anyone have gums that bleed

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JudithUK
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Date Joined May 2008
Total Posts : 24
   Posted 8/31/2008 8:01 AM (GMT -7)   
I have blood tests in at the moment for RA. When my joints flare up i get a menstrual bleed and my gum bleed too. Sorry to be gorey, but i end up spitting what looks like a lot into tissues. Im sure its not that much, but gums are sore, inflamed and bleed very easily when joints are super bad. Is this familiar to anone, its not in the books as a symptom.

Kangaroo
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Date Joined Jul 2008
Total Posts : 117
   Posted 9/1/2008 2:40 AM (GMT -7)   
Dear Judy
 
I can relate to inflamed mouth, bleeding gums and mouth Ulcers
 
They can be a sign of an allergy, maybe to some thing you have eaten-
 
 sugar- curries-, even wheat??
 
Generally if I am laden with anything ,
be it  an allergy ,tiredness, or a cold, my joints act in sympathy.
Being run down,(which comes with rhuem.) can cause these probs.
 
As to the menstrual bleed, could it be associated with a condition called Endometriosis?           
This is characterised with heavy , frequent bleeding with lots of pain.
My rhemy correctly diagnosed me with.
It wasn't until years later my gynaecologist gave me the right test (a camera in my abdomen )and treatment.
 
What medications are you on??
Did you have these problems before the meds?
 
In any case, I find a good rheumy, has the answers to alot of the problems we face.
What was the blood test for???
 
I was told to go off Methotrex after having huge mouth ulcers for 6 mths.
 
I would have a blande diet, no acids(tomatoes, oranges, potatoes) as well as what I mentioned before,  until your mouth has recovered
 
I hope this prob. goes away real quick
 
Debbie
 
 
DebbieLou


Alicat
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Date Joined Aug 2008
Total Posts : 226
   Posted 9/1/2008 8:10 AM (GMT -7)   
Hi Judith,
 
I don't know if RA is the same as psoriatic arthritis as far as some of the problems. but thought this was worth mentioning.   After I was diagnosed with the arthritis I had several bouts with Iritis
and also had gum disease (have had periodontal surgery twice).
I guess this is common.    I started on Humira two weeks ago and gave myself a second dose this morning.   Last night I noticed when I brushed my teeth that my gums were bleeding a bit.  This hasn't happened since my surgery.   Also notice some small bruises on my leg and am hoping it doesn't have to do with the Humira.    The rheumatologist I saw doesn't want to see me for a year unless I have a problem.    Wondering if I should contact my primary to see if I shouldn't be having regular bloodwork.
 
Just wondering if the bleeding might be associated with yours meds or an offshoot of the RA.
 
Will be interested to hear how you make out.  Good luck!
 
Donna

psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/2/2008 1:27 AM (GMT -7)   

Hi Donna

I see you are thinking the gum prob. may be linked to the Humira mmmmmmmmmm

In any case, I would strongly suggest that you see a good rheumy as things like bleeding gums are what they consider a problem.

I do recall that when I had the humira, I ended up going to the dentist with such pain I couldn't chew.The dentist told me that my molar (its top partner removed some 25 years ago) had suddenly moved and forced all my teeth to be out of alignment. She said it was looking for its partner!!!

Anyway, this settled down and I again had the same sensation 4 days after the next injection- but not as severe. smilewinkgrin

I ended up abandoning hurmira due to the angry rashes  mad  I got at the injection site.

That is why I am now on MabThera Infusions and going great guns as far as strength and mobility are concerned. I do have some -'s, but the +'s far out weigh them.  yeah

It is all a matter of trial and error

So talk to your Rheumy :-)

Debbie

Ps. I have little bruises on me due to the pregnosone (10mg daily) rolleyes

Are you taking pregnosone?

