Residual Pain and stiffness

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elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 7/30/2008 10:09 AM (GMT -7)   
Hi everyone.  Haven't been around for a while.  Was enjoying a nice reprieve from the RA.  I'm currently being treated with enbrel and mtx, and according to my numbers, the disease is "well-controlled."  While I, by no means, feel as bad as I did pre-medication, I still experience residual pain and stiffness.  Admittedly, i still have days where I wish I could just stay in bed with a heating pad all day.  Yet, my labs still support very little disease activity.  Is this common?  My doctor doesn't seem surprised, so I guessed that maybe this is a fairly common experience for others.  For those of you who have been treated for a while, what is your experience?
 
Thanks in advance!
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/30/2008 7:00 PM (GMT -7)   
Hi elcamino. I can't answer your questions but just wanted to say hi -- it's been ages since I've seen on the Lupus site and am sorry to hear that your RA is giving you trouble. Hope everything else is going ok for you.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


ericsmom
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Date Joined Jan 2007
Total Posts : 1042
   Posted 7/31/2008 3:48 AM (GMT -7)   
Good morning Elcamino,
 
Your rhuemy wasnt concerned about your fatigue?  Does your lab tests show that the Lupus is still in the early stages?  Just a thought.  For 3 yrs I was told I had lupus, then was re-dx a year ago with fibro instead.  What I do know, it that fatigue is a huge issue with both lupus and fibro.  If this continues, maybe you could phone the rhuemy and ask his secretary?  She will either ask him about it, and give you an explanation, or give you another apptmt.
 
Healing hugs
Diane
 
 
Fibromyagia, R/A, Diabetes, Atrial Fib, depression

folic acid, metformin, diamicron, bisoprolol, fenofibrate, pantoloc, wellbutrin, propafenone, ibprofen, warfarin, methotrexate


Some people dream of angels, I held one in my arms


elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 7/31/2008 5:25 AM (GMT -7)   

Thanks for the replies.  When I last saw my doctor (2 weeks ago), I had only been experiencing a flare for about a week or so.  Now it's been about 3 weeks.  I'll be sure to mention it to him next time I see him (September), but again, my blood counts are normal (no news is good news). 

 

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/31/2008 7:25 AM (GMT -7)   
How long have you been taking Methotrexate? It made me so tired that I couldn't function for about five days after taking it. I finally stopped taking it because of that. I went gluten free a few months ago and 50% of the fatigue I've had for the past four years lifted. It took about a week to notice a difference. My life is so much better. These things are so darn hard to figure out.
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/31/2008 8:06 AM (GMT -7)   

Hi PattyLatty,

 

I've been taking mtx off and  on now, I think, for almost 2 years.  I can honestly say, though, that the mtx has made a huge difference in my joint pain and stiffness-perhaps the drawback is the fatigue?  Enbrel, when I took it alone without mtx, made a huge difference in the fatigue.  Maybe that's why both of them work so well together?  I'm not sure it's the mtx, though, because previously I hadn't experienced the fatigue with the mtx.  But maybe this is simply a new side effect.  In any case, I'm more concerned about the joint pain and stiffness (no swelling), than the fatigue.  In addition to the mtx and enbrel, I take tramadol 3x/day.  I was trying to cut down on it, but eliminating my mid-day dose (which is the optimal time of day for me), but everytime I do, I'm in so much pain by evening that all I want to do is crawl in a hot bathtub. 

I guess my whole point with this post is that I feel drugged up to the max, and the drugs do help, but they don't eliminate the problem.  PattyLatty--maybe you have something with the gluten-free diet.  I was tested for celiac via small bowel biopsy, but was negative for it.  Nevertheless, I do believe that diet interacts with our health in ways that we are only beginning to understand.   Ok--that's the end of my rant.  I'm sure there are many people here who have it a lot worse.

 

elcamino

 


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/31/2008 3:58 PM (GMT -7)   
Hey el.. I'm on the Enbrel/MTX combo too.. and I'm wiped out all the time.. ESPECIALLY the day after I take my MTX.. but as far as your bloodwork, mine is the same way.. doesn't show anything, yet I still flare.. and I flare for a while it seems.. I have noticed that I'll go into a flare for a long time, but then I usually don't flare again for a long time.. I just figured it was coming in cycles.. :(
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 8/1/2008 8:54 AM (GMT -7)   

Hi ladies,

I'm also on the MTX/Enbrel combo and I still have pain at times.  Recently when I had to go off the Enbrel for a bit and was just on the plaq/MTX, I called the doctor to see about something for pain and they called in more pain meds but no pred.  Does anyone know if it is safe to take pred while on Enbrel?  I already had a prescription for the 100/650 but yet that is all they would give me, and I wanted to ask for pred. Just curious if anyone takes the pred along with the Enbrel? I read it interacts:(  I was hoping for a short dose of that instead I seem to be on merry go round of pain meds, MTX, Enrel etc.,

I too feel maxed out with the meds..I went in yesterday for an exam and in order to keep cysts etc away I need to go back on Yaz, so yet another pill.  It gets ridiculous. I stopped taking it thinking I could at least eliminate one pill from my crazy cocktail.

Hang in there!!


