yes ginny, i think your problem sounds similar to mine. what gives? I've actually noticed the problem off and on for 9 or 10 years, but its been very mild and intermittant. I really didnt have back pain, hip pain or any joint issues until this year. So whatever it is, its been there a while.
Wow, that's interesting news. I've never heard that before. I have access to a site that doctor's use for the latest information on different things. I work for a doctor's office and set it up for the doctor, so I have his password. He told me to use it whenever I wanted to. I'll check it out and see what it says.
The 20-year thing wouldn't work in the case of my son or my husband. Hubby's symptoms started when he was 24 and our son's started when he was 17, but I thought it was due to the way he was sitting at his computer. He'd sit with his legs up on the desk.
Wow. Sounds like you left the rheumy's office in a daze wondering what the heck is going to happen next? How did you get your AS diagnosis? Was it a bone scan, blood test, symptoms, all the above?
What are tnfalpha inhibitors? I've never heard of those. I don't take enbrel so I can't help you with that question.
Gee. I'm preparing for an AS diagnosis when I see my rheumy on the 20th. My SI pain has been going on for 3 years!!! I'm in a doozy of a flare up right now. I feel totally fused together in the low back region. I can hardly move around. My hip joints are involved too. So I'm walking like a duck. How's your neck?
Feeling like this blows big time. I know your pain. How are the hands today?
Well, keep us posted. I'm gonna go slap some wicked-potent steroid creme on this back.
I currently take enbrel for RA (along with methotrexate). I had to take enbrel for a good 5 or 6 months before I started feeling the full effects. And even then, it wasn't until I added methotrexate that I gained the maximum benefit. I swore the enbrel wasn't working at first as well, but now after I do my weekly injection, I can tell a big difference. I have great relief for a couple of days anyway before the enbrel starts wearing off. For AS, I believe you can take up to two weekly enbrel injections. One of my co-workers has AS, and he took enbrel for 2 months with little benefit, so he switched to remicade. Not sure how that's working for him, but I did warn him that it takes differing amounts of time for everyone to receive benefits from any of the tnf inbibitors (enbrel and remicade among others). I got through the first several months with lots of pain medication and lots of very hot baths (and exercise).
Hope you get some relief soon,