 


DebbieLou


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Date Joined Aug 2008
Total Posts : 226
   Posted 9/2/2008 4:02 AM (GMT -7)   

Hi DebbyLou,

 

I'm Keeping close watch for any side effects.   If the gum thing gets worse or the bruises will definately call the doctor.   I plan to call before my next dental cleaning anyway to see if I should have an antibiotic as I bleed when she cleans my teeth.    With the Enbrel I got the reaction from the shots within two weeks and she switched me over to the Humira.  Didn't have any problem with the first shot, except for a bruise at the injection site.    Gave myself the second injection yesterday.

It feels like playing Russian Roulette trying these drugs.  It's really scary but so is the thought of being crippled.   I've never head of MabThera infusions.   Is that like Remicade infusions?

I'll let you know how it goes.

thanks for the info and have a great day.

 

Donna


psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/3/2008 1:21 AM (GMT -7)   

Hi Donna

Hey isn't it great that if something isn't working you get the next thing

and my local GP says the later ones are the better!!!

So yep, watch those side effects and if they are too much, you get the gold!! wink

Lots of RA sufferer's haven't heard of MabThera.

It is not Remicade. which is the trade name for Infliximab and is similar to Enbrel and Humira in the way that it concentrates on the TNF Factor.

MabThera it is the latest wizz bang thing going on here for those who have made it to the end of what's available (due to  negative reactions).

I did hear of someone using Rituxan in France on another post a couple of mths ago.

I did some research by googling turn MabThera and this is what I found:

MabThera is Rituximab. It is also traded under the name Rituxan.

It is a selective B cell therapy, and a monoclonal antibody.

It was initially used for non-Hodgkin Lymphona (Blood Cancer) where to date they have treated 7 million cancer patients over the past 7 years.

For RA the infusion takes 5-6 hrs. This is repeated in 15 days and then again in 6mths time or a yr. depending on need.

I have found lots less swelling, less pain, more strength, mobility while on it.

The government here covers the cost  of $2 500 each injection. But i didn't realise my health fund expected me to pay $500 to sit in a chair in hospital with a nurse monitoring me. i have heard of patients getting their infusions in the doctors clinic for nothing

You mentioned a bruise at the injection site. This  was probably from the way it was injected and nothing to do with the Humira. So you inject it yourself!! I couldn't do that and had my local doctor do it for me.( I like being taking care of  and babied when it comes to this )

Anyway, all the best with the Humira, cause from my short experience it is just as good as MabThera - you go girl!!! cool cool cool

l the best

debbie

P.S. I just found some info that may interest you.

They are presenty trialing atacicept in Canada and the USA

This drug targets the B cells as does my drug MabThera (rituximab)

Jusy google atacicept tongue


DebbieLou

Post Edited (Kangaroo) : 9/3/2008 6:45:11 AM (GMT-6)


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/4/2008 11:28 PM (GMT -7)   

 

Dear Donna

Sounds like the bleeding is only minor, that's good news.

Still, I would report it to your rheumy, so he can watch out for you and relieve you of wondering if it should be watched. 

I been thinking how to get information about "Humira and side effects, bleeding gums"

as I have tossed the info.sheet (aren't they long)!! 

So I had the idea to "google" these words and I came up with lots of info.

To see this info. Donna just click this link-

   http://chealth.canoe.ca/drug_info_details.asp?channel_id=0&relation_id=0&brand_name_id=1923&page_no=2

I read-" bleeding gums need to be reported right away".

so I would be doing just that and bringing to the doctor's attention the article from the web address that I have given you.

Best to have professional support at times like this as they know just what to look for.

As you say, it only looks minor, but let your rheumy in on it or he will feel neglected and put out. If you can't get in contact with your Rheumy, tell your local doctor, and explain bleeding gums are on the side effects to be reported.

Donna dear

God bless, and let my know how you get on 

Best to get onto these things when they are minor and have the rhemy look after you.

