First visit, first crazy question.

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The Lev
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/31/2009 12:21 PM (GMT -7)   
I have osteoarthritis by birthright, as everyone else in my family has it as well at relatively early age. In my case, it was kicked off by soft tissue knee injury, then simply the arthris took the oppotunity to take residence.
 
I went for x-rays, and pronouced to have advanced stage osteoarthritis in both knees. I'm not sure where the early stages went, but I am (was?) a hiker, so I imagine I left them up in the mountains somewhere.
 
Luckily, either I haven't much pain yet, or am in denial. I do have stiffness, often severe, and use a cane to hobble and take weight off the joints.
 
After a recent flare up with swelling, the "good" knee went through a period feeling like there were bundles of twigs alonside it rather than tendons, though this feeling slowly faded. The doctor said to ignore the "pains" that weren't even in the knee. So now, while in general much better, there still are these weird mystery pains, well, let's call them annoyances and bothersomes instead, in lower calf, in thigh, etc. Knee itself feels okay.
 
What causes those strange mystery pains? I assume, with time, these too will pass and I'll resume mere stiffness and hobbling.
 
Thank you for the great imformation I'm already gleaning from your site!
 
The Lev

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/31/2009 9:04 PM (GMT -7)   
Welcome to Healing Well, Lev! First off sorry about your genetic predisposition to OA. I too have the same genetic problem along with some other inherited faulty genes.

Your doctor is a jerk for telling you to ignore the pains. Pain is the body's signal that something is not right. If you are having problems that feel like they are outside the knee and in the area of the tendons, then I have a scenario you might want to consider. There are two things I know of that cause tendons to get inflamed. One is overuse, the other is a disease that causes tendons to inflame in the place they insert into the bone. If a tendon becomes inflamed from overuse and is not rested properly it can become calcified. If one has one of the spondylitis diseases, tendons will inflame and calcify at the insertion points if not treated. Either way, when these tendons develop this problem, one tends to compensate and put unnatural stress on other muscles, ligaments and tendons causing a variety of mystery pains.

You did't say what type of doctor you are seeing. An orthopedist is good for injury and overuse problems. However, since you have developed these problems at an early age, I suggest you get an evaluation by a rheumatologist. A rheumy is good at looking at the entire picture. If a rheumy is the one that told you to ignore the pains, then get a new rheumy.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


The Lev
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 2/2/2009 12:08 PM (GMT -7)   
Thank you for the information!
Yes, I did go to an orthopedist, and go to him fairly regularly. A rheumatologist in the next town is an intelligent bit of advice.

If I solve the problem of "mystery pains" I'll let you know. I'm always torn between "should I rest my knees more" or "should I take advantage of the weather and relative good-knee day" to walk the doggy, and raise my psyche to a great high.

Thank you!
The Lev

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 2/6/2009 6:08 PM (GMT -7)   
The Lev,
I am fairly new to this site as well.  I am currently still getting a firm diagnosis....but so far my rhuemy has said I have RA.
I find that on low pain days/and or good weather and good joint days...that going for a walk, to walk the dog (or just walk) is good for me physically as well as mentally.  It makes me feel good to know that I did something besides stay at home and "be sick".  Just learn your limits on how far you can walk before making your "good day" into a painful day again.
There are some days when the weather is good that I make myself go for a walk...it hurts some but I dont want my health problems to take over my life guess you could say I go for the walk outta being stubborn. I walk with my son to school, its about a10 minute walk for an adult....then of course I have the walk home from dropping him off.  After that walk ,lotsa times my hips and knees ache, and then I make my descision on pain level if I walk to pick him up after school or if I have to drive.  Sometimes I walk and just take it slow, being stubborn again. lol
I hope you get your mystery pains all sorted out.  Take care.
Joining this site was a good idea.  People  here are soooo kind and helpful.  They listen to you rant, or ask questions and understand what you are feeling and always try to help.  Even if all you really need is an "I understand how you feel, and hope you feel better soon"
((gentle hugs))
 

The Lev
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 2/7/2009 5:36 AM (GMT -7)   
Thank you for the wise words. And for the hugs!

I am in awe of the courage of so many people on this site. Including you, now!

I'm not at the beginning, but somewhere in the middle of this disease. I'm confused. I'm totally depressed when I could be out having fun, but instead need to "rest the knees." I know I'll be better IF I prepare body and soul for knee replacements is a few years time. Not an easy thing to do in the best of times, but I suppose diet anyway is something I can take charge of.

Parallel life problems I can't do anything about (aged parent problems, son in college problems).
And there seems no solution in the short term of what to do about the pains, how to get about, do the fun things. Keeping up with work is difficult enough.

At the same time, I feel so much like, well, I'm not reaaally that bad off, nothing hurts, just stiff and I can't walk. It's not like really suffering, I'm not like really feeling pain -- when I remember things I've done the last year when at the time "I really wasn't feeling pain", all I remember in restrospect is the pain.

I don't want to go into the loop of going to doctor this, doctor that, doctor who because so-and-so said that doctor had suggestions or whatever, searching for a "cure" that isn't in the realm of any doctor.

I think I'll clean out some desk drawers. That sometimes helps the mood.

Thanks for the "shoulder."

The LEv

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/15/2009 7:01 PM (GMT -7)   

Hi The Lev,

My heart goes out to you. I can fully relate to trying to decide whether to exercise or not, whether to see yet another specialist and repeat well worn symptoms yet again or just whether to in your case clean out a drawer (wouldn't cheer me up.) I'm in a similar boat right now with my hips and elbows currently plagueing me, tried a walk to the post box and back about 1/2 an hours worth and now sitting here wondering why I bothered!!! Have to go back to work in two weeks and am seriously worried how I'll manage or whether the miraculous happens and the flare dissapates. I think this site raises my spirits, lot of people out there suffering. Hope you find a solution to the muscle/tendon pain, don't ignore it, I'm positive if there's pain you need to find some sort of cause or explanation that you're happy with. But in the meantime keep tidying those drawers.


TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 2/16/2009 4:14 PM (GMT -7)   
The Lev,
      How are you feeling lately? Have your mystery pains eased a bit....hopefully they have not worsened.
I am not really one that likes to clean, although when I get mad...you know it cause Im cleaning my house up....lol.  The weather here has been almost spring like...cant wait until the weather gets a tad bit warmer so I can go out for occasional walks.  I hope all is well with your family.  It is Family Day here in Canada today, and so I wish you and yours a Happy Family Day.  Chin up....I know its hard but I think if you can smile at least once a day it helps boost your self esteem a bit.
I know this is a frustrating disease....my hands hurt soo bad last night even after taking a med. for the pain....that all that was left to do was cry....I wish I could just wiggle my  nose and TADA things are back to normal....My MRI appointment is coming up soon, hopefully it will help my rhuemy figure out all the  nonsense going on with me.
Anyway, hope all is well. Take care. Thanks for listening(or I guess reading LOL)
TayIsa

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/16/2009 5:16 PM (GMT -7)   
Hi TayIsa, Is family day set up to just enjoy your family? Sounds like a great idea. Do you know the most frustrating thing I've found with this diagnosis of sero negative arthritis is I just can't seem to be stabalised. Every time a cocktail works something goes wrong, the meds cause a reaction and I have to come off them, I catch an infection and have to come off them and then it seems to take weeks to months to try and find a combination that works again. It gets so depressing. I just want my life back. Like the Lev, I used to do a lot of bush walks, I was always so active, my job is very active, I teach printmaking in University, have 3 kids whos current memory is not of me playing soccer with them but sitting on the side line...so I can fully relate to your wanting a diagnosis and hopefully a treatment to go with it. I'm personally sick of it all right now and trying to find a way to climb back up that mountain witout falling down it again!!!
 

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 2/18/2009 9:50 AM (GMT -7)   
Golitho, yes Family Day is a day desiganted so that you spend the day celebrating your wonderful (hopefully) family.  The idea is to spend time with them, not working, and enjoying them.  My hubby and I played with our kids, and had Pizza for supper because thats what our boys wanted.  I know some other families that make a day of skiing or tobogganing with their kids.
Thanks for listening and replying to mypost.  I hope you find a way to begin "climbing that mountain".  I am starting to actually understand "THE SPOON THEORY".  I work in the evenings cleaning peoples houses/cottages, and if I know I'm working that evening I try to do less during the day to kinda conserve my energy/pain level availability for that evening.
Hope today is a good day for you. Take care. ((gentle hugs))
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