RLS--restless leg syndrome

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3micks
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 8/27/2008 8:05 PM (GMT -7)   
hello--i am new here--and i would really like to chat with someone else that has nasty pains in their legs. It started about March and well..i dont want to garden cause the thougth of bending just kills me. I cant put one leg over the other--cause that feels likes poundage on my leg. My right leg feels like someone is constantly kicking my shins and my right--the leg is sore--but the foot--wow, it feels like some one is inside pulling at all the bones in my legs and in my toes--what a feeling.
At night i can almost cry--it hurts so bad. I am awake more than asleep--my god i am not old--well maybe i am 49 but wow--this is a nasty thing to have.
MY doc is sending me for a sleep study.  Cause this is only a stipulation that i have it--as the symptoms sound the same--but need a complete diagnosis before anything can be done--not even pain killers helps.
Thanks for reading and maybe someoone will have something to share with me
thanks
brendenda

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/29/2008 3:06 PM (GMT -7)   
Hey brendenda... welcome to the forum.. unfortunately, I do not suffer from RLS.. but I'm sure there are some people on here that do.. they will be along shortly to chime in.. please keep posting, and maybe we can help you through this..
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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/30/2008 7:44 AM (GMT -7)   
Brendenda,

I know just what you're talking about. Before my sleep study and subsequent meds, I moved, wiggled, and rocked my legs when I was in bed. I could not keep them still any more than I could stop breathing. In fact, that's what it felt like if I tried to stop moving them - like I was holding my breath and I couldn't wait to take a great big breath. It drove me crazy, and you'd better believe it drove my DH crazier than that. During the day my legs didn't bother me but I rocked them, shook them, or moved them all day long.

My sleep study showed the doctor how many times an hour I moved my legs and based upon that he prescribed 1200 mg of Neurontin at bedtime. It has been a godsend. My DH and I both sleep like babies and I wake up in the morning with no after effects.

I have a friend, however, who has a more severe case than I and takes different meds than I. You're fortunate to have a good doc who's sending you in for a sleep study because that's the best way that I know of to get to the bottom of RLS. (BTW, I was allowed to take an Ambien before sleeping at the hospital so you might ask about that, in case you think you'll have trouble sleeping in a strange room with wires hooked up to you)

I agree that pain meds have done nothing to help with my RLS, but I'll bet the sleep doctor will be able to prescribe something that will give you relief. At least I hope so! What you have is miserable.

Hang in there!

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/30/2008 8:40 AM (GMT -7)   
I know a few people that have RLS syndrome, but they've never mentioned 'pain' before. They describe it as a crawling/itching type of feeling that just makes them want to move their legs. If you're having pain, there could be something else going on like PVD.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira. Canasa now added due to UP.
Husband with ankylosing spondylitis and psoriatic arthritis.


3micks
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 9/1/2008 12:13 PM (GMT -7)   
hello, and thanks for all the supporting replies. We went camping this weekend--days were 27 celcius and nite was 10--and holy wack my legs were in bad shape. I am not the best when it comes to abbreviations for things so if you write to me--duh please use the right word. I live in ontario--so i dont know where everyone is located, but in  my small mennonite town--we have great docs that really help fast--so i am hoping that i get a call soon for the sleep study--thanks
YAHOO--kids in school tomorrow--only one at home
brendenda

WoodyMd1963
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/28/2012 8:13 PM (GMT -7)   
you might have to ask your doctor if Mirapex 1.5mg could help you i have a severe case of restless leg syndrome and mirapex seemed to help me hopefully my system wont get use to the pill so it does not start up again good luck
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