Hang in with the cold, I hope a warm front comes everyone's way soon.
I thought I answered the last question in the last thread about zantac - but it is not there. I was told by the nurse at my PCP's office to take zantac until I saw the GI b/c there was a 2-month wait to see him. She told me I could take up to 4 a day due to the severity of my situation (the bottle says 2). The GI told me to continue to take as-needed since it did seem to help me considerably. I have been able to keep it down to 1 or 2 a day for a while now...yeah! When I'm doing really well, I don't have to take it at all. Even better.
It was nice to get a haircut, though I'm not 100% happy with it, my hair looks and feel a TON healthier. I too have been seeing the same stylist since 1989...so, yeah, change is hard....but he's just too darn far for me these days and I end up getting a haircut once every 1 or 2 years! LOL.
Camama..You must wear your hair long? I'm glad you got your hair done I was told to take pepcid by the GI doc but I failed the gastric empyting study and now I have an appointment next Friday to discuss my "treatment". I have looked up my options and they are all scary sounding with yucky side effects but I will see what he has to say. I read about low fat diets also low fiber and I already do low fat, since I probably eat maybe 5 to 10 grams of fat per day at times, and I even read where one suggested a liguid diet of all things...ack
Went to the rheumy and he said the inflammation is not due to the RA, maybe the stomach inflammation but not my slow moving tummy and not my bladder inflammation so that is that.
At least it is Hump Day
Yeah, my GI was suggesting I try optifast to get some weight off quickly (and help liver,stomach,etc issues), but my PCP (who has taken early retirement) was very against those types of diets saying my health history is too shakey to do something like that....but I also don't think those are worth my trying.....if I don't loose the weight with my own effort, it won't stay off. Also, I gotta wonder does the GI REALLY believes in that stuff being healthy or is it becuase his 'group' is bringing on someone in their office to sell/support people on the program.
Well, we had an early winter and frost this year only to be followed by a few weeks of a heatwave. It's finally cooled down again and there is a tease of rain. A far cry from many of you who are having single-digit weather with a -50 windchill (yeah, sometimes I read the news)...jeesh, that is frigid cold!!! I seriously don't get how you guys function...I barely do here when it gets wet or in the 20s or 30s! Unfortunately, the weather is nothing for me to brag about...we're in a serious drought here and the heat isn't helping. We've had severe fire issues the last 2 years....another dry winter means 3rd year of drought, and goodness only knows what that means during fire season.
Everyone - I hope your joints are all behaving this winter season. Take care**
What kind of diet did your GI doc suggest? Mine didn't say anything about a diet, but I have read a lot about the smoothies etc. I went Friday for my follow up and the results of the stomach empything showed my stomach emptied after three hours...he said it was severe case? anyway he prescribed reglan but I can't keep my eyes open after taking it, and while there the blood pressure was 150/90 again so I guess I need to see someone about that, I feel like I'm 80 instead of 37. I may just try diets instead of the reglan, I just take too many pills as it is. But gosh its good for weight loss if you need it, but I weighed in at 103 but my belly isn't small
It is cold here around 15 and snow, snow, snow, what a way to start the week!
Wow...I need to be at 103lbs...but I'm (sadly) a long waaaay off. I never heard of a stomach emptying test before...I think mine takes about 3 days! LOL - Whhhaaa! What exactly is reglan? What meds are you taking? Why am I the only one who isn't thin from all the pills? LOL.
Everyone just said 'loose weight' when all this mess first started, we didn't know what was causing the problems. All my levels were way up, blood pressure, liver, glucose, cholesterol, weight....etc....so, I cut waaay back on everything: fat, cholesteral (eggs, dairy, red meat, read the labels on everything to make sure I got things with low cholesterol), stopped drinking soda, anything with artificial sweetener, sugar, salt, limited greatly bread/starch (only bought products that said '100% whole wheat' and checked the ingrediants to confirm), etc...tried to drink a minimum of 64 oz of water a day. I even went so far to eat glucerna bars for the occasional meal when I had nothing else 'safe' to eat. Bought a lot of Lean Cuisines out of desperation. Even though I had only lost 25 lbs (pretty quickly at that), I felt like it was 50...I lost a puffiness about me and my swollen stomach went away. I've been off the 'diet' for a little too long (laziness), weight is creeping up (6 lbs) puffiness back....decided to get back on track tonight! Stopping the Arava helped my problems IMMENSELY! ....who knew it could cause high BP and GI issues? Not my doctors! But, I still am too overweight to not continue weight loss.
The GI suggested the optifast b/c they are getting a dietician this month to be in their office solely to help people go on that particular diet...when I pushed the 'no thanks' he agreed that doing it by eating right and exercising was the better way. **
Post Edited (CaMama) : 1/25/2009 11:39:07 PM (GMT-7)
When my liver gets really bad, I cannot eat. My metabolism is pretty slow and screwed up, but I don't think it's quite that bad! Thank goodness. I've never heard of what you described, that is unbelievable and quite amazing (if it weren't so frustrating to deal with).
Is there any chance one of those meds is doing that to your stomach? Like the methotrexate? How did they determine to do that test - the fact you always feel full? Is 103 quite underweight for your height or just slightly? If your stomach gets full - does your body still get the fatigue one gets when they haven't eaten? Is the Reglan helping? Is there anything else they are going to do to try and get the stomach to work on its own?