Debbie


DebbieLou


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Date Joined Aug 2008
Total Posts : 226
   Posted 9/5/2008 3:23 AM (GMT -7)   
Hi Debbie,
 
thanks for all the information.    There always seems to be so much research to do on these drugs.  I'm always looking up stuff too.   I haven't seemed to have any more bleeding since those two times.   It wasn't a lot of blood and now am watching closely every time I brush my teeth.   I'm calling to call the reumatologist next week to check with her about whether or not I should have an antibiotic before I go for my 3 month cleaning as my gums usually bleed a lot when they clean my teeth).   I will mention it to her.   
 
The only other thing I've noticed since I started the Humira is that I get headaches.   I very seldom get them so it's really something I think is a side effect of the shots.   The day after the injecton have a really killer headache and then it's just dull and intermittent after that. 
 
I'm trying not to be paranoid but am staying aware of any noticable changes in my body. 
 
Thanks for your concern and I really appreciate your taking the time to research this for me.
 
Hope you have a great day! :-)
 
Donna
psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/5/2008 5:25 AM (GMT -7)   
 
 
Yep Donna
 
Headaches are listed in the minor probs. and should go away with regular headache treatment.They are only an initial problem, thankgoodness for that, and should ease. tongue
I found this info. in my previous Email web link.
 
Just curious, do you  need to have your teeth cleaned every 3 mths.?
Maybe skip the next clean. Just a thought, and it will be one less thing to stress about.
Where I am, teeth are cleaned no more than 2 times a year.
 
So glad the bleeding was only minor, and it will probably take some time to heal too, especially since our blood doesn't have the normal clotting properties.
 
Anyway Donna, it's great to share with you.
 
All the best and I hope those headaches have gone, cam do with out those!!!
 
Debbie
DebbieLou


Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 9/5/2008 7:08 AM (GMT -7)   
I have gum disease and since the surgery have to have cleanings every 3 months instead of the usual 2xyear. I go to my regular dentist and then the periodonist. Unfortunately insurance isn't coverng the periodonist right now and it's $135.00. In January our insurance should go back to covering all but 10 percent of the visits. I don't dare skip a cleaning as really don't want to have the surgery again and sure don't want to lose my teeth. I have a front crown that's hanging on by a thread and am trying to hang in till January when insurance will cover part of a bridge.
I'd be a rich person if I had all the money I've spent on my teeth.
I'd get dentures at this point except that because I have an extremely large Tori (the bones in the upper part of your mouth). I would have to have surgery to remove some of the bone before I could be fitted for dentures. Sounds painful to me. Too bad I didn't appreciate my strong healthy body when I was young. It's sure falling apart now!

Donna
psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/5/2008 7:55 AM (GMT -7)   
 
 
Oh! Dear Donna
 
Sorry you have all this trouble with your teeth, nasty!!
Good that your on top of things
and get those pearly whites the treatment they need
 
Just a thought...................
When I had  mouth ulcers painting them initially with tea tree oil, holding the saliva in my mouth and then spitting it out, was what I was told to do to stop infection and aid healing.
Also rinseing my mouth with salty water is a way to keep germs at bay.
 
Take care, be positive and believe you are doing what is best, it sure helps!!
 
I'll be thinking and praying for you
 
Debbie
 


DebbieLou

Post Edited (Kangaroo) : 9/5/2008 9:05:51 AM (GMT-6)


Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 9/5/2008 8:49 AM (GMT -7)   
Hey, anything natural is worth a shot.   I have to brush and rinse with Listerine 2xday and that at night have to use a little dental brush to go between each tooth.  Supposed to floss too, but never really got the hang of that.  The listerine has seemed to help.
I definately notice that when my arthritis flares up so does the problem with my gums.
 
I remember using Tea Tree Oil several years ago for something else but can't remember what.   I guess it really is a healing agent.
 
Thanks again - it's great to get ideas for things that have worked for others.
 
