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Scarlett_73
New Member


Date Joined Jul 2008
Total Posts : 3
   Posted 9/19/2008 12:47 PM (GMT -7)   
I have AS associated with Ulcerative Colitis.  I am in flare right now, both diseases.  Yep I am that lucky.
 
Currently I have pretty bad arthritis pain from the flare.  Neck, lower back, knees, shoulder.  Because of the UC, I can not take Naproxen or Ibuprofen for the pain.  It causes UC flares or makes a current one worse.  My GP and Rheumy only prescribe Tylenol and T3s for the pain.  Which I am taking alot of.  I usually have to sit (cry) and wait through the pain for my next dose since the Tylenol only lasts a few hours for me. I have been sneaking Advil and paying the price (UC flares).  I am also have extreme difficulty getting any sleep becuase of the pain at night.
 
Is there anything out there for pain that is effective and that will last longer than a few hours, work as well as Naproxen (without the side effects) and maybe help me sleep?
I know it is asking for alot. But I am getting desperate.
 
 

Diagnosed with RA 2003, UC fall 2003,  RA changed to AS 2008
Meds:
Salofalk Oral 1500 mg x3 daily
Sulfasalazine 500 mg x 4 dailly
Plaquenil 400 mg dailly
calcium, vit d, Omega 3, folic acid, multivitamin, iron


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/19/2008 5:29 PM (GMT -7)   
Hey Scarlett.. welcome to the forum.. sorry you are going through so much right now.. have you tried heating pads.. or long hot baths? Is there any way that you can see a different rheumy that can try and help you with the pain management? Good luck to you, and let us know how you are doing..
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/19/2008 8:23 PM (GMT -7)   
I take Tramadol on a scheduled basis for my AS. When the pain is not controlled by that, I have Vicodin to use. Have you discussed with your rheumy the fact that you aren't able to sleep because of the pain? Also, that you are in pain most of the day. If your rheumy is reluctant to prescribe stronger meds than Tylenol, what about asking for a referral to pain management? Also, if you have inflammation in your SI joints or along the spine, have you considered steroid injections. I just had both SI joints injected and it made a world of difference in reducing pain and increasing mobility.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Scarlett_73
New Member


Date Joined Jul 2008
Total Posts : 3
   Posted 9/22/2008 9:46 AM (GMT -7)   
My Rheumy and GP seem to skirt the issue of stronger pain meds. They seem to think that the DMARDs should be making my life pain free. My Rhuemy is really pushing for me to start Remicade and etc. I do not want to use them. I have been adamant about not using them for a list reasons.
I get the feeling that since I am not interested in Remicade that my Rheumy thinks that the pain can't be all that bad.

I will ask about the Tramadol. What is Pain Management? Physio therapy?
Diagnosed with RA 2003, UC fall 2003,  RA changed to AS 2008
Meds:
Salofalk Oral 1500 mg x3 daily
Sulfasalazine 500 mg x 4 dailly
Plaquenil 400 mg dailly
calcium, vit d, Omega 3, folic acid, multivitamin, iron


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 9/22/2008 2:11 PM (GMT -7)   
My hubby swaers by Alieve..........
SnowyLynne


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/22/2008 4:11 PM (GMT -7)   
Hey Snowy.. Scarlett can't take Aleve due to her UC issues.. it will throw her into a flare.. How are you doing Scarlett?
Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR/Methotrexate
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots/HCTZ


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 9/22/2008 6:22 PM (GMT -7)   
I know you don't neccessarily want to try the DMARDs but methotrexate has made me pain free. I can't take pain meds so don't have any other suggestions on that but did want to let you know that once the DMARDS start working the difference can be remarkable. I would think though that you would still need something to get you through until they start working.
I see you already take plaq-I love that one but it did not get rid of my pain just my fatigue-I need both that and the mtx to really feel well.
Sj

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 9/23/2008 10:52 AM (GMT -7)   
Scarlett..I'm sorry your current regimen isn't working and I too fought taking stronger medications but finally gave into the Enbrel because the MTX just wasn't working anymore,(there was a time when it did) even with my Plaquenil.  I have found that pain meds really don't get rid of my pain and I have been on some pretty strong pain medication.. I found that I started out taking 1, and then about a month later it took 2 to do the same job, and then my pain still wasn't  managed. At this point I have realized that pain meds are somewhat useless in the manegement of inflammation/RA.  There are times when the day before my Enbrel injection (today) that I hurt, so I understand your frustration, and I'm so sorry you're in pain sad

Scarlett_73
New Member


Date Joined Jul 2008
Total Posts : 3
   Posted 9/24/2008 9:51 AM (GMT -7)   
I took Methotrextate for 2 1/2 years before removing it from my meds. It didn't work at all other than making me sick each week when I took it and giving me some nice mouth sores. Plaquenil worked for so long, but now it isn't as effective as it once was. So now we are trying sulfasalazine and 5ASAs (salofalk).
Today is a better pain day. Only a 5. I won't be running anywhere anytime soon but at least I can get down the stairs. Now if I could only get some GOOD sleep.
Diagnosed with RA 2003, UC fall 2003,  RA changed to AS 2008
Meds:
Salofalk Oral 1500 mg x3 daily
Sulfasalazine 500 mg x 4 dailly
Plaquenil 400 mg dailly
calcium, vit d, Omega 3, folic acid, multivitamin, iron


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 9/24/2008 10:38 AM (GMT -7)   
Glad to hear you are doing a bit better! I had to remove the Plaquenil because of eye issues but it really worked for me, and the MTX can be really nasty sometimes.  These autoimmune diseases are so difficult sometimes..hang in there!

coffeefiend
Regular Member


Date Joined Mar 2004
Total Posts : 139
   Posted 9/25/2008 7:08 PM (GMT -7)   
I vote for Tramadol, I have IBD and take this with no problems. Makes me a little tired so best for nighttime but it gives me a break from the pain. Good luck!

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