Hang in there.
I hope you are doing well:)
After the upper scope the GI decided on that next test, maybe it told him I needed the gastric empything study, not really sure. The rheumy says it can be caused by meds, but didn't say it was from any that I'm taking currently. My initial complaint of fullness was what got the ball rolling on the Upper scope in the first place and it just went from there. The Reglan does help but I feel super anxious on it, so I limit the times I take it and as long as everything is liquid consistency it works fine and I feel great. I have to admit, since I have been drinking all of these healthy smoothies, I feel better, and my hair looks better, so maybe the fruit and extra protein will be an added bonus at least.
My weight is okay, I'm barely 5"0, but I look a bit thin. Other than diet and the Reglan that is all that can be done, the other med is not FDA approved and I'm to scared to try it.
I hope you are having a great week!!
Jody?? Yally? Bear? Thinking of you all
I'm about an inch or so shorter than you - yup, really - and I (sadly) have a long way to anywhere close to 103. But i'm working on it. .. . I don't know why eveyrone else is loosing weight on plaquenil and not me! LOL.
eating only liquid diet...that's got to be tough, but I guess if you feel 'full' all the time, you may not be aggrivated by it. Do you put protien powder in the shakes to get your protein in?
We're doing our best to avoid getting sick around here. my joints are acting up and worrying me (they miss the arava), but otherwise we're good. Some serious bugs going around right now.
Hope everyone is doing well.
hello dear ones!
here I am...no, I really haven't fallen off the face of the earth, though some days think I would like to! Wow, can't believe it's been so long since I peeked in here....not for lack of thinking about all of you...it's just been my life of late. I am going to try and go back over posts, have read a few...Mom and CaMama, how are the tummy issues? 103, Mom...gosh...I don't think I EVER weighed that litle lol! But, I am almost 5'9" so that is pretty unrealistic for me at any level....still, like most of us, would love to take off a few. Believe it or not, I joined a kickboxing class haha! It's really a blast...a wonderful stress reducer that's for sure. I was afraid it might be too much for me, but I just kind of take it at my own pace, and it's been great. My friend and I go about three times a week...so far it hasn't seemed to kill my feet, which is what i was most worried about. Talked to my doc about it first, and she said to go for it, so I did. My boys think I am absolutely nuts...not many 51 year-old mom's doing kickboxing I guess...I think I kind of embarass them sometimes, but they just laugh. Not like they never embarassed me before, right????
Lots been happening around here,(besides my various mid-life crisies). My friend with the breast cancer will be starting chemo soon. Was a tough decision for her, the docs really left it up to her, which I though was terrible!! Her tests all came back right in the middle zone between definitely needing it or not. So, she decided that if they couldn't tell her for sure that she DIDN"T , she should go ahead. This weekend she has asked me to go and help her pick out a wig...yikes!! I really pray I'm up for this...I so want to give her the kind of support and encouragement she needs.. Had to spend the day baking cookies after she talked to me about this one...I needed baking therapy!
Looks like my mom is having shoulder replacement surgery next Tuesday..I'm a little freaked about it, afterall she is almost 81...but she is in alot of pain, and has very limited mobility in her right arm..so if this can help.....please keep her in your prayers...she is such a doll. Just the sweetest dear lady!
Chicken pox and strep are running through my daycare kids...praying they all keep the germs to themselves!! They've all had their vaccines, but apparently there is a strain of chicken pox out there that beats the vaccinations. Not sure what this means for me...I've had chicken pox, and have also had shingles once. Does anyone know if you can get shingles more than once, and can you get it from an exposure to chicken pox? I sure hope not!
Hanging in there with the RA...enbrel sure hasn't been the great thing I had hoped..but I'm able to keep going, which is a good thing..no real complaints. When I last visited the doc, she wasn't real happy with the way my feet looked, and if they are still the same next visit in April, she may switch me to Humiria.....we'll see. One thing that was a bit strange...had a couple of itchy dry spots on my leg...get them quiteoften in the winter. I showed them to her, and she said it was psorisis (sp)! I was shocked...maybe I've had that along and didn't know it. Is PA any different than RA?
Hey Bear! Cold over there too??? Saw some stuff on the news about your winter...don't get much snow in Florida...but boy, Michigan and Wisconsin winters could be brutal. I don't miss all that stuff at all! Last few days have been pretty cold by Florida standards, tonight we have a hard freeeze warning out. A couple of weeks ago we had some patchy frost on the gound a few mornings. Farmers were going crazy trying to protect the strawberry, tomato, and citrus crops. Looks like they will be busy again tonight.
I did get an e-mail from Boo a while back....need to get with her again...she was doing well, just crazy, crazy busy....the sale of the business was supposed to close right about now I think. So, maybe she'll have more computer time....she also had had a new grandbaby around Christmas time. She sounded great.. As far as Erin, it's been quite a while since I heard from her, Raven too, come to think of it. But I did get a new e-mail address...so I think I'll drop them all a note and check in.
well, must sign or this will turn into a novel!! Hugs to each and everyone of you....I PROMISE to get back to better posting.....have missed you all..