?
Pamela Spinepain
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx
Spondilytis
Myofascial Pain
Fibromyalgia
Bulging Discs
Spinal Stenosis
Scoliosis
Osteopenia
Chronic Constipation (Take meds that solve that problem. : ) )
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Prolapsed Bowel and Bladder (Doesn't cause much problem)
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irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 8/3/2008 1:01 PM (GMT -7)   
Wow.  I'm not sure, could itching be caused from arthrits????  Good question??  Thanks all who replied to this post.  I will just sit and wait..  MRI of both hips is scheduled for 8/15....

Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


sheryl=jk
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Date Joined Oct 2004
Total Posts : 4083
   Posted 8/6/2008 7:21 AM (GMT -7)   
I am not dx with that but i know when the joint is manipulated its very painful, i woonder if could some cause in additon to ddd and severe arthritis in the facet joints, i have fallen on my my tail bone many more times then i can remember, xrays of my hips show bursits.  have a feeeling i have it in my shoulders too.the bursitis that is.
 
God Bless,and have a Great Day!!.......Love.....Sheryl
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Irish_Mom
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Date Joined Apr 2007
Total Posts : 385
   Posted 8/10/2008 1:36 PM (GMT -7)   

Pamela

What meds are you taking? A lot of medicines can cause itching.


Terri
 
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Inspector57
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 8/10/2008 9:57 PM (GMT -7)   
Hello,
Just registered. I am looking for some answers. My problem started over 4 years ago in June with bronchitis and was given antibiotics and sent on my way. The bronchitis would not go away and after many different courses of antibiotics my digestive system went haywire. I had all the usual tests which all came back normal. Then in Sept of the same year a ultrasound showed a thickened gallbladder, which was removed. In Nov. of the same year I had a incomplete small bowel blockage which resolved on its own with hospitalization for three days. Had more tests which came back normal after which the Gastro said I have IBS. Since then I have lived with the abdominal pain and intestinal problems. Now I have developed a vitamin B12 deficiency, x-rays and a CT showing mild degenerative change in the facets at L5-S1 and L4-5 and Sacroiliitis in one joint. Does this sound familiar to anyone? I am just looking for answers or a new direction to look for answers.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/11/2008 9:20 PM (GMT -7)   
You need to find another GI to go to for a second opinion. Your symptoms of small bowel obstruction and B 12 deficiency points to an inflammatory bowel disease. Have you a colonoscopy? Did they take biopsies? Also, inflammatory bowel diseases are often associated with arthritic problems. about 20% of people with inflammatory bowel disease also have associated spondyloarthropathy that features sacroiliitis. do you have a rheumatologist? If so, what has he/she said about your sacroiliitis?

I'm short of time to go into detail right now but will check back tomorrrow and see if you have answered my questions [if you choose to - you don't have to]...I'm kind of nosey...LOL
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Inspector57
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 8/14/2008 7:29 PM (GMT -7)   
I am grateful for any help or advice and do not mind any questions. I have had 3 colonoscopies from 3 different GI's, 1 with biopsies . 2 upper scopes all from different GI's. All results were the same "everything is fine". The diagnosis was IBS and to live with it. I have told each doctor about the pain in my back each time I had an appointment without any hint of a relationship between the intestinal and back pain by a doctor. I have an appointment with a rheumatologist later this month.
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