I took Remicade and developed lupus antibodies while on it. then I switched to Humira and had a severe reaction after 2.5 months. It induced a lupus flare. They said the lupus antibodies would be gone in 3-4 months. Nine months later and I still have the antibodies and other lupus symptoms. I have now been diagnosed with lupus outright.
I started Plaquenil in mid July. It has been just in the last 2-3 weeks that I think I am beginning to see some benefit from it. My fever is gone, I no longer have night sweats, and my finger joints are less inflamed and swollen. My rheumy told me in might take 3-6 months for it to help with the symptoms.
I too have many problems with medications and rare side effects. Nothing as severe as needing a lung transplant. I am so sorry that has happened. I hope you can remain stable while you await a lung.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.