I am sooo Tired of Being Sick and Tired

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pr glo
Regular Member


Date Joined May 2008
Total Posts : 78
   Posted 3/9/2009 10:07 AM (GMT -7)   
Here I go again *****ing about how I feel but I need to let it out or I will explode.  I have been diagnosed with Psoratic Arthritis for about over a year I also have Fibromialgia I live in CT and the weather has been freezing, cold. warm, raining and it's making my pain horrible, I am in sooo much pain I don't know what else to do I medicate myself with what has been given to me by my Rheumatologist nothing works my feet and hand get numb and tingly I can't get out of bed most days I get to work late everyday because it's a chore to get out of bed and get ready I think one day my Boss will get tired of me and fire me then I won't have money to live and pay for meds and see my Doctor's. I can't do everyday things clean, open jars, was clothes the pain kills me my two daughters poor things help me do alot around the house they are 17 and 14 I feel bad I feel like a burden  and I'm always exhausted I go no where but work I'm constantly tired sleeping I have hot flashes like crazy I have tried sooo many meds I see no difference I don't complain anymore I internalize the pain, frustration and cry to myself all alone in my room when everyone is sleeping because I don't know what else to do I have my Husband who thinks I'm just a complainer and I'm being Lazy he doesn't understand at all I'm moody a lot and I feel bad that I feel this way. I really feel like stopping all my meds because I don't see a diffrence I feel like I'm actually getting worse. Can anybody relate what can I do Please HELP!!!!!!!!PR Glo 

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/10/2009 9:55 AM (GMT -7)   
Hey Pr Glo...Please don't stop your medications. If you are getting worse, think how bad it could be without them. A few months after I was first diagnosed, my joints would swell up 2-4 times their normal size and it was so painful. I had the same thought about my meds and I actually stopped taking them. That is when I realized that they where helping. I called my doctor and he didnt really seem to care so I switched Rhuemys. The one I have now is great. Maybe you could look into a new rhuemy if you are not happy with yours or if yours isnt taking you seriously. I know how hard this is...one thing that helps me a little bit is either sitting in a HOT bath or going to a Sauna. Fortunatly I live in a apartment complex and they have one for the public. As far as the work thing...have you heard of the FLMA form? It is a form that you can get your doctor to fill out for you and your job by law can not fire you. You can take up to 12 weeks of unpaid days off. My work made me fill one out to protect me from loosing my job since I have been having to miss a lot of work due to Kidney issues. I wish you luck and hope things start looking up for you
 
Amy

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 3/16/2009 5:36 PM (GMT -7)   

Hi Pr Glo, You sound really desperate, what drugs are you on? My occupational therapist who makes my wrist splints when my carpel tunnel gets bad has lots of helpful suggestions to help live with pain, including always varying your activities, not over doing one job but continually moving from sitting to walking jobs. With the numbness, I wear wrist splints at night and it really helps settle the carpel tunnel. Maybe you should ask your rheumy to refer you to an occupational therapist? When I was really numb I wore the splints all day as well, my rheumy injected cortisone into them and they settled for quite a while. It sounds like you need stronger drugs or bigger doses of the ones you are on. Also find someone to offload on if your husband isn't being supportive then find a friend to moan to, you need support! These diseases are so horrible you really need help. Its no use feeling guilty about your daughters, I'm sure they love to be able to help you, mine moan and grumble some times when I ask them to help but mainly they are happy to help me. The tiredness could be caused by depression over the pain, maybe you need to see a pain doctor? My pain has been really bad lately too so I'm trying to get an emergency appt with my rheumy to help. I'm wondering about accupuncture but I'm scared of needles!!! My doctor said it can really help with chronic pain...so I'm trying to build up the courage.

But please Pr Glo don't stop the meds, everytime I've had to stop (from infections) I have been so swollen within a week and then it takes weeks to settle again. Goodluck and go and find some help, maybe like Amy suggested change rheumy's if you're not happy with yours. I love my rheumy she is so caring and always has a sympathetic ear, I think we need caring people around us, it's the only way to put a smile back in your day.

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