It's hot and humid here today but just got through baking two dozen cookies a carrot cake and some brownies.  My church has a bake sale tomorrow.  Think I'm gonna give the cake to my new neighbor (well kinda new - they moved in last Summer right after my Mom passed away.)  She brought me some fresh veggies from her garden both this year and last year.   Meant to bake her a welcome to the neighborhood cake last year but  had a really bad time after Mom died.  Lost Dad 8 days before Christmas in 2005 and then six months later my older brother passed away, then Mom exactly a year and one week after my brother.  It was a lot of grieving all at once.   Took care of Dad for several years then my Mom till she passed.   All the stress did a number on me but I'm functioning again and the really bad days have lessened.  Now I try to remember all the wonderful times we had together and remind myself that I'll see that again some day.  Loved them all so much but I think the hardest was losing my Mom.  She was a beautiful gentle person and the glue that held us all together.  Not matter how old I get when I'm sad or sick or just need someone to talk to, it's my Mom I want.
 
Sorry to go on and on.   Guess I needed to talk about them today.
 
Donna
psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/7/2008 5:27 AM (GMT -7)   
 
 
Hey Donna
 
Thanks for sharing about your grieving, I feel really privledged, Thankyou
I haven't had anyone close die, and I can only imagine I wouldn't handle it well cause I'm a wreck at funerals of acquaintainces.
 
So you are involved with church. Me too.
I just got back from teaching english to migrants through the Bible.
It is amazing how hungry they are for knowledge we love and grew up with.
It makes me warm inside to share our hope in Jesus of eternal life.
 
We also celebrated father's day today, so after church my hubby (Ross) and I were invited to our daughter, Heather and her hubby, Mark of 1 yr. for lunch.it was a quick throw together BBQ of snags(sausages) salad, followed with chocolate with strawberries fondue and coffee. Still it was great to be together as a family. 
 
We are just coming out of winter and get the odd warm day.
It's strange to hear from yourself and my other daughter Liz in London enjoying the summer. She is 22 and being a nanny for her cousin's 3 children.
 
Just curious. Do you know why you get this terrible gum disease? My daughter Heather is a dental nurse.
How long have you had it?
Is it something to do with our low immunity?
I've managed to get reoccurring shingles because of my low immunity with Mabthera
 
Hey, stay well
 
Till next email
 
God Bless
 
Debbie   
DebbieLou


Alicat
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Date Joined Aug 2008
Total Posts : 226
   Posted 9/7/2008 7:41 AM (GMT -7)   

Hi DebbieLou

Curious - what part of the country you are in that you haven't had Summer yet? Today has begun to turn out beautiful here.   The storm must have cleared the air out cause it's dry and sunny with no humidity.  I think it's supposed to reach 80 degrees today.

I started having trouble with my gums and my eyes after I was diagnosed with arthritis and before I started on any of the drugs.  I guess it's common to have these problems when you have arthritis.  I've had Iritis several times in both eyes.  It's an inflammation of the Iris of the eye and can be quite serious if not treated.  Treatment is steroid eye drops, starting a drop every hour then weaning down to one drop a day till it's over. A real pain in the neck.   I can always tell when it's back cause I get pain in my eye for a few days along with a headache.  Sometimes a slight discharge from the eye but not always.

My Dad had gum disease also and ended up losing his teeth.It was a shame cause he never got cavities and had good teeth but the gum disease caused them all to loosen up.   He had terrible psoriasis.   So far I haven't had a problem with it except for one bout of pustular psoriasis on the bottoms of my feet and palms of my hands.  Soon after that is when I started with the arthritis.    Strange the things we can get, isn't it?

Thanks for chatting with me.

Donna


psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/7/2008 5:49 PM (GMT -7)   

 

Dear Donna

Thanks for sharing your horror story, and dont't we have many. You made me think..... a skin problem I had as a child on the balls of my feet may have been related to rheumatiod that came out with vengence overnight 11 yrs. ago.  mmmmmmmmm  the thick layers of skin drying out and peeling off, and bleeding..................

Enough of all that gore, not a good place to be. Let's think of something more pleasant!

