Newly Diagnosed with AS

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CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 1/21/2009 2:39 AM (GMT -7)   

I finally had my appointment with a rheumatologist.  He is convinced I have AS, as all my symptoms match the diagnosis perfectly. Unfortunately he is not able to offer me any scans yet, as I am 20 weeks pregnant and he doesn’t want to risk anything happening to the baby.

Also, as I’m pregnant, he said I should try to hold off any medication and wait until the baby is born in June… I’m in so much pain; I’m not sure how I’m going to manage until then.

 

Do you have any advice how to alleviate the symptoms: extreme back pain, waking me up every morning between 3-6 am, stiffness of the back etc.? I am currently doing pregnancy yoga & pilates twice a week and go swimming once a week. Please tell me how you can manage your symptoms

 

Thanks!


UC since 1995, PanColitis diagnosed May 2007
Multiple Gallstones
100 mg Imuran 9th month TTC
4 * 800mg Asacol
400 mg Folic acid
Multi vitamin supplement
Nearly in remission, only slight cramping
Just found out we're expecting our first baby


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/21/2009 1:43 PM (GMT -7)   
Congratulations on the baby! I am so sorry that you are having so much pain. I see you have UC so that rules out NSAIDs. Does Tylenol help at all with the pain? I know that heat can really help me with some rough patches. I have an oversized heating pad that gives me great coverage on my lower back and hips - all at one. I also use pillows to "brace" me when I am laying on my side. These are dense foam that I can lay up against. One of them I bought at a maternity store.
One of the things most I know with AS notice is that the back pain lessens once we get moving. So your exercising is good. I find that if I sit still for any length of time during the day, my stiffness and pain return and I have to "loosen" up all over again. So if it's necessary to sit for any length of time, I make sure I get up and walk around every 10 minutes or so.
As far as the waking up in the middle of the night with back pain - I did that for many years. I sometimes needed to sleep in a recliner to get a decent nights sleep. I also got used to getting up and walking around for 30-60 minutes in hopes of the pain lessening enough to allow me to return to sleep. We finally bought a memory foam mattress pad topper, 3" thick. That really helped get me out of the recliner and back into the bed.
Pregnancy also can cause back pain so knowing what is going to work might be tough to sort out. I hope you can find some relief. Let us know how it's going!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 1/23/2009 6:09 AM (GMT -7)   
Ides, thanks for taking the time to respond! I'm looking into different alternative solutions at present and will purchase a new mattress this weekend.

It is such a relief to have a diagnosis, as I bet people believe it's all in my head and I should just get on with it. I am going to see my Physio today to get some temporary relief, as the pain is increasing again and the pregnancy bump doesn't really help…
UC since 1995, PanColitis diagnosed May 2007
Multiple Gallstones
100 mg Imuran 9th month TTC
4 * 800mg Asacol
400 mg Folic acid
Multi vitamin supplement
Nearly in remission, only slight cramping
Expecting first baby June 09
Provisional Diagnosis of AS - Jan 2009

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