21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08
Hi Pr Glo, You sound really desperate, what drugs are you on? My occupational therapist who makes my wrist splints when my carpel tunnel gets bad has lots of helpful suggestions to help live with pain, including always varying your activities, not over doing one job but continually moving from sitting to walking jobs. With the numbness, I wear wrist splints at night and it really helps settle the carpel tunnel. Maybe you should ask your rheumy to refer you to an occupational therapist? When I was really numb I wore the splints all day as well, my rheumy injected cortisone into them and they settled for quite a while. It sounds like you need stronger drugs or bigger doses of the ones you are on. Also find someone to offload on if your husband isn't being supportive then find a friend to moan to, you need support! These diseases are so horrible you really need help. Its no use feeling guilty about your daughters, I'm sure they love to be able to help you, mine moan and grumble some times when I ask them to help but mainly they are happy to help me. The tiredness could be caused by depression over the pain, maybe you need to see a pain doctor? My pain has been really bad lately too so I'm trying to get an emergency appt with my rheumy to help. I'm wondering about accupuncture but I'm scared of needles!!! My doctor said it can really help with chronic pain...so I'm trying to build up the courage.
But please Pr Glo don't stop the meds, everytime I've had to stop (from infections) I have been so swollen within a week and then it takes weeks to settle again. Goodluck and go and find some help, maybe like Amy suggested change rheumy's if you're not happy with yours. I love my rheumy she is so caring and always has a sympathetic ear, I think we need caring people around us, it's the only way to put a smile back in your day.