Good Moanin' HealingWell V65

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Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/16/2008 4:02 PM (GMT -7)   
yeah   yeah yeah Previous thread can be reached here.. please continue moanin'! yeah yeah yeah
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1978
   Posted 9/16/2008 6:43 PM (GMT -7)   
hi camama, from what i understand 106 is an excellent score for glucose. hbp can be controlled very easily. it is all scarey stuff, i know but a good doctor can really help you out.

walked 3/4 mile yesterday and swam for 1 hour. am a little down today but hope to go to a play tomorrow and snap out of it.

Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 9/16/2008 9:33 PM (GMT -7)   

Hi camama

Sorry to hear you're not feeling well.  High glucose can be caused by a lot of things including meds.  I'm not sure if you take any prednisone but this always elevates my blood sugars for a few days.  sad

This disease has so many faces.  I hope you feel better real soon.  I can relate for sure, I have high BP, Cholesterol, Diabetes and the RA along with is just crazy and Joan is right a good Doctor can get you through this.

Let me know how things go, I'll be thinking about you.

Joan, Ducky, Babyplace and anyone else I missed.  It's feels good to be catching up on everything and I hope you are all doing well.

Raven


When you get to the end of your rope, tie a knot and hang on!!!!
 
Current Diagnosis-Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis. Stress!!!!!!  New diagnosis of Fibromyalgia 04/08
Current Meds-Methotrexate 24mg s/c weekly, Plaquenil 200 mg BID, Celebrex, Folic Acid daily, Cesamet1 mg @ bedtime, Oxycontin 20 mg 3 x day, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID, Calcium, Vitamin D


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 9/17/2008 6:44 PM (GMT -7)   
I haven't posted on the moaning thread for a while but have been dropping by everynow and then to read.
I have recently accepted a new contract in additon to the two I already have so have been busy getting ready to start working on that.
I have the sinus infection from hades-I have been on Biaxin for twenty days-ran out two days ago and still have the infection-have an appointment with my doc tomorrow-hopefully we can do something else. At this point I think it may be time to call the rhuemy too and ask about a temporary hold on the mtx. I hate to do that though because ever since this infection started my knee has been swollen.
Oh well, life goes on.
Hope everyone is well and enjoying their week.

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 9/20/2008 9:04 AM (GMT -7)   

Hi, I'm back.

My computer has been acting up, and for some reason the internet wasn't logging on at all for the last few weeks.  I've been unable to check on anything!!! skull

The kid's webkinz pets (online) got unhappy with them because they didn't get attention.  Their digital gardens died.

Now that I have internet again I will be able to check on things.  I have a lot of reading to catch up on- so nice to be back.


Christina
 
When you cannot stand, on whom do you lean?


cherryscot
New Member


Date Joined Aug 2008
Total Posts : 4
   Posted 9/20/2008 2:05 PM (GMT -7)   
Hi everyone, just been reading and reading and finding answers, thanks to you all i now think my sore mouth is because of the 20mgs of methotrexate and not oral thrush. I've been taking Nystan orally for the thrush and it wasn't working. I will now increase my folic acid. Thanks again averyone.

cherryscot xx

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/20/2008 9:49 PM (GMT -7)   

Hi All - in addition to all the health issues, I've had a deadline at work...thus why I haven't had time to be online. (like I need MORE stress?)

Raven and Mom, not that I'm happy to hear all your ailments, but it's comforting to hear an empathetic voice. This has been so scary for me.... sad

Here's the scoop so far - the cardiologist switched me to a beta blocker to help the chest pain. He said it sounds like my 'episodes' are panic attacks. I am going in for a sonogram on my abdomen to check out my live (I'm sure it's gonna be horrid 'fatty' liver), stomach, etc (yes, I hear you Mom, those pains are killer!  I still have them too). Between now and October 3rd, I have the sonogram, a treadmill test, echocardio test, and a heart monitor with a follow up around the end of October. He said no exercise other than a light walk until the treadmill test.

