That is why I think the Arava has something to do with my high BP...mine never faltered until this year...even though I've had 75+ pounds to loose for a few years, and I've had other issues where you would think my BP should have risien.
If plaquenil took any of my appetitie away, it was superceded by emotional eating I guess.
Not sure about the Plaquenil and weight loss? When I first started seeing my rheumy, I weighed 112, and I've been off the plaq for almost 2 months and I haven't gained any weight, still the same as it was. Maybe our bodies always fighting inflammation is cause for weight loss, rather than the meds? Either way, I sure miss the Plaquenil!
Camama...My bp is normally 110/60,my husband always jokes that I was almost "dead" because it was always so low, but in the past few months it was going up to the 120/80 and now is higher. I will keep an eye on it, and when I go in for my cystoscopy next Tuesday, I will see what it is then. I do know that my body temperature is always 97.1, so who knows!
I hate getting old
The good news...it is finally Friday
Well....we made it to Monday...which is an amazing thing in this house. We had quite the weekend. On Friday, one of my nephews, 10 years old, was climbing a tree and fell when a branch broke. Typical boy thing, right? The problem is that when he fell, he ended up falling on to a branch which puntured his back, and went through into his pelvic area. He was treated at a trauma hospital, and after two surgeries, and a night in intensive care, he is well on his way to what the doctors believe should be a complete recovery. The whole thing is truly a miracle, no major organs or arteries were damaged, and so far they don't believe there was any nerve damaged either. Spent pretty much the whole weekend at the hospital, a real roller coaster of emotions waiting for test results, doctors reports, etc. But, so far, we have had only good news and very grateful hearts!
Bear!!! Didn't you have a birthday recently? It was beyond great to read your post...have missed you dearly...I did get an e-mail from Boo last week...she sounded good, but very busy with work stuff. She is anxiously waiting for the sale of the business, hopefully in January, and her son-in-law is doing great..didn't mention her hubby, which I'm taking to mean he is doing well? Erin, note sounded good too..she had computer trouble, and is painitng again, but her hands wear out, which is why she hasn't been on much. But it was so good to hear her sound so up. Thank you for facing down those drug people!!!! We need you over here to take on the whole lot of them. Have often wondered the same things myslef, about RA, diabetes, etc. Do they profit too much from the treatment to really pursue a cure? Gosh, I sure do pray not...but does the money to be made negate any conscience? Scary, scary thought.
We are changing our interner provider, so later today my e-mail address will be changing...I'm going to update my profile, so for those of you who e-mail me, the old one won't work anymore.
Well, need to run, kiddos need me..Monday hugs to all of you!!! Hope you had a more relaxing weekend than mine was!
Just a quick note to check in and see how everyone is doing. Jody, I got your new e-mail address, thanks for the update.
Hang in there everyone, by the sounds of how everyone is feeling, its going to be a long winter. I think we'll really need each others support to get us through another one. So thankful you guys are here.
Post Edited (babyplace) : 10/23/2008 11:37:48 AM (GMT-6)
Jody...Glad to hear your nephew is home! Your son has been through so much and now this! But he has such a wonderful mom and family to lean on and that is a huge help to him, I'm sure Also happy to hear you are feeling well
Weather is starting to turn colder and I think we are in for a long winter! I can't wait for the time change since technically we get an additional hour of sleep Just can't seem to get enough sleep lately!
Tomorrow is Friday
BEAR! So good to hear from you!Jody - I"m glad your nephew is okay, that is so scary....and my own 7 year old son was just showing me how well he climbs our backyard tree this past weekend.....I'm not sure I'm gonna let him do that anymore! Not that I was the one allowing him to do it in the first place. (yeah, I'm a bit overprotective.)
Only a few more days of work, then I'm taking about 8 days off....boy do I need it! I'm just a rollercoaster these days when it comes to how I'm feeling.
