Thanks for the replies. When I last saw my doctor (2 weeks ago), I had only been experiencing a flare for about a week or so. Now it's been about 3 weeks. I'll be sure to mention it to him next time I see him (September), but again, my blood counts are normal (no news is good news).
I've been taking mtx off and on now, I think, for almost 2 years. I can honestly say, though, that the mtx has made a huge difference in my joint pain and stiffness-perhaps the drawback is the fatigue? Enbrel, when I took it alone without mtx, made a huge difference in the fatigue. Maybe that's why both of them work so well together? I'm not sure it's the mtx, though, because previously I hadn't experienced the fatigue with the mtx. But maybe this is simply a new side effect. In any case, I'm more concerned about the joint pain and stiffness (no swelling), than the fatigue. In addition to the mtx and enbrel, I take tramadol 3x/day. I was trying to cut down on it, but eliminating my mid-day dose (which is the optimal time of day for me), but everytime I do, I'm in so much pain by evening that all I want to do is crawl in a hot bathtub.
I guess my whole point with this post is that I feel drugged up to the max, and the drugs do help, but they don't eliminate the problem. PattyLatty--maybe you have something with the gluten-free diet. I was tested for celiac via small bowel biopsy, but was negative for it. Nevertheless, I do believe that diet interacts with our health in ways that we are only beginning to understand. Ok--that's the end of my rant. I'm sure there are many people here who have it a lot worse.
I'm also on the MTX/Enbrel combo and I still have pain at times. Recently when I had to go off the Enbrel for a bit and was just on the plaq/MTX, I called the doctor to see about something for pain and they called in more pain meds but no pred. Does anyone know if it is safe to take pred while on Enbrel? I already had a prescription for the 100/650 but yet that is all they would give me, and I wanted to ask for pred. Just curious if anyone takes the pred along with the Enbrel? I read it interacts:( I was hoping for a short dose of that instead I seem to be on merry go round of pain meds, MTX, Enrel etc.,
I too feel maxed out with the meds..I went in yesterday for an exam and in order to keep cysts etc away I need to go back on Yaz, so yet another pill. It gets ridiculous. I stopped taking it thinking I could at least eliminate one pill from my crazy cocktail.
Hang in there!!
Thanks for your responses. It sounds like it's a pretty common complaint (pain and stiffness despite maximum meds). All I can say I'm glad I have tramadol...
momto3, sorry you have to take yet another pill. I, as well, went on a campaign to reduce my meds. At the time, though, I was taking the following:
enbrel, mtx, plaquenil, aciphex, zantac-150, bentyl, zyrtec, optive eye drops, and about 15 pills they use for tb treatment (I was treated prophylactically for tb that maybe I had once in the past). Once I stopped the tb treatment, my pills were drastically reduced.