reynaulds treatment

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nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 7/31/2008 1:55 PM (GMT -7)   
I KNow alot of you have this phenonium....Is anybody recieveing treatment for there reynaulds?   diane

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 7/31/2008 4:27 PM (GMT -7)   
Hi Diane,
 
I have Raynauds.  The only thing for it is prednisone. Blech!  Yeah, not much in the way of treatment other than that.  The pred will help any constricted blood vessels open up and allow for better circulation.  Do you have vasculitis by chance?  That is often one of the reasons people get Raynauds.  Vasculitis is inflammation of the blood vessels.
 
Hope this helps,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/31/2008 4:31 PM (GMT -7)   
I have Raynauds (mild) secondary to RA and my doc just treats the RA and recomends that I avoid extreem cold-no seperate treatment. Everyone is different though and more serious cases definetly need to be treated.

nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 7/31/2008 7:19 PM (GMT -7)   
Well I have have been dx with ra, but have probable had over almost two years...He told me that raynauds is primary because I didnot have any positive lupus or sjogrens(Pos ana).  Gave me a prescription for low dose calcium channel blocker( norvasc 2.5 mgs)..I dont know why but very hesitant to start it.....I get attacks two or more times a week...diane

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 7/31/2008 7:33 PM (GMT -7)   
Maybe talking to your pharmasist might help to understand why he put you on this? 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1740
   Posted 8/1/2008 6:22 PM (GMT -7)   
I have raynaud's too. I get attacks frequently, depending on the weather outside. Obviously, it's worse in the cold months rather than this time of year, although I do have to be very careful in air conditioning as well. For me, raynaud's is little more than a nuisance--it does not cause ulcers or sores or anything like that, so doesn't really need to be treated. I was offered calcum channel blockers at one time, but turned them down. Turns out the side effects from some of those can be much worse than the raynaud's itself. In my case, only, of course. As someone previously mentioned, if it is severe it has to be treated.

ONe thing I've read is that raynaud's is associated with normal tension glaucoma because of vasospasms somewhere around the optic nerve (nocturnal hypotension). I do have raynaud's, I have a glaucomatous optic nerve (my right one), and I do get extremely cold, especially at night and in the mornings. I'm being followed by an opthamologist for the eye problems, but I'm just a glaucoma suspect at this point--I do not have a glaucoma dx--this is another disease where the treatment can be worse than the disease itself (unless of course, you go blind).

Just wanted to point out that raynaud's is associated with a lot of other problems as well--I think someone also mentioned vasculitis, which is a pretty serious problem.

As far as tx for raynaud's, calcium channel blockers are the mainstay for this disorder, but are only used in the most severe of cases. My doctor told me to simply avoid cold temperatures; try to keep myself as warm as possible. I've been looking at some electric socks and gloves.

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex

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