Hi Ides...as for the lupus, not that I know of. I know the Plaquenil has always worked so well but now that I am off of it, the sun just hurts my eyes and before I needed sunscreen because of the MTX but now it doesn't even help my face. I drove maybe 10 miles in my car and I looked in the mirror and my cheeks and nose were covered in red, but only there?
I do have a question though..if I had lupus, wouldn't my Enbrel make it worse? It does help with my joint pain somewhat, but other than that I haven't felt well without my plaquenil and feel like I am really going downhill. Is there a specific test for lupus? do you go to a rheumy for your lupus?
Thank you so much for responding to my post.
That's really odd - are you on a new med now? I can't remember.
Is it possible you are going thru a severe flare weaning your body off the med? You have psoriatic arthritis, right?
It does sound an awful lot like a lupus rash to me. According to what I've read, arthritis patients that respond well to plaquenil lean toward the lupus side of things (or rhupus, if you will). You will definitely want to mention this to your doctor, and try to take a picture of it if you can. When I went off plaquenil, I did not have any problems at all. I also understand that enbrel can make things worse for lupus patients, but I know several lupies that take enbrel for arthritis, so I don't know if there's a lot of research to support that statement.
Been away from the computer for a bit, and just saw your post...how are you???? You know, when I was reading your first entry, I thought of lupus right away too...my brother has it, and his face gets REAL red outside in the Florida sun. So far, plaquenil is the only med he has taken for it. I seem to remember you talking about problems with the sun last summer too, I think? The reason I'm asking that is because it does mention that sometimes on Enbrel, you can develop lupus symptoms..but you weren't on Enbrel last summer were you? Each time I have seen the rhuemy since I started Enbrel, she has asked me if I've had any rashes.
Please let me know how you're doing, you poor thing..you have had such an awful time of it with the meds, and the cysts, and the eyes, and now this! Hang in there, and take care.