Hi All! Haven't been here in a while: life got very crazy! I was dx'd late in May, and immediately started on mtx 10mg and Naproxen 500 mg x2 per day. July went back to doc: then MTX 12.5 mg per week, still Naproxen. August = 3rd doc appt.: MTX now is 15 mg per week and changed to ?Relefen (nabumatone, sorry, probably butchering the spelling) 2 pills once per day.
OK, now: I told the doc at last appt that I wasn't feeling *any* better, I was having a particularly rough day that day; now doc is second quessing her dx; wants to give the mtx 5 more weeks (that's at the 15 mg dose, which I have now taken twice), then re-think. Well upon reflection, and looking back in my journal to April/May, I have to say that I actaully do feel better; but I don't feel 100%. Am I expecting too much? I just thought that I would be feeling ALOT better. I still have probs almost everywhere: hands, elbows, feet/ankles, knees....hot and humid days or days when I'm a bit active in my personal life, they kill me! Last night I about died just from mopping 2 very small floors: elbows ouch!
Doc keeps asking me how long stiffness lasts in the mornings; problem is, I don't think I am that stiff in the moring! My worst time is at night after working FT, HS-ing work with kids, and just the everyday stuff I do around the house! When I lay down to go to sleep, that's when I can "feel" it all: knees/feet/ankles are throbbing; finger joints painful, sometimes elbows too. Now, I am up and out the door within 1/2 hr of waking up, and I think that I walk "funny" because of my knees; that never really goes away during the day. Hands will vary, depends on what I am doing at work.
WOW, this is getting long. I guess what I want to know is what to expect with taking these meds? Is it too much to expect to feel back to 100%? Is my dose of MTX low, mid, or what? Should I be taking something else too?
She finally is just ordering x-rays of my hands and knees; wish she would've done feet too....oh, and the only test that shows anything is my sed rate, but even that is not *that* high, last one was only 30.
I am sorry this is so long; I just am tired of feeling bad most of the time; I feel so bad for my family--I am totally wiped out when I get home most nights! The MTX makes me sooooo tired (I take it onTues night; would rather be wiped out at work than when I want to be having fun with my kids on the weekend!
Well, sorry for such a whiney post! I don't even have it as bad as some of you!
Be who you are and say what you feel, because those who mind doen't matter and those who matter don't mind.-----Dr. Seuss