Hi all...new here!

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Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/9/2008 3:03 PM (GMT -7)   
Just wanted to introduce myself. I'm usually at the Ostomy forum for myself, but hubby has AS and psoriatic arthritis, and our son has ulcerative colitis and was recently diagnosed with AS as well.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband with ankylosing spondylitis and psoriatic arthritis.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 8/9/2008 3:19 PM (GMT -7)   
Hello. and welcome to the arthritis forum, I am sorry you have a need to be here, but happy that we are here to offer support. As I am sure you know weekends can be slow here but others will be along to say hello soon.
Sj

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/9/2008 3:22 PM (GMT -7)   
Hey Terri.. welcome to the Arthritis Forum! How is your hubby and son doing? I see your son is taking Humira among other things, what is your husband on? How are you doing? I hope to see more posts from you!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/9/2008 11:07 PM (GMT -7)   
Sjkly
Thanks for the warm welcome. I was in between loads of laundry and had just checked a few of the other forums and decided to pop in here as well.
 
Ducky
Thanks for the warm welcome from you as well. Hubby is a mess. LOL His AS and psoriatic arthritis was diagnosed back in 1982 when he was 24. Unfortunatly back then there wasn't a lot of the drugs that they have today. I know that he took something way back then, but I can't remember what it was. It didn't do anything as far as preventing the fusing from happening. Once he fused, the pain pretty much went away but of course he can't bend over anymore. He has also lost the use of his thumbs which are also fused. His fingers started doing the same thing a while back and he was put on methotrexate which helped that. But he was a bad patient and wouldn't go in for his needed bloodwork, so he went off the methotrexate and doesn't take anything now. He uses Dovonex for his psoriasis, but it's still pretty bad...especially his knee. Most of his finger and toenails are also pretty bad and tend to lift and then fall off. He had to have the nails on his big toes permanently removed.
 
Our son is doing pretty good when he can remember to take his meds. He remembers the a.m. dose but tends to forget the p.m. dose. During his last flare he was taking 80 mg of Prednisone and we finally got him off that. Today was the first day without 6MP, so hopefully that won't cause any problems with the UC. After he took the first injection of Humira, his back pain went away. He was shocked that it worked so quickly. He has a high pain tolerance (including walking around with a broken arm when he was 8), so when hubby had to help him get out of bed to go to the bathroom, we both kind of knew that it was the beginning of the AS. Our son is HLA B27 positive just like his dad. Luckily our other son was negative.
 
Me? That's a loaded question. LOL  I'm a medical mess. I just had surgery number 33 a few months ago. I'm actually doing pretty good at the moment. Main problem is GI in nature, and it's looking like I'll probably have to have #34 eventually. Number #33 should have been my last, but the surgeon decided to do a subtotal colectomy instead of a total. Just need to go back and have the rest removed.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira. Canasa now added due to UP.
Husband with ankylosing spondylitis and psoriatic arthritis.


nuttynurse25
Regular Member


Date Joined May 2008
Total Posts : 35
   Posted 8/10/2008 9:23 AM (GMT -7)   
Welcome to our forum...Ihaven't been here long myself...take care diane

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/10/2008 1:17 PM (GMT -7)   
Thanks for the welcome Diane. I hope to learn a lot.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira. Canasa now added due to UP.
Husband with ankylosing spondylitis and psoriatic arthritis.

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