What kind of questions to ask Rheumy

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kaymac
Regular Member


Date Joined Jun 2008
Total Posts : 40
   Posted 8/26/2008 3:02 PM (GMT -7)   
I'm going to a new rheumy thurs. Can u think of any questions I may ask. My history is FM for 6 yrs with relentess pain and fatigue despite being on Lyrica. But I'm also displaying inflammatory arthritis symptoms and some blood work showing inflammation. My joint pain is knees fingers toes, one shoulder, and back. Also achilles tend in both feet and possibly shoulder now.
 
I just need help in what I exactly need to ask about present and future with FM and possibly some type of arthritis?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/26/2008 3:35 PM (GMT -7)   
Hi Kaymac,
 
So your rheumy appointment is coming up fast.  You must be anxious to see them?  I'm trying to figure out what to ask my rheumy on Thursday too.  YOu and I have the same issues in the same places......I have FM too which only complicates everything doesn't it.
 
I did ask for a bone scan at my appointment last week. To see what might be going on.  She said it was a good test to start out with.  YOu might want to ask about one of those.  It's painless and quite relaxing.
 
I wish I had more to offer. I'm going to my appointment on Thursday with not much to ask, but instead a lot to tell her.  Just updating her on how I'm feeling and how this past week has gone.  Do you have a list of all your symptoms written down so you don't forget anything?  Nothing more frustrating than a wack of fibro fog to ruin a visit!! 
 
Keep me posted on how it goes okay.  We might be able to learn from each other!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 8/26/2008 4:45 PM (GMT -7)   
First, I would be more concerned with what to tell the rhuemy at the first appointment. You want a chronological list of your symptoms, what meds you have tried and how they worked for you. Then a list of all of your current symptoms and wether your current meds are offering you any relief.
Then if you get a chance to ask your rhuemy questions (which I find won't happen until the second visit when they have your labs back and have more of an idea of what your diagnosis is and your current condition) I would ask what he/she thinks the diagnosis is, what types of medications he/she will want to try first and what are the treatment goals-what kind of response to your meds can you expect?
Then don't forget to ask under what conditions you should call the rhuemy in between appointments-mine expects a call for any change in my condition but some don't want to hear from you (I would not see the later more than once).
I hope this is helpful.
Sj
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