Post Edited (Ducky) : 7/31/2008 5:08:32 PM (GMT-6)
wow first to write after the thread police! whoohoo!
ok i just read all of the last gm thread and i am officially caught up!
Joanie what oct issue? i want to buy 10 copies to read your poems! let me know if you can.
well i had not known my bud the bear had posted earlier in the thread wow~ i gues when i meet him i am going to have to be nasty and then i will have a kiss stolen?! hahahaha
where is erin? anyone email her? i have been so busy around this house. hubby now in tx and it is his 2nd week gone and i actually miss him lol i think he misses me too
because his emails have been sweet.....
ok enough personal mush! as for me i ache so bad my back is hurting??? whats that all about? i never have middle back pain? hmmmm otherwise doing ok. losing weight and happy about that! i hoe it keeps on sheding off! wasnt trying at first but it is so easy i am now trying! go figure? not complaining or looking for reasons just enjoying wearing a size 10 and looking for 8's soon!
yep one is back from india and she did great! so proud of her! she loved it! and now we are having an italian young man move in for a year! 17 years old! i have been talking to him via email and he and his family appear to be nice and very much like mine?! i hope this works out cuz he is here for a year! m23 i may need boy advice!
well it is late and morning will be here soon! oh i have a new job! i start it in a couple of weeks. crazy story behind it and way too long to tell but after 20 years of teaching the blind i will no more! i am changing careers! and i hope i know what the crazy i am doing? i think that is how i have lost the weight with all the stress and worry about my decision so i figure i will keep stressig til i am a size 4! hahahaah ok well byes and goodnight for now! hugs yally
My kids have all jumped on the WEBKINZ train, and my hubby is addicted to facebook, so this is the first time I have had the computer to myself in several days. I've caught up on this thread, and it sounds like everyone's life is going along as good as can be expected.
I have been adjusting to life with RA. I had been reacting so well to the Plaquenil that I barley had any symptoms on RA- I thought I might have been imagining the whole thing. Then the flair got me.... I never want to feel that again. I am now on Prednisone for another 4 weeks, Methotrexate, Plaquenil, darvocet (sp?), Motrin, lamictal, cymbalta, folic acid, dolfulix. I still have pain and stiffness that effect me daily (hourly) and have been told that I will just need to accept that. The pain in my fingers I can ignore pretty well. My knees, elbows and shoulders are harder to ignore.
The side effects to the Methotrexate are hitting me hard. Have you ever seen mentoes dropped into a bottle of Coke? That's what my stomach feels like just after taking the pills. I take sleeping pills, so I fall asleep shortly after. I've taken to taking my sleeping meds 20 min before the methotrexate so I can sleep faster. I feel sick the day after taking the pills. My stomach churns, I'm exausted and my pain tolerance goes really low. My hair is thinning. It falls out everywhere. I run my hand through my hair and get 10-20 strands every time all day long. I find that I get a stomach ache after I eat some foods (brats, burgers, dogs, sausage). I have sores in my mouth where my cheek gets caught between my teeth. It seems not to heal as well.
I wonder if this is similar to what everyone else is feeling with the Methotrexate? I suppose I will just learn to schedule less on the day after taking the meds and guard my energy well. I was warned to avoid people who were ill because the methotrexate and the prednisone both suppress the immune system to the point that I won't be able to fight infection as well. That is what will change my daily schedule more than everything else. I now avoid touching things like banister rails, doorknobs and public pens.
One good thing that had come of all this is that I am now a stay-at-home mom for a year. I was going to take a couple classes while my hubby worked and went to nursing school, but the flair really scared him. (and me) According to the doc, we won't know if the methotrexate is really working till I go off the prednisone. Then, if the pain stays away- it works. If the pain comes back, it didn't. He felt that, for my health and because of the unknown- I should take a year off and take care of the kids and the house. he's taking such great care of me, and is helping me get the house all up and running before school starts again. This is the first time I will ever be home with the kids. I have been the breadwinner while my hubby stayed home, but he makes more than I do now, and it just makes sense that I stay home.
Anyone got support / advice for me? The transition, while nice, is a little scary. One minute I feel like I won't be able to handle it, another I feel like my brain will turn to mush.
I hope everyone has a good day. I hope you all feel better than I do. I'm going to go do dishes now.
I take the folic acid each day and the MTX once a week. I've only taken it 3 times now. I've decided to take it Monday nights since my hubby is off on Tuesdays. Last week I sat with the pills in my hand for 20 min before I got the nerve up to swallow them. I knew how I would feel later, and that the pills caused it. I guess I was scared.