The rhuemy appt showed the glucose (for a non-fasting test) at 84. Doc said that is really good for non-fasting. Live enzymes are up more than they were last time. He is sending me back to do a fasting test to check liver and suger - If liver is up even more, he's going to stop the Arava.  I'm going to call him and ask him to add Lipids to my test. My cholestrol in May was something like 246 (I am assuming that is total) - goodness knows what it was in August! shakehead If glucose is not the cause of this, maybe cholestrol is??? I'm still following the strict diet I put on myself...have not lost more than the initial 9-11 pounds so far. I'm still adjusting to the beta blockers and keeping my fingers crossed that I make it through this w/o permanent damage. <sigh>

Sorry to write a book. I just wanted to update you in case anyone had some good feedback.**


 


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 9/21/2008 6:34 PM (GMT -7)   

Hi guys,

Sunday night already cry .......where does the weekend go?????  Normal busy weekend for me, think I hit the gound running Friday night as soon as the kids leave, and don't stop until this time Sunday night.  Went to the baseball game with a friend today (Yeah!  Rays are in the playoffs! First ever winning season here), came home to see the end of the NASCAR race.  Now watching football...gosh, can you tell I only had boys??

Mom, you doing ok?  Please let us know how you're doing, been worried about you.  Unless I missed a post, don't think you've been on since you were having all the trouble with rashes, sun, etc.

CaMama, just wrote you, looks like you answered some of my same questions here..should have looked first lol.  You sure do have a lot coming up, but at least they are checking this all out really well.  I just had a bunch of bloodwork, too.  My sugar was 86, and the doc was real happy with that. Please take it easy if you can...hard not to be worried, though, I know..but sounds like you have good docs helping you.

Ducky..how are things with you?  Are you feeling any better?  I sure hope the docs were able to give you some answers about your back.

Doing ok here, otherwise. Two of our boys are off traveling..I'm so jealous!  One in New Mexico visiting friends, the other visiting a girl in Berlin, Germany, no less!   He met her on-line over a year and a half ago, and they've been getting closer.  They've been visiting back and forth, he even plans to bring her to our house for Thanskgiving.  What can I say??  It's truly a global world I guess.

Well, almost halftime...better go put some order to this house so that the little ones can tear it up tomorrow lol..

Sweet dreams and hugs to all!

Jody


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/22/2008 1:22 AM (GMT -7)   

Hee hee...I just wrote you back.

My racing heart is keeping me up....why oh why on a work night? shakehead I was feeling pretty good all day and now this! This stinks.

How is everyone faring from the storms? Are they still hitting? Is everyone safe and dry? I hope so!!!
***


 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 9/22/2008 3:50 AM (GMT -7)   
Hi everyone!!!!!!!!!!!!!!!!!!!!!!!  oh how i miss and think of all of you!!!!!!!!!!!!!!!!!!!!!!!!!!!!! tongue
 
well things are going well but let me tell you between the daughter and school work and the italian son and the internet being his connection to home i get NO computer time ever!  seems only when they leave in the morning is it free and i am usually getting ready for work then so i dont have time to get on line! turn
things are spinning but all is going well.  i love my son he is a great kiddo! yeah
 
health wise not perfect but doing well.  i guess i am low in b12 and vit D but other than that still kicking!  not complaining.
 
work is busy and a mess for me to clean up from prior staff!  so i am starting to hate mondays!  never did!  today i work from 8am til 10pm so i am not thrilled! 
 
weather turning into fall! ugh but it had to come sometime!  cool mornings and cool nights filled with crisp days!
 
well g2g get ready for work! hugs to all and dont know when i will get back on but hugs to all!  sorry no time to catch up on threads so i hope everyone is fairing out ok.  hugs yals smurf