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 8/1/2008 9:22 AM (GMT -7)   

Thanks for your responses.  It sounds like it's a pretty common complaint (pain and stiffness despite maximum meds).  All I can say I'm glad I have tramadol...

momto3, sorry you have to take yet another pill.  I, as well, went on a campaign to reduce my meds.  At the time, though, I was taking the following:

enbrel, mtx, plaquenil, aciphex, zantac-150, bentyl, zyrtec, optive eye drops, and about 15 pills they use for tb treatment (I was treated prophylactically for tb that maybe I had once in the past).  Once I stopped the tb treatment, my pills were drastically reduced. 

I would love to eliminate tramadol, but everytime I do I truly regret it.
 
El
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 8/1/2008 11:54 AM (GMT -7)   
Hi Elcamino..Yes, I was a bit dissapointed to have to inject myself twice a week and still have pain.  In my mind, I'm thinking this is it!! I'm maxed out on meds so my pain should be at least under control but have come to realize it just doesn't seem to be managed like my migraines are managed with my Topamax (yet another pill..haha) as long as I take them, no migraines, too bad it isn't like that with RA eyes My rheumy says it doesn't work that way..no kidding? anyway,  you are not alone.

loris mom
New Member


Date Joined Dec 2010
Total Posts : 5
   Posted 12/26/2010 8:18 AM (GMT -7)   
was taking enbrel w/lots of success and because of wt gain rheumie took me off it--switched dr's and he put me back on enbrel and added placquinel. no relief from either this time--last tume the enbrel worked fast but the pain is very severe this time--huge strp backwards--dx'd less than a year ago--can someone tell me if i will ever be painfree? no one will tell me--i guess there will always be some degree of pain? is that right?

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/26/2010 5:00 PM (GMT -7)   
Hi Loris mom, the only thing that really helps the pain is prednisone or prednilisone. You could just be experiencing a minor glitch and a short course of pred may do the trick for you. Discuss it with your rheumy. It certainly won't hurt. In my experience I flare when I'm over tired, stressed or just doing too much.
Being on my feet most of Christmas day meant that yesterday my feet were in agony. I upped my prednisolone and rested, today they're good again. I have permission to range from 5-15mg of prednisolone per day, my norm is 10mg. I just can't seem to survive without it. Despite my bloods looking good!
Changing meds may have stressed your body, talk to your doctor about a short course of prednisone and see if it helps? It may just get you over his current flare.
Best wishes, golitho

loris mom
New Member


Date Joined Dec 2010
Total Posts : 5
   Posted 12/27/2010 2:39 PM (GMT -7)   
my rheumie does not deal with pain meds I have to go to my family Dr.
she gave me some prednisone a while ago and I started it today.  Never knew what a flare is or was.  I did make candy Buckeyes over the holidays and it really threw my hand into a tizzy--still recovering.  so I guess when I see my Rheumie in Jan I will have a bunch of questions for him--I was just dx'd last year in february and it has not been fun
but I will keep with this website.  I get more info here than at my Dr.'s
but I really like my Dr.
thanks
loris mom

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/28/2010 12:50 AM (GMT -7)   
Hi Loris mom, you have to go on a huge learning curve with RA. The more information you can gather the better in control you'll feel!
As forever being without pain. It can happen! Sometimes the right combination of meds can give enormous relief. I still find if I overdo it I get pain again but its more manageable. The trick is finding that right cocktail that works for you! I have been on so many different med combinations!!! We are all so indivdual, we all respond or don't respond to different meds, so what works for me might not work at all for you. But the great thing is there seems to be a lot to choose from. My rheumy is very optimistic about the meds available for RA sufferers.
So don't despair, flares can get us all down, but they are usually short lived. If its particularly bad they can give you an intravenous pulse of steroids, they really work.
My rheumy doesn't give pain meds either, but my own GP referred me to the pain management clinic when I was particularly bad a year ago. My rheumy is happy for me to be on these meds, but lately I'm really good. I'm almost scared to say it, I don't want to jinx myself!
I'm on humira, mtx, mobic and prednisolone, my swelling is minimal and the pain pretty good. As long as I pace myself I seem to be just humming along right now.
The hard thing is recognising the warning signs and pulling back from overdoing things! Plus I try to keep fit with under water therapy, this keeps me moving without flaring and builds my strength. I do a lot of core body work.
If you like your doctor thats great. So many here have awfully unsupportive doctors, its wonderful if you have someone you trust. yeah
Keep us informed how your going. best wishes golitho
 

loris mom
New Member


Date Joined Dec 2010
Total Posts : 5
   Posted 12/30/2010 8:47 PM (GMT -7)   
the nurse at my rheumies office is awsome--i have learned more from her than anyone!
I was wo0ndering if its normal to have worse pain on one side verses the other. my right side (foot, hand elbow...) is worse than my left side for pain but my left foot swells more than my right foot--also have synovitis.
its just so hard to understand and learn it will be a year in february and I still feel like I have no idea whats going on--its not predicable at all.

loris mom
New Member


Date Joined Dec 2010
Total Posts : 5
   Posted 12/31/2010 8:30 AM (GMT -7)   
does anyone else have the problem of itchy hands when swollen especially in the morning?
its driving me CRAZY
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