I've never claimed to be brave in the face of self-caused pain. That's why I survived my bout with depression.
Part of my abdominal discomfort (according to my hubby) could also be the MO I take nearly around the clock and the Cymbalta that I take daily for depression. Both can cause excess bleeding in the GI tract. Add that to the slow-to-heal lining and you have a problem on your hands. (as far as I understand it)
I think I remember that I can take Napercen (Aleve) for pain instead of MO. Is that true and is that easier on the stomach? I've had a headache all day, and part of yesterday that the darvacit and MO doesn't touch. Aleve had been OK for headaches before, so if I can take it, I will. I have had several lectures on taking Aleve and MO at the same time with the MTX and the Cymbalta. I've been told that if I like to keep my liver, I can't do it. I made a nurse turn white in the face wen I told her I was taking them all together and the mg I was taking them at. I wasn't taking the MTX yet, thank God.
I guess I should go to bed now. My hubby works tonight, and I never want to go to bed when he isn't there. I almost feel like I should stay up too, but then he gets to sleep all day tomorrow, and I don't. Today the new water heater came in (been 10 days without hot water, 3 days with no water at all) and he woke up to put it in right away. He's only had 3 hours sleep since he woke up @7:oo am Thursday. (almost 41 hours by now) I hope he sleeps well when he gets home in the morning.
HAD to chime in on the love affair between Bear and Yally. Teehee.
Hubby had take down surgery on Friday July25. Took him to ER on July 23 for severe abdominal pain. Too many adhesions and he could not stand it any more. Doing well now. Just need to get the hemaglobin back up. Larproscopic (sp?) and he is recovering nicely. Running the business, feeding horses and housework are a bit too much for me though. Things are slowing down now. Daughters are a big help to us.
I also would love to know if our Erin Girl is ok. Missing you Erin!
I'm going to have a lovely Saturday off. Wish we were at the lake but the heat is awful here. 104 yesterday.
yalinda, I know what you mean when you joke on the computer- just to let you know I can recognize a playful joke when I see one. Why is it that you miss your husband? Is he away?
My hubby is sleeping well today (5 hours so far, and if he stays asleep, he may get 3 more before getting up for work). I am soooo sore and sleepy today. I took some advice and took an iron pill, and an extra folic acid. I also cheated and tool an extra 5mg of prednisone. I was supposed to be tapering down to 10 mg a day, and have been there for a week- but I even hurt in my hips and shoulder blades today. My toes make me cringe to walk and I can barley grip the laundry basket or the juice pitcher without my hands in pain all the way up to my elbow and shoulder.
I really appreciate my voice system to control my computer so I can still post. I almost never have to touch the keyboard unless it simply won't recognize a word.
My girls are being a great help today. My oldest put away the dishes for me that I washed last night. She also fixed lunch for her sisters and put in a movie for them all to watch together.
I won't be able to get out of going to the store today. I simply have to get food if I want to make dinner tonight. The movie is almost done and then we will go.
There is a phrase that I have to say to myself when it gets hard. "I can not let this stop me from living life." I must push through the pain. Just because I am ill does not mean my girls should live less fully.
Yally, what's the new career?
Bear, good to hear from you.
I am taking the next week and a half off of work! yeah! I need the break. I'll be home doing the summer thing with the family for a few days, then the kids and I are going to do the moms-side-of-the-family thing. Got a nice 10 hour drive up to the Bay Area. Daughter and hubby have colds....I'm hoping to stay well......
Oh Yally, me thinks thou dost protest too much!!! You may try and fool all of the "newbies" with the "i'm a prude line" but those of us who have been around a while know you far too well to believe THAT.lol! You and bear have been doing this dance forever...it's been the "bear and yally show" for long time...you guys were the entertainment of the thread..I'm still giggling over the washington phone call last year.....and now the italian boy...face it, my dear, you ARE the bad girl of the thread hahaha!!! (just kidding, really...you know I love ya) Truth be told, I'm a bit jealous lol. Boo!! So glad to hear about the offer on the business..praying it all goes through for you...an e-mail coming your way later today..I know you are nervous about the mtx..do you think your doc could give you something else instead? There are so many alternatives....isn't working good for your sis? CaMama, do hope you do enjoy your time with the kiddos...relax and don't get sick!!
Sorry to hear about your arthritis. I hope you find this group very supportive, and humorous.
My RA impacts my hips in a big way, although I don't believe I have any spine involvement. The hips are bad enough. I hope you find something to relieve the pain soon.