So you are puzzled as to how I can be entering spring when you are approaching fall (we call it autumn). and there is more........................................................ When you are in day, I am in night, when you are ending Sunday, I am beginning Monday. So where am I??? Have you heard of Australia?? Well that is where I am. If you look at a map of the world you will find it as a large lonely land mass in the middle of the Pacific Ocean south of the equator.I have lived here all my life and like yourself, very proud of my country. I've seen a bit of the country south , east and west, Perth, Brisbane(where my son Matt lives) Melbourne, beautiful Tasmania (where we went for our honeymoon all those years ago) and Adelaide. I am yet to see the wild country in the centre at Alice Springs and around Darwin to the north. Australia is a large land mass covering 4 time zones and a  small population of 22 millon that mainly live on the coast, cause the middle is dry and arid desert.

I live on the east of Australia, just below the bulge in Sydney. I love the coast with its sandy beaches and beautiful waves........this is where I go in my mind when I am desperate to get away from the dental procedures. tongue

Talking about waves, we find it hilarious that  our daughter liz had to go to the beach in England (remember I said she is in  London) before she gave surfing on a long board a go. But then again, small surf is the way to start. LOL We do miss her.

Till next we meet

God Bless you Donna

Debbie

 


DebbieLou


Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 9/8/2008 3:21 AM (GMT -7)   

Hi DebbieLou,

I hear that Australia is a beautiful country.  Actually my older brother's best friend married a girl from there.  Both my brother and his friend have passed away now.  I lost my brother two years ago.  He was only 63.  His wife and children moved to Vermont many years ago.  It's about a 3 hour drive to where my sister in law lives now and another half hour to where her kids are.  I talk to my sister in law about every other day and we send daily emails.   Am hoping to get up there before Winter.  It's beautiful there in the Fall when the leaves are turning.  She's planning on a trip down here some time next month for a week or two also.

It's was an absolutely beautiful day here yesterday.  My husband and I went to a local pond with my best friend and her husband.  The guys brought their fishing poles and we just lounged in the sun.  It was very relaxing. 

This morning I have to go to my church.  I am one of the volunteers to count the Sunday offerings and do it a couple of Mondays a month.   My husband is working nights and it's really made for a miserable Summer.  He gets home in the morning when I'm getting up.  He'll start work tonight at 8 pm and will get home around 6 tomorrow morning.    He's hoping to retire in another month or so.   He'll be able to get his health insurance through Medicare next year but I still have a ways before I can get it so will have to find some kind of insurance for myself after next year.   Medical care is so expensive here in the USA.  

Well - glad to be getting to know you and hope you'll keep in touch.

Have a wonderful day - I'll say a little extra prayer for you today at Mass

Donna


psoriatic arthritis, peripheal artery disease


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/8/2008 4:53 AM (GMT -7)   

 

Hi there Donna

It's great to get a reply from you

I look at the post we are under Bleeding Gums"nice to change the subject.

May be we should meet under "enjoying ourselves" LOL

Your description of the autumn leaves, the fishing, magic! I just want to be there too!!

mmmmmmmmmm    so relaxing   

And we should get out and enjoy nature, it is so revitilising. tongue

My dad use to do night work. It isn't good for any relationship.I remember always having to be quiet because he was sleeping, but I also recall being very noisy fighting with my sisters (was dad not there at those times???)

Thanks Donna for the offer of a prayer for me, that is very kind of you.

I can pray for you too, ok!

I am wondering what happened to Judith who began this post.

I will write to her now

God be with you Donna and soak up that wonderful sun!!

love Debbie

 


DebbieLou

Post Edited (Kangaroo) : 9/8/2008 6:00:47 AM (GMT-6)


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 9/8/2008 5:06 AM (GMT -7)   

 

Dear Judith

wanting to catch up with you.

How are you going??

Please let me know, ok? It's been a while. I hope you are getting on top of things.

What was the results of your blood works??

I do hope to meet you again

love debbie

 


DebbieLou

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