The diagnosis is in.... Not what I expected

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 8/28/2008 7:59 PM (GMT -7)   
Hi everyone,
 
I got the results from my bone scan back today. I was fully expecting an RA or AS diagnosis.  Well, turns out my joints and bones look absolutely beautiful.  No problems.....
 
The diagnosis is that I'm in a massive Fibromyalgia flare up.  What I thought was joint pain, is actually acute muscle pain that is surrounding each joint.  It's next to impossible to tell joint pain from acute muscle pain apart.
 
So this is good news actually.  I have nothing harmful or degenerating going on.  Just this stupid pain sensory disorder.  I've had fibromyalgia for over 7 years with no real issues.  Now it's a major issue. 
 
Thank you everyone for your advice, support and encouragement.  I do have arthritis in my neck and lower back which the fibro makes a lot worse.  So I might be here to get some future advice!
 
I wish everyone well,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


starrnr
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Date Joined Dec 2005
Total Posts : 1782
   Posted 8/28/2008 8:04 PM (GMT -7)   
We posted at the same time! How funny.

I'm so glad (really) that you don't have RA or AS to throw into the mix, but I'm really sorry you're having such a major fibro flare. Is there something that you take for the fibro? Can you? Is there someway you can get your flare under control? I'm so sorry you're having to endure this. Flares of any kind are just miserable.

On the bright side, you don't have to start experimenting with new drugs!

Take care...don't be a stranger (I should talk...LoL)

~s.
Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Back to Enbrel 5/08 (I've gone full circle!), also currently taking .7ml (17.5 mgs) injectible Methotrexate weekly, 2 mgs Folic Acid daily


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 8/28/2008 8:16 PM (GMT -7)   
Hi Starr!
 
Thanks for the lovely post!  Actually, I do have start experimenting with pain medications.  I was prescribed Tramadol.  Took my first pill 3 hours ago and I feel so much better.  Relief from the pain for the first time in almost 8 months!
 
There is no treatment for Fibromyalgia. Isn't that horrible?  The gland in my brain that secretes the body's natural pain killers (seratonin) doesn't work properly.  So the result is widespread soft tissue pain, fatigue, and a wack of other symptoms that actually mimick lupus.  It's a gong show.
 
I won't be a stranger!  I do have existing arthritis in my neck and sacroiliiac area.  Fibro makes it worse, so I'll be checking in to get advice and say hello!
 
((((hugs)))
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 8/28/2008 9:04 PM (GMT -7)   
Yea Ginny,
Pain control is a wonderful thing!Glad you are feeling better. These posts are so great I never feel alone.
I'll keep you in my prayers, if that's OK. God bless and keep you.
Crohn's for life, just met first cousin who suffers from Reiters-explains sooo much
 
                                              Margie11


Scattered13
Regular Member


Date Joined Sep 2007
Total Posts : 53
   Posted 8/29/2008 1:11 AM (GMT -7)   
Ginny,

I'm glad you don't have RA or AS, but I'm sorry to hear about the massive fibro flare! I hope you can get it under control somehow.
Dx: Panic Disorder, Psychotic Depression, Rheumatoid Arthritis
 
Rx: Humira, Methotrexate, Plaquenil, Prednisolone, Codeine, Diclofenic Sodium, Folic Acid, Propranolol


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 8/29/2008 9:33 AM (GMT -7)   
Ginny Iam glad you dnt have RA or AS, I amsorr your fibro is ina maor flare. I hope the tramadol keeps helping with the pain. Just want to let you know im thinking about, and pray you feel better soon...Love...Sheryl smurf
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
 Reglan,Protonix,Prozac,Wellbutrin,Erthomyicin,klonipin,occasional phernergan, loratab, zanaflex  marrried 2 children, 1 with mild autism, Bipolar(9),  Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..." Plz help HW to help others by donating: http://www.healingwell.com/donate/


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/29/2008 2:56 PM (GMT -7)   
Great news! and so glad you are getting relief! :) Woo-hoo!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/29/2008 5:13 PM (GMT -7)   
Thanks Scattered, Sheryl and Ducky.  I'm so glad it's not RA or AS too.  What a huge burden that has been lifted!  I still have to deal with the neck arthritis along with the fibro. It's a bad combo. I'm starting physio next week.
 