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/23/2008 11:20 AM (GMT -7)   
Hey everyone.. just a quick note.. I'm at work, and haven't been feeling very good today.. I'm hoping I'm just wore down, and a good nights sleep will make me feel better... didn't go to the doc last week.. my back is more messed up (due to not sleeping right).. I'm going to try and see if I can't make another appt.. Ok.. off to finish some stuff and then go home.. OH and if any of you try to call/text me.. my phone is messing up, and I'm only getting like 1/2 of my calls/texts.. not sure whta the deal is.. so if I don't respond, SORRY! Talk to you all soon.. Love yas!
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 9/24/2008 10:51 AM (GMT -7)   

Ducky...I'm sorry you are still sick...do you have an urgent care you can visit in the meantime??? I hope you find out what is going on very soon.

 

Jody..I haven't posted since my UTI fiasco..I went back to the urgent care, and they told me, they could not treat my kidney pain and sent me to the ER, but nothing could really be found.  I then waited a few days as they suggested, found a doctor since we changed health plans, and he said it isn't an infection at this point and that I need to visit a urologist.  So now I have an appointment on the 30th of October to see one of those eyes Basically it mimics the symptoms of a bladder infection, without the infection..nuts! turn

Camama...How are you??? I'm glad some of your tests have returned normal..Anxiety can do funny things to our bodies.  My middle son, several years ago, experienced some trauma and due to that he ended up having seizures because of his anxiety level was so great.  When I read about your heart palpitations, I wondered if it could be due to anxiety...I'm so sorry you are going through all of this..Jody is right, we need to be closer so that we can make soup and cookies for everyone. I hope that you are doing better today.

At least it is Hump Day...

 


Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1978
   Posted 9/24/2008 5:47 PM (GMT -7)   
eyes   eyes hi everybody eyes eyes my doc did mention a knee replacement down the road it is kind of scarey.  smhair smhair am continuing my exercise routine turn turn
 
great to hear from you yally and raven...but where is erin?

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/30/2008 8:20 AM (GMT -7)   
Where's everyone been?
 
Sorry to hear about the upcoming knee surgery.
 
Yeah, Mom, I am getting panic attacks he said....probably due to the high bp. I was in a huge deadline at work, so that wasn't helping and my worry about the high BP and cholestrol, plus the worry I might have diabetes.....not helping matters. When I get an attack, I feel like I'm going crazy. It is awful!

I email Erin about a month ago and haven't heard back - has anyone heard from her?


 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 9/30/2008 10:28 AM (GMT -7)   
Camama..I'm not sure where everyone is at..the board has been so quiet! It is strange that Erin has dissapeared. Did your doctor give you any ways to help lower your anxiety? I'm so sorry it sounds miserable sad
 
I thought my urologist appointment was for October 30, but it was for today. I think I need to have my hearing checked while I'm there.  The doctor was very nice, and said even though I drink a lot of water, 2 bottles on my way there, I was very concentrated, not sure what that means, but will go back on the 21st of October for Cystoscopy sp? To check the bladder and go from there.
 
I hope all is well with Ducky, Jody, Yally and everyone else.

Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 9/30/2008 9:46 PM (GMT -7)   

Moanin,

Looks like most of us have been feeling crappy these days!  I haven't been too bad but the last few days have been damp so pain has been worse. 

My Rheumy says my elbows are shot (done)!!!  What in God's name do they do when your elbows are shot.  Do they have like elbow replacement surgery.

I'll keep you posted

Take Care

Raven


When you get to the end of your rope, tie a knot and hang on!!!!
 
Current Diagnosis-Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis. Stress!!!!!!  New diagnosis of Fibromyalgia 04/08
Current Meds-Methotrexate 24mg s/c weekly, Plaquenil 200 mg BID, Celebrex, Folic Acid daily, Cesamet1 mg @ bedtime, Oxycontin 20 mg 3 x day, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID, Calcium, Vitamin D


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 10/1/2008 4:30 PM (GMT -7)   
It has been quiet here lately.. I emailed Erin, but haven't gotten a response yet.. I am going to call her later.. I'll let you know if I hear anything..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 10/1/2008 4:57 PM (GMT -7)   
I miss Erin too-please do let us know how things are going for her-if you hear anything.

