Loin pain hematuria syndrome

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New Member

Date Joined Aug 2008
Total Posts : 4
   Posted 8/23/2008 4:00 PM (GMT -6)   
hello, new to forum life and not sure of the "rules" so please excues me if i am butting in. just been diagnosed with above syndrome and need all the info a can get as docs keep upping up pain meds which thankfully dont seem to intefere with R.A. meds. It would be nice to talk to anyone who has this desease as i'd never heard of it so dont know the right questions to ask the medics.
maggiefaiscotland x

Regular Member

Date Joined Apr 2007
Total Posts : 385
   Posted 8/24/2008 10:39 AM (GMT -6)   
I don't have LPHS but have heard of it. Have you had kidney stones? Fifty percent of people with LPHS have had kidney stones before.

Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira. Canasa now added due to UP.
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New Member

Date Joined Aug 2008
Total Posts : 4
   Posted 8/25/2008 10:07 AM (GMT -6)   
Hello Irishmon, thanks for replying. I havent had kidney stones although thier did seem to be some evidence of past stones on my last ultra-sound so maybe i had them but didn't know it.
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