So do you know if this is FM, Arth or Lupus related? I'm currently undiag, except for imflammatory arthritis and FM.
So u think the steroids won't help? I've taken the 5 day Medrol packs twice and Cataflam for 3 days. My PCP is wanting to give me 21 days of Prednisone now. I'm so torn as to take them or not. I've gained Lyrica weight already on top of my extra baggage. I'm having other problems, short of breath, palpatations and taking Pred will only add to the bad symptoms, plus fluid.
I work all day so I can't ice them down except for short periods at night. I know from what I've read there is nothing to do. what causes this??? How can u walk on two feel like this??
Well actually I am not on the Pred. I picked up the rx, but did not take it yet because I'm sick of steroids. I took 2 of the Medrol packs and when I called the pcp the 3rd time, he called this rx in. I'm thinking he is sick of me and just said "fine, I'll give her steroids" and called in 21 days worth! lol I don't know that for sure, I'm just saying.
My coworkers, family and friends are sick of me whining, but gosh this hurts so bad. Does your throb all the time whether sitting or standing? Mine at night will throb like a toothache. Sitting at my desk, it smarts, I am constantly re positioning my foot.
So you don't think the Pred will help this part pain even if it is related to Arthritis?
I'd like to know how yours started. For me I noticed that over a couple of days time, I began to limp like my ankle was sore. By the 3rd and 4th day, I noticed the back of ankle and I was hurting badly. I went to have it checked and got the diag with a rx for medrol and told to ice/heat, rest 2 weeks as much as possible. Did that and it didn't help. Called back, he called in another medrol pack.
But like went on and I had to work, and keep moving. I'm much slower than usual moving, walking, working, etc....I complain and make comments out loud like OUCH, OOCH....and this last week I told my coworkers I'm sorry if you're sick or me, but I'm sick of me too. This hurts and I'm going to complain and don't care who is tired of hearing me or not! LOL!
Then yesterday I realized my right foot is hurting when I walk. The same as the left! Unbelievable! I do know I am NOT calling my PCP. I will wait till Aug 28 to see this new rheumy.
Oh also, is yours swollen? My left foot by now, looks like a golfball on the outside of my ankle between the ankle bone and back of tendon. It stays swollen all the time. Also my right foot that has started is displaying pain all up my calf where the tendon is.
I just wanted to pop in and give you my support. I hope you both find some relief soon! I had (still have) feet issues, but they were slightly different - in the metatarsil area (ball of foot) and toes. A nightmare. Couldnt walk and was laid up for years. Gained a lot of weight due to immobility, steriods, etc. I'm doing better (with the exception of the weight) but have to be really careful. I wear sneakers 24/7 - with specially made orthodics - I often put them on first thing in the a.m. and take them off right before bed.
Anyway, I have been there - the nobody wants to be near me b/c I'm complaing so much or just constantly grimacing and sighing with every movement. The pain is so overwhelming it engulfs you at times it got so bad it literally made me sick. You can't get comfortable, you can't sit, stand, walk, etc w/o excruciating pain. Had the throbbing too. It felt like I was hit by a semi most of the time. My issues started with a weird feeling in my ankles as well....felt like there was a loose bolt in there or something.....I was a bridesmaid in a wedding and had to wear my sneakers through most of it (boy do they ruin a photograph!), I suffered through the actual wedding and most of the photos for 2 hours in some flats I purchased - it was awful!
Stretching did help eventually somewhat, combined with the good sneakers, orthodics, extra metarsil support, pain management meds, early on painkillers and muscle relaxants (I'm off all those now - just taking RA meds now), and a LOT of time taking it unbelievably easy.
Hang in there. I know it's hard. Have either of you been sent to a podietrist yet? I would ask to go - all this hobbling is going to cause even more damage to your gait (??sp??) and your problems that you won't know which pain is from what. Get a professional to make sure you feet are still in correct form and if not - get the orthodics made. They are expensive, but can be worth every penny!
kaymac - they thought I had lupus for a long time. As a child with JRA, then again as an adult. I have psoriatic arthritis and if you compare the list of symptoms to that of lupus, you'll find a lot of them are parallel.
Yes, I have compared them. I also read up on the PA and think to myself that is me too. Especially since I have had a breakout all in my scalp of what one rheumy said was psoraisis and I needed to have checked.
I think sometimes I need to just quit reading the internet because I don't want to appear like someone who thinks they have everything wrong with them. But I do indeed fit into the catagory of Lupus/PA or sometime of those. Then again, it could be the FM....seems like everytime I go to PCP he says "it's FM related!" What symptom is not related to FM?? Goodness gracious! lol
LOL - I completely hear you! The doctors seems to use these catch-all names for things. I felt that way for a long time with the docs blaming my arthritis. The fact is, any auto-immune disease affects your whole body and they are all intertwinded to some degree...if they aren't, then they seem to cause other auto-immune dieseases to do it for them. It is ridiculous.
My doctor explained that PA infiltrates more than your joints, it is known to affect your organs, tissues, and that coating around the joints (I keep forgetting the name of it). This is why (he said) I was constantly plagued w/UTIs, how once my spleen and liver were so severely affected by an acute case of mono they became a weak spot and actually hurt when I'm going in to a flare, and so on. One of the things he told me (more or less, it has been 12 years) that makes a lot of sense, "Some people have arthritis. They have a form of arthritis and when their joints flare, their joints hurt terribly. Some people have an auto-immune disease. When their joints flare, it's a total body experience.....that is you."
The internet can be so helpful but damaging at the same time but when you don't have solid answers, you start looking for anything and everthing that could be the problem. It helps you make sure no stone is unturned in the research to help get you better. I know it's hard not to feel like a hypochondriac, I've been there many-a-times, but when you are grasping for just a few answers you have to look at all the options. ***