I hope you all have a restful evening!
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 8/30/2008 6:46 AM (GMT -7)   
Ginny I hope the phsio helps please keep us posted...
 
God Bless,and have a Great Day!!.......Love.....Sheryl
xcema,hypermobile,Chronic Bronchitus,Fatigue,Positive ANAFibro-05--Had surgery on left & right knees 06, Interstial Cystitis-06 Spondlylosis/Disc Degernation Disease severe arthitis lower back -08,implantedInterstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08--Occasional Migraines
 Reglan,Protonix,Prozac,Wellbutrin,Erthomyicin,klonipin,occasional phernergan, loratab, zanaflex  marrried 2 children, 1 with mild autism, Bipolar(9),  Abilify, Buspar, Celexa Son(13) is bipolarw/migraines, Topamax, ZantacGod plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..." Plz help HW to help others by donating: http://www.healingwell.com/donate/


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/30/2008 7:26 AM (GMT -7)   
Ginny, having fibro, arthritis, and lupus is so confusing and I know that you, like I, don't know if you're having a fibro flare, a lupus flare, or whether your arthritis is acting up. Sometimes I think it's all three, but I never know for sure. What would we do without HW. I'm glad Tramadol is working for you. Take it whether you think you need it or not because once the pain starts it's harder to stop. Hang in there girlfriend.
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/30/2008 8:29 AM (GMT -7)   
Congratulations Ginny! That is wonderful news. Hope you get your FM flare under control quickly.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira. Canasa now added due to UP.
Husband with ankylosing spondylitis and psoriatic arthritis.


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 8/30/2008 8:44 PM (GMT -7)   
Ginny,

I see you take Magnesium. You might think about adding some Malic Acid, sometimes it helps with Fibro when taken with Mag. Thank God for Tramadol, it's not total relief, but helps a great deal and is the only thing I can handle. CHEERS for Tramadol, I think I hear the clinking of pill bottles as we speak.LOL
Crohn's for life, just met first cousin who suffers from Reiters-explains sooo much
 
                                              Margie11


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/31/2008 6:09 AM (GMT -7)   
Yes, I have thought about Malic acid actually!  Been talking to the gals in the Fibro forum about it. I just need to run it past my rheumy first.
 
I'm not on Tramadol, but it's lesser sister - Tramacet.  It's shorter acting and not as addictive.  I take a benzodiazapine (tranquilizer) as an anti-seizure medication.  The two aren't mixing very well.... I'm WAY over sedated when I take my pills.  NOt sure what to do about this..... Can't quit the seizure med cold turkey.  I'd end up in a treatment center with massive withdrawl, LOL.  I have to talk to my doctor on Tuesday about all this.  It's not going to work for me if I can't function during the day or drive!  The Tramacet works brilliantly for the pain though. 
 
Patty, I also wonder what the heck is flaring now too.  All three of those mimick each other so much.  I'm doing my best to stay positive.  It's really hard.  The Fibro insomnia took hold of me last night.  Even after taking my pain med and the seizure med, I was over sedated and fell asleep, but couldn't stay asleep. I feel like a yetty this morning..... Stop the world, I want to get off, LOL!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 8/31/2008 8:07 AM (GMT -7)   
Gin,

I don't have fibro, but have simular type symptoms. I have good luck maintaining good sleep paterns by taking my calcium and mag-malate in divided doses late in the evening. Many of my customers who have actual fibro diag are getting the same results. Prior to dosing the minerals late in the day many of us were happy if we could get 2-3 45 minute naps in a night. Man, that gets you crazy in a short time, esp when mixed with the horrable pain. I can't sleep on Tramadol, I guess I get to motivated when I get a little pain relief. I'm forever kicking myself because I feel so nonproductive, and so that may drive me to want to whip the world when pain levels are low and and my movement is less restricted. I rarely use them, as I think they may slow my diagestion and begin the cycle all over.

Best Wishes-Have a good labor day,
Crohn's for life, just met first cousin who suffers from Reiters-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
 
                                              Margie11

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