We all sound like we could use a doctor with a magic wand or two. I hope you all start feeling better soon.

I am so frustrated. I still have an infection after 34 and counting days on antibiotics. They made me stop my mtx two weeks ago and all of my joints have been twinging-no full fledge pain and inflamation just aches and stiffness. And I see my rhuemy on monday-but at that point I will still be on antibiotics so she is not going to let me take my mtx next week either which means at least 4 missed doses.
Worse yet, as a courtesy I asked if I could stay on a low dose of pred when the medrol (for bronchi***) ran out and she said no. (actually she said not unless you start flaring). Since I don't think this counts I can't take the pred. If I had not asked I could have just stayed on it.

I am blaming this whole whining rant (and all the ones like it for the last six days) on the medrol-those dose packs are psychological torture devices espescially when you get to the end of one and know you will feel worse tomorrow.
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 10/1/2008 5:17 PM (GMT -7)   

Sj,

Thats the one thing about medrol, it does make you feel out of whack..I always get a flushed face, and feel as if I'm on fire, but it does work.  I once took two of them back to back, bad idea skull so I can see why your rheumy is leary of the pred etc.  Sorry you are still dealing with your sinus infection. Mine got to the point that it ruptured my ear drum but I didn't realize I had an infection until it started draining out of my ear, it was really gross, to say the least.  Maybe your rheumy will have some ideas on what to do? It is very frustrating when  you have something  you just can't get rid of, trust me, I know!!


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 10/1/2008 5:31 PM (GMT -7)   
Momto3-the acute care doctor told me I have an ear infection (which must have developed while I was on Leviquin) but I don't have any symptoms of one. Aren't they supposed to hurt or something?
My rhuemy is just going to role her eyes at me and tell me to suck it up and deal for a week or two until the infection is gone.
Then she is going to make me come see her every four weeks again until we adjust my meds again and get my white cell counts normal.
How do I know this? it is the only logical thing to do for now. (I wonder if I can get away with taking the sulindac she d/ced now that I am not on mtx-maybe if I just don't ask).

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 10/1/2008 7:01 PM (GMT -7)   
Sj...when I had my infection, I initially thought I had a toothache because the bottom part of my jaw near my ear had so much pressure, that I had called my dentist and they ended up calling in a prescription of pain meds for me.  The next day, I woke up with this fluid draining down the side of my neck.  So yes infections like that normally hurt, hurt, hurt!  I had preforated my ear drum..those are to be taken seriously but I guess they can get pretty out of hand before you really know it shocked
 
Suldinac is like mobic? Hang in there!

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 10/1/2008 7:09 PM (GMT -7)   
Levaquin - isn't that the heavy duty, scary, antibiotic? How did you get an ear infection while ON it?! shocked
 
Speaking of ears....mine have been hurting today...ugh...
 
ELBOW? OMG, that's awful news Raven - what did he suggest you do about that? I wonder if they do have replacement surgery for that? WOW. I hope he's wrong. Completely wrong.
 
