Anyone with Bechet's Disease

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/29/2008 9:55 AM (GMT -7)   
Have any of you been diagnoised with Bechet's Disease.  My new GI thinks that I have been misdiagnoised with Crohn's Disease but actually have Bechet's Disease.
I am SO FRUSTRATED!!!!!!!! A new diagnosis????? 
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/29/2008 5:51 PM (GMT -7)   
Hey irish.. why does your GI think it's Behcet's? Especially if you've been diagnosed with Crohn's for almost 4 years now? Hang in there!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/30/2008 3:05 PM (GMT -7)   
That's a good question. I asked him the same, he said it's because my colonoscopy showed "chronic inflammatory bowel disease unclassifiable to either Crohn's or UC." However, my old GI had 35 yrs experience and his feeling was that I had ALL the symptoms of Crohn's and sometimes you can't fit a square peg into a round hole. If it waks like a duck and talks like a duck, it must be a duck. These GI's are at a major teaching hospital.
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/31/2008 4:07 PM (GMT -7)   
Has the remicade been helping with the Crohn's? have you gotten worse? I just don't understand why they would want to change your diagnosis, unless maybe you were having more issues?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 7/31/2008 5:30 PM (GMT -7)   
Hey Ducky
Actually, I have been doing pretty good. My complaint has been terrible hip and lower back pain. I don't understand why he wants to change my dx either. My PCP said some docs just like to "see the evidence" for themselves and he is going to call him to "chat" about why he is questioning the dx. However, he certainly didn't change my meds, and if I don't have Crohn's or IBD for that matter why the heck am I on Remicaide??????
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/31/2008 5:43 PM (GMT -7)   
No kidding! Hopefully your PCP can talk some sense into him! :) Is your hip and your lower back where you feel your arthritis the most? Or are these new locations for you?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


irish63
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 8/1/2008 2:26 PM (GMT -7)   
Yes, the arthritis thing is really just hip and back and occasionally my knee. The interesting thing about that is my knee is the only joint I have swelling in. Although, I guess it would be hard to see visual swelling in your hip and back! Thank you for replying. I see you have scoliosis, how were you diagnoised???????
Dx: 10/04 Crohn's, GERD, IBS,Osteporosis, Depression, Hypokelemia, "Crohn's" Arthritis, Migranes,
Meds: Asacol, Protonix, Lexapro, Celebrex,Potassium, Remecaide,Entocort, B12 injections wkly, Magnesium, Calcium, Phosphorus 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/1/2008 6:26 PM (GMT -7)   
I would definitely seek a 2nd opinion about the Behcet's.. that's just crazy!

I was diagnosed with scoliosis, when I had my daughter actually.. I had her C-Section, and the when the doc was trying to give me my spinal, he kept breaking the needle in my back.. so then he took a step back, looked at my spine, and felt it, and realized it was curved.. good grief.. if I lay on my back, my right rib cage is higher than my left as well..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


glass01
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/8/2008 5:10 PM (GMT -7)   
I was DX with colitist for 10 yrs. before I was DX with Behcet's. I also had sever headaches.  What a relief that was!  At that time, I did not have arthritist.  And, my arthritist has moved around from my hands and feet to my lower back and hips.  My colitist symptoms have subsided.  The doctor who is saying "Behcet's" is probably right.  But your Crohn's still has to be treated.  In fact, any of the symptoms of Behcet's has to be dealt with individually.  If you have the mouth or genital sores chances are it is Behcet's.
 
 

Post Edited (glass01) : 9/8/2008 6:17:03 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 7:18 AM (GMT -7)
There are a total of 2,733,449 posts in 301,122 threads.
View Active Threads


Who's Online
This forum has 151259 registered members. Please welcome our newest member, dolly23.
316 Guest(s), 7 Registered Member(s) are currently online.  Details
tickbite666, dolly23, w0hll, rockyfords, Jean123!, straydog, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer