itching and arava

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retrn
New Member


Date Joined Sep 2008
Total Posts : 16
   Posted 2/2/2009 9:59 AM (GMT -6)   
This is my 4th month on Arava and have started to itch like crazy about 10 hours after taking it-wondering if there's anything I might do to relieve this itching as would like to not stop the Arava as it seems to be helping.  Will it go away in time?-HELP!  Also, any tips on the hairloss as that has stepped up too recently-thanks confused

Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 2/14/2009 2:51 AM (GMT -6)   
Hi there,
 
welcome to the forum
 
It is some time ago since I had Arava. Great that it is giving you relief.
 
Maybe you could try having an anti-histamine tablet. I take a one a day claratyne.
 
If the itching doesn't go away or gets worse, there are a lot of other drugs out there that will give you good relief- the biologicals are great
 
Take care and best wishes turn

I just googled this site, it says that iching is an allergy and to tell your doctor. Have a read:

     http://www.medicinenet.com/leflunomideoral/article.htm                                              In the unlikely event you have an allergic reaction to this drug, seek immediate medical attention. Symptoms of an allergic reaction include: rash, itching, swelling, severe dizziness, trouble breathing. If you notice other effects not listed above, contact your doctor or pharmacist.

Hair loss is also a no no.( click on the link above) 

Sorry to report this, but it looks as though Arava is not for you.

On the bright side,this gives you an excuse to get a drug that is better for you and maybe even more beneficial as to the benefits. Hang in there yeah


DebbieLou

Post Edited (Kangaroo) : 2/14/2009 1:14:04 AM (GMT-7)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1883
   Posted 2/14/2009 7:36 AM (GMT -6)   
Hmm, I wonder if you get itching getting OFF the drug...I stopped it in october and now I'm dealing with a rash I can't get rid of.

 


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 2/15/2009 12:52 AM (GMT -6)   
Hi there CaMama
 
I'd think that the 2 are unrelated.
Check it out with your rheumy anyway, they are a wealth of information.
 
Have a look at pictures on the internet of skin problems and see if you can identify it.
I have had trouble with shingles with my latest drugs, and have got rid of it with Famvir tongue
 
If you are not having Arava, what medication are you on now?
 
I just clicked on the link that I wrote up in my previous correspondence and it doesn't link up. Try googling Arava and then click on adverse symptoms.
 
Good luck
 
 


DebbieLou

Post Edited (Kangaroo) : 2/14/2009 10:55:54 PM (GMT-7)


CaMama
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Date Joined Mar 2005
Total Posts : 1883
   Posted 2/15/2009 1:47 AM (GMT -6)   

I'm on (and have been on for many years) plaquenil. I started Arava to help boost it up. It worked, but I had to be on the absolute minium dosage b/c I was having a reaction. I started having high blood pressure and other issues last year and finally pinpointed it to the Arava. Once I stopped the med, the issues dwindled.  There are so few meds that help my, and the ones that do, my body just can't seem to tolerate.

I'm trying to get an appt. w/my rheumy, but am having some issues b/c they don't have a replacement rhemy for my office yet. It's possible this is just a new attack of psorisis or something else...<sigh>

***


 


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 2/15/2009 2:06 AM (GMT -6)   

 

Dear CaMama

Fingers crossed that this can be addressed soon. I suppose having experience with skin irritations, you are familiar with washing with water only, or sorberline as a soap substitute.

Has your rhemy considered the new biologicals? These are taken less often and therefore have less side effects.

Best wishes


DebbieLou

Post Edited (Kangaroo) : 2/15/2009 12:10:35 AM (GMT-7)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1883
   Posted 2/15/2009 9:42 PM (GMT -6)   
I was on wonder-drug Remicade for almost 2 years. It was truly a wonder-drug for me! That is until I started having an allergic reaction to it about 20 months later. It started slowly until my reactions started to occur during the actual infustions.
 
After methotrexate, Remicade, and now Arava all landing me in the hospital, I do not want to try Humeria or Enbrel at this point in time. My doctors are suggesting it...but I want to get my health more stable before even attempting something like that again.
 
Yes, I do know to limit soap usage. Thanks for the reminder, though! I came down with the flu, so the antihisthamine I'm taking for it is helping the hives! tongue
 


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 2/16/2009 3:14 AM (GMT -6)   
Hi CaMama
 
I have heard that Remicade is notorious for us sensitive babes. Congratulations that you managed a whole 2 years before falling off your perch.
 
