Hello, I'm a newbie and I really need some advice about Reiter's

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bulldogmom
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/5/2009 1:27 PM (GMT -7)   
My fiancee was diagnosed with Reiter's syndrome about 20 years ago after an extreme episode that left him hospitalized and barely able to move. He recovered from that and his reumatologist at the time said there was not much he could do other than treat the pain and other symptoms as they occurred. Fast forward to today, two reumatologists later and he's still in pain every day, some days much worse than others. He is on Etodolac, Lyrica, and Vicodin. He has a little joint pain, but the major pain seems to be in his muscles, rotating to different parts of his body. Weather changes and stress seem to aggravate and intensify the pain. He's done very well to learn to live with the pain, but he says he would do anything to just stop hurting. I am so frustrated because I want to help him, but I have no idea what else to do. His current reumatologist says that he can prescribe stronger medication, but the side effects may not be worth the results. Does anyone have any suggestions on what we can do? What has worked for you or your loved ones? Any other good sites I can visit for more ideas? I've googled and searched and tried to learn as much as I can but I am almost at the end of my rope. Thanks so much in advance for any assistance you can give me.

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 1/5/2009 3:24 PM (GMT -7)   
The most comprehensive site [in my opinion] that deals with reactive arthritis [Reiter's syndrome] is the Spondylitis Association of America. You will find a large section about reactive arthritis. There is a large section on medications that treat this disease. To find all of this, go to the about SPONDYLITIS section on the top left bar of the home page.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Hibee
Forum Moderator


Date Joined Oct 2008
Total Posts : 6488
   Posted 1/7/2009 1:03 PM (GMT -7)   
Hi

I was diagnosed with Reactive Arthritis 3 years ago now and i still have problems and take regular medication. I got reactive arthritis from a bad gut infection and went from being fit and healthy to not being able to walk in the space of two weeks, i was off work for six months and also saw a reumatologist and was given a number of steroid injections which helped a lot. Because i have a family history of arthritis my reumatologist said that my reactive arthritis will probably become a continues problem. The weather does affect my arthritis and i find cold and damp weather to affect it the worst, i take Naproxen daily at 1000mg and find this helps with the pain.

I really hope your husband finds something which helps him as i know the pain he is going through. Has your husband had steroid injections? I found these really helped and could be somthing you could think of or ask his Reumatologist about.

Take Care

Ben

bulldogmom
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/7/2009 1:32 PM (GMT -7)   
Thanks so much for both of your replies. I found the website to have lots of helpful information and I will continue to read further.

Ben, yes, he has had steroid injections and those did help some in the beginning but seemed to stop working after awhile. I'm so sorry that you're going through this too. I really hope you find something that works and that you're spared having to live with this awful disease for much longer. We can all pray for a cure soon.

Hibee
Forum Moderator


Date Joined Oct 2008
Total Posts : 6488
   Posted 1/7/2009 1:44 PM (GMT -7)   
Hi

No problem, i hope that your husband finds something which helps with the pain i can relate to what he is going through and it cant be nice for you to see him in pain. Keep posting to tell us how he is getting on and if you need any more info just ask.

Take Care

Ben
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