It is quiet around here!! I haven't been on much and have been dealing with insurance companies since we switched from Greatwest to Coventry and now every medication needs a preauth from them wich is fine except they can't seem to do it in a timely manner?? and I went in with a refill of my lunesta for a 30 refill and they said no could only fill for 15 and totally changed my script to 15 so now the doctor has sent the preauths, even the pharmacy has sent it through and nothing and I have paid out out pocket for two of the refills. If they won't do it why not just say denied?? The arava after two weeks of waiting came back that I need a pg test.I can't even have children ..fine so now I have to go and take care of that..it just seems now everytime we have a script for something even if it is written by our doctor, we still have to have a preauth as to why we need it blah blah blah Today, I have to call our plan administrator and find out why this is going on with the Lunesta and if I will be able to sleep only part of the month or if they are going to allow me to sleep the full 30 days. Both my husband and the company he works for pay a lot of money for this plan and it is ridiculous to be jerked around the way we are. Sorry for the long rant
Anyway, I hope everyone else is doing well
yeah! It's Hump Day!!! I think we just might make it to Friday afterall... usual crazy hectic life here in not so warm-and-sunny Florida. Record cold temps this morning in my part of the south. My fault really, I think, I said I wanted to wear sweaters and jeans and voila!! From what I see on the weather though, our low 40's are nothing compared to what some of the rest of you are dealing with, so I really shouldn't be complaining.....snow up your way Yally and Joan? Looks like maybe Erin, too? Can't been too warm for you either, Raven.....Wow this is really early, isn't it?
Oh Mom, sorry you have all the insurance mess, what a pain!! My personal soapboax......insurance companies who won't let the doctors be the doctors and just do their own jobs..which is to INSURE us for the medical care our doctors feel we need...OY!!! I've had so many run-ins with them through the years over our son's care..you would think we were taking money out of their own personal pockets instead of just trying to get the coverage we have made so much money to have. Sometimes I think that their plan is that if they give us enough grief, we'll just quit and pay instead of continue the fight. Either that or there are a lot of people who need to justify their jobs and do so by making us jump through all these hoops. Sorry, my cynical rant.
Doing ok here, I guess...still helping my brother as much as possible...making meals...etc. . Our mom has been spending as much time as she can there with my nephew, so that my brother is able to work. My nephew is still in a wheelchair, but the wound is closing nicely, and sees the surgeon again on Monday. He needs to be able to use the leg more and have less pain or they need to do further tests...so we are praying for that. He can't return to school until the wound is closed, so also praying for that as well. We are all holding our breaths to see what these medical bills are going to be! My brother has insurance but it's not the best......
Went to see the doc on Monday, and although things are ok with me, she wants me to try the enbrel twice a week, 25 mgs to see if I get better coverage. Isnt' that what you do mom? Does is help? By Wednesday night or Thursday, mine is usually worn off and can make for some sore days until I take my next injection. Then it takes a couple days to kick in, seems like I'm sort of always behind the eightball on this. So, she thinks twice a week may help. I'll take my normal dose on Friday, then start the 25 on Tuesday. Keeping the plaquenil also...
Well gotta run....children are starting to arrive...so the day begins!!! Hugs to you all!!
I hope everyone is well and have a great weekend
Happy Halloween everyone!
It is a QUIET Halloween this year! I thought everyone was just starting later since it is Friday night and it gets darker later now that they pushed the time change back as of last year....but you'd think they'd really be ringing the door by now and it hasn't been a steady stream of kids at all like there usually is......I don't know if I should start giving out handfuls of candy or give out the usual. I get the random 1 or 2 kids...nothing...a big group together....then nothing again.
Weather....ugh....basically the cold hasn't hit us, we're still dealing with santa anas, fire warnings, etc. I don't know what's going on here....the sun just burns right now. It feels like we're living in death valley in the middle of July. It's better than peircing cold and snow....but the heat just messes me up big time and my skin can't take the sun at alll these days. I don't know if it's the meds or the arthritis.
Good luck with the insurance....what a headache! I think if I'm brave and feel I need it, I'll finally try the Enbrel when I'm all over this Arava reaction. Hopefully I can hang tough for a long while with just the plaquenil to get my liver back in shape, my weight down, and figure out a few other things before subjecting myself to another possible medication mishap.
It literally became winter over night. Raining all day. So strange....
Hope everyone is doing well. Is there no sleep aid equivalent over the counter yet? Is that too heavy-duty to do OTC?
