Wow, Jojo, you have had a rough go of it. I did prednisone for a month when I was first diagnosed. I would recommend being patient with yourself, my best guess is that it will take a while for your body to rebound from this. I still remember being too weak to grocery shop by myself and had to do housework in 15 minute increments. If you are scared of this, ask your doctor straight out what to expect. I did see a "Mystery Diagnosis" about
a woman with Churg Strauss (she had more lung problems )and she did make a full recovery.
There is a book called "Patient" by Ben Watt (from the music group "Everything but the Girl") who also had CSS - you should be able to find it on Barnes and Noble. I am thankful for you that you got diagnosed so fast, it took me four years. Do you run fevers? Along with digestive systems and a white count around 20,000 I ran a fever close to 100 degrees every day for five months. And here I am 8 years later!
Depending on others is hard but you sound like a wonderful person, and you would do the same for them without a second thought, right?
I'm usually a busy person so when I feel poorly I keep busy with low energy stuff.
Christmas shop online
Write your holiday cards now
Go thru old magazines and clip stuff you want to keep
Sort and organize household paperwork
Have someone bring you drawers from bureaus in the house to sort one at a time
I use the recycleable cloth bags from the grocery to set up different projects to work on. You even have someone else fill a bag with a project and you can work from you couch or other comfy spot. The bags are moved easily from place to place in the house.
The lack of energy is tough to cope with , but if you are someone who needs to be busy, this is a creative way to do it.
I did a short bust of steroids this summer and since it looks like I have RA , I am not sure what they'll give me.
You take care and don't be so hard on yourself, OK?