Reading all I can before I agree to the Enbrel treatment

Has Enbrel been beneficial to you?
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Excellent - 50.0%
0
Very good - 0.0%
0
Good - 0.0%
0
Moderate - 0.0%
1
Not Really - 50.0%
0
Not at all - 0.0%

 
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Rosiebeast
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/11/2009 7:22 PM (GMT -7)   
 
Hello to all, this is my first posting and I'm familiarizing myself with everything I can about Enbrel before I decide when to start taking it. 
 
I am 65 this year and on long term disability for Ankylosing Spondylitis, Osteo Arthritis, RA,
insulin dependent diabetes and such.  I have a good family Doctor and a very good Rheumatologist as well as a top notch Endocrinologist for my diabetes.  I worked in the health care profession for many years, so had some good contacts to receive good care.  I am also very proactive about everything concerning my health. 
 
I had to "retire" five years ago due to the back pain and side effects from the medications I was on for the AS and RA.  Fortunately I had good health care coverage and have had five years of good coverage and facilities.  Things will change when I turn 65 in June and I will no longer receive my disability cheques but will qualify for old age pension and an increase in my Canadian CPP payment.  My Levemir insulin (which was wonderful stuff) is not covered by my insurance company now - so have switched to Humalog mixed (it is covered by seniors health coverage).  Each medication change comes with a few wrinkles and now I have been offered the chance to receive Enbrel (which is covered by insurance also).  I have the video and have been reading all I can find on it and hope to make my decision soon, as to whether or not to start it.
 
Your forum offers lots of information and that's where I am at - this evening.
 
I am on Methotrexate that I inject once a week, Meloxicam, Tylenol Arthritis strength,
Insulin of course, and other meds for thyroid, high cholesterol, and blood pressure.  Everything is under good control and my Family Doctor takes great care of me and answers all my questions.  I make a list before my appointments so I remember everything to ask.
Two years ago I had my left knee replaced and it went very well.  The Levemir kept my blood sugars level through the entire surgery and recovery.  I followed instructions and had good results with my new titanium knee joint.
 
My husband and I moved from the city to a small town in the country to assisted living where there are no sidewalks to shovel in the winter and no lawns to mow in the summer months.  We are in the foothills of the mountains and couldn't be happier with our new home.  I am receiving injections in my l4 l5 SI joints for the pain in my spine that is so bad
at times, I cannot walk around the block entirely.  The injections are done with x-rays and freezing and I had good results with my last injections in the fall.  The pain relief was amazing but only lasted 7 weeks.  Now it is March and I am due for another round of injections at the end of the month - hopefully the pain relief will be longer this time around.
 
I got walking poles for Christmas and as soon as the snow melts and the roads are clear I hope to be able to get out and move a bit more than I did this winter.  The pain gets very nasty at times and that's why I'm considering the Enbrel.  My goal is just to be able to get around my neighbourhood and keep my weight under better control.  I have gained weight since I have retired. 
 
Last but never least - is the fatigue that is a constant battle.  I am still able to drive and I watch my Grandkids once in a while but don't do much other than play and read to them.
Everything requires super effort and I am careful to rest when my body says "It's time" but I'm hoping the Enbrel will give me some mobility and more chance to be upright instead of resting in bed. 
 
That is my manuscript and any suggestions would be appreciated.
 
The Rosiebeast is a childrens book reference.....LOL
 
 
 

koi collector
Regular Member


Date Joined Oct 2008
Total Posts : 35
   Posted 3/12/2009 10:09 AM (GMT -7)   
hi,
i battle myself on wether to start enbrel. i didn't like the lack of statistic on the side effects, just the vague warning of sudden possible death. i finally started the enbrel because the AS was going into my upper neck and the pain was driving me to new levels of depression and hopelessness. i would say my mobility on celebrex and metho was at 70-80% normal before the enbrel. within days of starting enbrel i was at 98% normal. the shots have not been to bad. once i picked a bad spot and i bleed a little and have a bruise for 4 days but its been worth it so far.
that been said i'm also 29 yearts old and otherwise healthy, no other health issue. knock on a lot of wood. i would be more concerned if i had more health issues. but for now the risk of sudden death is better than the alternative of not living life well now. id rather have 20 great years instead of 40 painful ones. i'm hoping for 50 great, painful years though.
good luck

Rosiebeast
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/12/2009 11:36 AM (GMT -7)   
 
 
 
 
Good points - and when you get to the point where you're not doing much  else other than getting up and going to bed - a little live at 98% is a good thing.
 
Still thinking about this.
 
Thanks for taking the time to write.  Good luck with your treatments - hopefully the Enbrel will halt the progression and you'll have many good years of quality life.
 
"Rosiebeast" yeah
Not sure what this emoticon is doing but it looks like some sort of dance or exercise...LOL
Today I need a puffy emoticon as my hands are pretty swollen. 
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