Worst-ever flare and now muscle spasms...help

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starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 3/16/2009 11:19 AM (GMT -7)   
I need some help. I am in probably the worst flare ever and now I'm getting muscle spasms in my lower back - most likely from the unbalanced way that I'm walking. I'm doing my best to relax during work (no pain med's) and take probably the hottest showers I have ever endured when I get home, but it's not helping. I can only take pain med's when I know I'm not leaving the house (before bed) and that helps me relax enough to sleep, but they cause me intestinal issues, so I take them sparingly.

As most of you know, it's been eons since I've seen my rheumy and I have been without AS med's of any kind (except ibuprofen and pain killers) since last July. I finally will get in to see my rheumyon the 3rd of April, but I can barely walk upright without flinching. Between the intense SI pain and now the spasms in my lower back, I don't know what to do. I haven't been able to do any yoga or moderate stretching of any kind for quite a few weeks and as soon as I get up from a seated position the spasms start.

This has driven me to frequent tears and I'm not normally like this. I have never, ever experienced this level of uncontrollable pain before.

I would really appreciate any suggestions, ideas...anything to help me get through the next couple of weeks.

Thanks,

~S.
Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Back to Enbrel 5/08 (I've gone full circle!), also currently taking .7ml (17.5 mgs) injectible Methotrexate weekly, 2 mgs Folic Acid daily

Post Edited (starrnr) : 3/16/2009 2:31:12 PM (GMT-6)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/16/2009 4:51 PM (GMT -7)   
S~
I get horrid muscle spasms in my lower back when I have to sit too long. Not always, but when the cortisone injections into my SI joints wear off. My rheumy told me that the SI joint inflammation and the degenterative problems in my lumbar spine are causing the muscle spasms. I have to take a narcotic to get any relief. Muscle relaxers do not work on the problem for me.

Have you ever had injections into your SI joints? Is that something you can possibly have? My rheumy sent me to a physician that does nothing but treat back problems. This doctor does not prescribe pain killers. He only does injections, prescribe PT, or refer to surgery when appropriate. The SI joint injections give me 4-6 months of relief. Unfortunately, a person can only do these a couple times a year. Also, my doctor encouraged me to wait as long as possible between injections. I think that there is the possibility that they can become less effective over time.

The other thing is I don't seem to have problems with the muscle spasms when I'm on prednisone. But we both know that being on prednisone comes with its own set of problems.

Do you need to have a referral to see a specialist? Could you get yourself to a spine rehabilitation specialist?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 3/17/2009 9:09 AM (GMT -7)   
Ides, nope never had SI injections (scary thought actually). I was on Flexeril at one time, but I have a difficult time waking up from the lowest dosage, so we decided that muscle relaxer wasn't the best for me. My PCP has offered me a short pred course (10mg daily, no taper) and I turned him down, pred scares the daylights out me...for good reason! He did give me a different pain med though which helped and it doesn't leave me feeling drugged in the morning. He gave me Tramadol (Ultram?) and it helps. Still have to be careful though with my GI tract.

I'm going to talk to my rheumy about the injections - see what he thinks. I really don't want to get back on the biologic medicines with MTX again, if we can figure something else out. I figure he'll want to do xrays to see how much more fusing has happened (I think my lower spine is now involved) and plan a course of action.

Funny thing, remember that dive off my icy porch a few months back? I think that may have instigated this flare...I was fine before that incident.

I can self-refer myself to any doctor (higher co-pay), but wouldn't have a clue where to find a spine rehabilitation specialist. Can't hurt to ask around though. Thanks for the idea.

Hope you're doing well...

~S.
Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Back to Enbrel 5/08 (I've gone full circle!), also currently taking .7ml (17.5 mgs) injectible Methotrexate weekly, 2 mgs Folic Acid daily

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