I found a few websites last night that listed my high blood pressure, breathing, and stomach issues as all side-effects to Arava. And yet, when I looked up side=effects last month, they were not listed. At least the hypertension wasn't. So, I've made the decision to stop Arava immediately. I hope that helps quickly and immensely. Hopefully, no damage has been done...this gastro thing is really bad with the not being able to breath...now with this allergy stuff turning in to something worse....<sigh> When I get chest pain and difficulty breathing...I don't know if it's the heart problem, gas/stomach problem, or this congestion problem - AGGGHHHH! This sucks! (Can I say that here?) The nurse told me to take Zantac AS NEEDED when I can't breathe since it does often sound like a stomach issue...even though the box says only 2 a day...and even though she told me to keep taking the nexium.....does that sound safe to anyone?
sad  
****
 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 10/1/2008 7:57 PM (GMT -7)   
How do you develop an ear infection while on Leviquin? You have an idiot for a general practitioner.
She did not want to prescribe a second antibiotic (I had done biaxin first) so I went four days and a dose of mtx while I had an infection and no antibiotics. Then she gave me only seven days of leviquin so when I went to an acute care place to get more until I could be seen by the GPs office again I was told I had an ear infection and bronchitis.
I am now lets see 20 days on biaxin, 14 so far on leviquin with six left, and still infected-though feeling a bit better now-and no mtx.
Sulindac is an NSAID more closely related to advil-not a cox inhibitor like mobic but my rhuemy took me off all NSAIDS when I had that crazy reaction with the mtx-but now that I'm not on mtx, she doesn't want me on pred unless "You're flaring" but my joints are yucky......
I can see her rolling her eyes at me already.
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 10/2/2008 6:41 AM (GMT -7)   
Sj...Sometimes you have to wonder about these doctors! The one I went to the last time, a new one, told me that I didn't have a uti which was fine and that I needed to see a urologist wich was also fine, but the kicker was he told me it could be anything and that I needed to be prepared because it could be cancer but I'm still "fairly" young.  I'm 37,but not ancient!! I left feeling old and worried that I had something really wrong.  Needless to say, I didn't go back, and since we have a ppo, just went ahead and made an appointment with the urologist since I felt he was a bit nuts turn
 
I remember taking the Suldinac and it never really worked for me, and I still have mobic, it is also an NSAID, and it worked pretty well for a bit.  It sounds like you have had a ton of antibiotics..sheesh!! With these suppressants it looks like all of us get something, for me it seems to affect my kidneys/bladder, with you sinus infections.  I  would like to just stop taking the Enbrel and MTX but worry that I won't be able to function since I hurt even with those meds.
 
Camama..Is your Arava like the MTX? You mentioned GI problems??? I also suffer from those as well.  I'm beginning to wonder how much the MTX is related to all of my issues that I have been having.  If it is the Arava, then I don't blame  you for stopping it.  It seems that you are worse off with it!!  Maybe go off of it and see if your health improves?  It seems like we are all falling apart!!  Why do all of the meds have to be so toxic? rolleyes
 
Jody, Yally, Bear, Erin, hope all of you are doing well and will check in soon.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 10/2/2008 8:13 AM (GMT -7)   

Arava and methotrexate are in the same family of meds....when I couldnt' take methotrexate, the next step was Arava...but, I held off for years before I finally agreed to try it. It did help and I did not have the same side effects I had on methotrexate. When I put the dosage to the lowest possible (1 10mg pill a day), it also lessened the side-effects, but still gave the plaquenil the boost it needed.

I apparently have a very low tolerance for stress when on these inhibitors, especially when working. It makes my body shut down. This happened on methotrexate, remicade, and now Arava. They've all made me seriously ill after about 18 months of taking them. My husband wants me off EVERYTHING....I'm sure someday I'll have to stop taking Plaquenil (hopefully not because I'm going blind, G-d forbid!)....but he doesn't get what the RA does to you...he thinks I got fat and lazy because I'm fat and lazy....he forgets the fatigue and disabling pain I had for years, the inability to do ANYTHING.....this was back when I was a size 3....but I digress...

I just cannot believe doctors these days.......too many medication mistakes.....they're going to kill us all. . . . well, if I've learned ANYTHING through these issues, it's ASK ASK ASK and QUESTION QUESTION QUESTION and DO YOUR OWN RESEARCH...if you feel something is wrong, continue to research until you are FULLY SATISFIED with the answers your are getting. It's hard to do when your so sick you can't keep your head up, but man oh man....pay attention. nono


 

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