Hi everyone....greetings from the south... Ducky I'm jealous!! We can't wear shorts here anymore!! Been a bit chilly..not that I'm complaining, this is the weather we wish for in July and August.
Sorry I have been on much, haven't abandoned you all...just life gets in the way, and it seems there is never a dull moment here...feels like we just go from crisis to crisis...or maybe it's just that this has been a really, really rough year. I'm worn out!! Can't even believe that the holidays will be here in a blink. We're going to have a full house for Thanksgiving this year. We usually go camping for the week, hubby loves to do that, but I really wanted to spend this holiday with the family. Good thing we decided to stay home, too, because looks like all the boys will be here, with their girls, and maybe and extra dog or two.. Don't know if I told you this before, but our son in Memphis met a girl in Germany online and they have traveled back and forth to see each other a few times. Well, he's bring her here for a few days over the holidays...yikes! I'm a bit nervous about this one...plus most all the rest of the family should be here, somewhere in the neighborhood of 25-30 I'm thinking.
Started the two shots of enbrel this week...ouch!! I sure don't like those prefilled syringes...the auto-injector was way more comfortable, and easier I think. My son kind of laughed at me though, guess he was thinking of all those years I gave HIM shots....sure is easier to do that to someone else!Hurts way less too lol. Mom, how long did it take until you noticed a difference doing the dosing that way? This weekend I have to cat-sit my sister's diabetic cat...two shots a day for him...never did this before, have any of you? I'm a little freaked.
My nephew is doing really, really well. He's walking around alot more, though it still is a little difficult for him, and looks like he can go back to school on Monday, if the wound still continues to heal as well as it has been. Sure is a blessing that he wasn't hurt so much worse!
Have any of you ever gotten to see a Neil Diamond concert? Is that groaning I hear?? ....maybe you are all to young for him? I was given two free tickets a couple of weeks ago to see him andI just couldn't believe how much fun the concert was..we had a blast! He really puts on a great show...and there was even a lot of young people there, I was really surprised. This weekend a couple of friends and I are going to see Michael W Smith and Steven Curtis Chapman, just love both of those guys.
Ducky...I'm in Colorado..so for those in the high country (mountains) it is snowing already! and here soon enough, although right now just so much wind and the temp is right about 40 but hopefully it will warm up or at least it is supposed to for the weekend. People were wearing shorts just a few days ago, but I really think our time is running out. It's time to dig out the coats and gloves...My daughter is looking forward to snowboarding.
Jody...Thats right you are now on to the twice weekly merry go round! Well, I was supposed to start out with those auto injectors way back but due to a mix up, I ended up with the subq's and had to look up online on how to do an injection. It will be a year this month actually and sadly it still takes me forever to find the right spot to inject, sometimes I can sit for a good 20 minutes or longer. There are times I get it just right, and other times like you said..ouch! I will say the twice a week does make a difference almost immediatley, although I still notice the day before an injection..I get an increase in joint pain. For me finding time to squeeze in my Enbrel is difficult..last night was my night and pretty soon it was bedtime and I realized I wasn't going to get it done. Hopefully today I will be able to fit it in, it just seems everything is so hectic!
It sounds like you will have a wonderful Thanksgiving and maybe a new daughter in law on the horizon? You never know? He is bringing her home to meet everyone Glad to hear your nephew is up and around and on the road to recovery.
Hope everyone else is doing well
I've seen Neil in concert and he does a great job. My mom and sister just saw him last month and said it was awesome.
Saw GI today, he wants to do an endoscopy to make sure I don't have any underlying issues that may be starting from all the immuno suppressant drugs I've been on. Does that sound familiar? He also wants to do a biopsy to see if I'm allergic to gluetin. But, then he very seriously says that "there can be complications" he mentions that they don't happen that often, but he needs to me to be aware of them....but the way he said it freaked me out. So, I asked how many complications has he had...and said, 'A couple...I have to be honest" and I then asked, "well, how many have you done?" he said, "plenty".....errgh, now I'm scared...I"ve been through WAY too much the last few months to go through anything else! Not to mention the anesthesia...will that affect my BP? I'm off the BP meds, but I"m still monitoring it since it does go up slightly now and again.
UGH! I'm so confused!