Why not skip the humira and the enbrel and go straight for the rituximab-less chance for an allergy. This is taken as an infusion ( 5hrs supervised, controlled and constantly monitored) a fortnight apart, once maybe twice a year.
 
I had reactions with methetrexate, arava, embrel and humira, but the ritiximab seems ok. Iv'e had 3 lots of infusions(ie, 6) over the last 12 months.
 
So sorry to here you have hives, what do you think these are from? Is it something you ate?
Would the flu be congestion from something you ate as well?
 
Our immune systems are shaky. I find washing my nose out with salty water(breathing it up) keeps the bugs away really well. Actually I am more well now than I have ever been by doing this each morning and night
 
DebbieLou


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1883
   Posted 2/16/2009 5:09 PM (GMT -6)   
Because of my illnesses, I'm super conscientious (sp?) on drinking more than enough water (at least I try, especially when people are sick around me), washing the hands, etc. I've added extra vitamin C to my daily supplements (well, extra..or maybe just added since OJ gives me a migraine) and the combination does seem to help.
 
I think the hives were kicked off by the sun (though my husband laughs at me on that idea). I seem to be extra sensitive to it the last 8-10 years...may be the various sun-sensitive meds I've been on or maybe the psoriatic arthritis. Etheir way, we had a heat wave last month after weeks of extreme dryness and we were in the desert, broke down, and I was stuck out in the sun with no suntan lotion, no shade, and a lot of heavy sandy wind. That night, my arms started itching...and the rest is history. So, regardless of what my husband thinks...SOMETHING from that afternoon in the sand and sun, kicked it off.
 
One of my rhuemy's talked about putting me on rituximab under a study, but I got too sick to switch at the time. I have really small veins, the remicade was such a chore for the nurses to give me b/c there were very few available areas on my arms. However, it's worth it the med works. I'll have to do my research on it. Thanks for the tip - it means a lot coming from someone who has had the same problems I have with the other meds.
***
 


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 2/18/2009 8:24 PM (GMT -6)   
Hi CaCama
 
Gee we are tough cookies,burdened with so many nasties many never understanding.
I am so sorry about your sensitivities, it makes the road to freedom all the more heavy.
 
Our husbands are great at minimising our problems. Maybe we can pretend we are as well as they think we are and trick our bodies into being well.......mmmmmmm I would like to be 23, thin and fancy free, yes, I feel better now............LOL( hey it just might work and then whose laughing tongue )
 
From your comments it sounds as if you thought I was talking about drinking water. I was actually talking about snorting up salty water, to keep your nose fresh and bug free.
 
 
So you have small veins too. Just have to get a good nurse who doesn''t see a problem with that. I actually get the infusion put into a vein on the back of my hand, not my arm.
 
We have had it hot and humid here too
 
 
DebbieLou


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1883
   Posted 2/19/2009 1:18 AM (GMT -6)   

LOL! Youc crack me up! turn   I understand now. Yeah, I on occasion use the snorting salty stuff, but more to help me breathe rather than help keep me healthy. I'll have to try that out.

Ahhh...to be 23 again....BEFORE I got married (at the end of 23 for me) still thin, my biggest stress was trying to wrap up college.....wide-eyed and unfamiliar with what the real world actually offered....as for my hubby, he's one of those who doesn't understand if it hasn't happened to him....it's pretty sad...I feel bad for him b/c I've changed so much for the worse after we got married...I tried the mind over matter stuff...didn't work and ended up embarrassing myself instead.

I'm going to stop there b4 I start feeling sorry for myself!

Hey, RETRN - what is the status on your itching? Did you stop the Arava? Has the itching stopped? I had reaction to Arava with a full-but-low dose. I ended up taking only 1 pill a day (the smallest dose pill they made) I actually still got the benefits of the drug w/o the side-effects I was experiencing.. HOwever, the effects I had I don't think fell in the allergy category....until my issues last year, of course!

***


 


Kangaroo
Regular Member


Date Joined Jul 2008
Total Posts : 117
   Posted 2/19/2009 7:03 PM (GMT -6)   
smilewinkgrin   smilewinkgrin Thanks CaMama for the fun

I enjoyed the laugh smilewinkgrin

I want to be able to pull my weight in my marriage. I don't think enough of the hurt and sacrifice that my hubby must be going through with all my probs. confused

If I thought about the hurt, it would only pull me down in health.

I am truly bless that he  is still by my side........ mmmmmm ........what can I  do to say thankyou to him?? 


DebbieLou

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