Oh boy, Christina. Thanks for the update, but I wish it had better news!
I completely feel for you, my kids are 7 and 9 and much of their lives I have been in a fog, sick in bed, etc. The steriods can put you in a HUGE fog. It can also make your bones brittle if you take them too long. Is it possible you can stop taking them? Are they even helping? I felt like I was living in a glass box filled with fog when I was on them and I don't think they gave me much (if any) relief.
I wish I had some answers to help you get through this, I've been through similar times....never got any help/relief...just time and things finally calmed down. But like you, 'time' was a really long, stressful, I-don't-know-how-much-longer-I-can-take-this...amount. Maybe it was changes in meds that eventually helped, maybe not...I don't know.
Is it possible one of your meds is causing this extreme pain? As either a side-effect on its own or b/c it's interacting with something else? Next time your doc wants to try something new - ask for SAMPLES before you go and buy something new. They have them. That's what they are there for. What do they say about your pain?
My prayers are with you and your family.
When I wrote this post it was waaaay late at night, feeling very sorry for myself, and after I took my ambien- so I don't even remember writing most of it. I changed my signature to list all of my meds like some of the other signatures I've seen. If anyone sees something jump out funny, please let me know.
This morning my husband came home from work (overnights) and told me that he would like me to look for a part-time job to bring in the extra income. Just 4-5 hours a few days a week doing anything I think I can handle. I don't know what I could handle. The last time I held a job I was an undiagnosed, untreated bipolar. I used the manic to do wonderful things, and was able to use it to carry over my depressions so they weren't so noticeable. I don't have that anymore. I don't have a manic to cover over the "bad days" of the RA.
My pastor came over today to see if I was OK. I was pretty pathetic on Sunday. I had pain in my elbow that shot down my arm and into my hand. It ceased up my wrist, my thumb and my smaller fingers, curling them under. I hurt so bad that I just held my hand to my chest and used my left hand all morning. It was like knocking my "funny bone"- but I hadn't. Over the course of the service it "hit" my other side, but not as bad. My knees, ankles and toes started to ache. A friend offered to come over and watch the kids while I took a nap (it was that obvious) and I slept on and off for the rest of the day and night. Wednesday night I was too fatigued, too cold, too sore to collect the kids and go anywhere. She caught me just as I took more motrin- so I think I scared her a little.
With all that is going on- on one hand I hope I get offered help. On the other hand, I hate being the "needy friend". I know there will be times that I need the help even more than I do now. I don't want my friends to get burnt out before I really need them.
Today I'm not so bad. My wrists hurt. I look at the palm side/pinkie side of my wrist expecting to see a bruise, but I don't. The pain all comes from within. My fingers are stiff and sore. I look at them and expect to see scabs covering the knuckle causing the stiffness and pain, there is no reason for scabs and they're not there. All the pain comes from within.
Today my sholders and elbows are sore, but no more than they would be if I had worked out hard yesterday. The Motrin doesn't seem to do anything for it today. My hips feel stiff, so do my knees, but not as painfull as they sometimes are. My ankles and toes are sore when I sit and hurt when I walk. Today the "fog" seems "thinner" and I don't have a headache.
My fingers are so stiff that yesterday while I was cutting into an apple for my daughter I sliced into my thumb. I just didn't have the finger dexterity to cut it without cutting myself. My finger is fine, I covered it in antibiotic gel and a bandaid. It's cut at a bias, so the "flap" is held to the wound without stiches or a "butterfly" bandage. I assume it will heal quickly as long as I keep it clean and bandaged. (A Dr. can do no more than I did at home) Because of the MTX and Prednisone I will watch it for infection. It sounds a lot more serious than it is.
Does anyone else have more pain in the "dominate side" of the body? My right hand always hurts first and worse than my left. same with my knees, sholders, elbows and feet. I always notice the right side pain first, then notice the left, but the left never hurst quite as bad as the right. Is this simply because I am more aware of the right side of my body? Could it be becaues I use this side so much more there is more inflamation on that side? Dose anyone else notice this?