New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kimw.
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/1/2009 12:08 PM (GMT -7)   
hello,

goodness I don't know where to start. I had developed Epstein Bar virus when I was 22 I maybe was sick like a month then it went away. I'm not 36 and out of no where I started having immune issues. First I developed Hashimoto's disease, they thought I had MG but since I was sero-negative they couldn't be 100 sure after taking mestinon I went into remission. a year ago I came down with MONO so weird since no one I knew had it, that lasted about 4 weeks. at the same time out of no where I developed severe dry eyes, I could no longer wear contacts. I went to the dr and did some eye tests and I have zero tears he believes I have Sjogren's Syndrome, but my antibody test came back negative. My salvary glands have been getting worse and worse in the course of 2 years. But no dr will biopsy because my test is negative. Recently in the past 5 weeks my lymph node under my left arm is enlarged. Now my family dr can't figure things out because she says with autoimmune diseases its tricky. The dr's say oh you can feel them because your skinny which is a lame thing to say since all my life I have been skinny and it was never there before. HELP I don't know where to turn or what to do.

kim

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/2/2009 3:32 PM (GMT -7)   
Have you ever seen a rheumatologist? If you are having lots of autoi,,une issues, that's the place to start. If you have already seen a rheumy then perhaps it's time for a second opinion! BTW, welcome to Healing Well!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Seajay
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 4/2/2009 10:44 PM (GMT -7)   
Hi Kim,

Epstein-Barr is a virus that causes Mono and stays dormant in the body. You never really get rid of it. That's probably why you came down with Mono so many years later.

kimw.
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/3/2009 5:38 AM (GMT -7)   
Hi Ides and Seajay...
Yes, my husband wasn't so thrilled when he got mono, and found out it came from me. :)
I haven't seen a rhumy yet, I'm trying to find a good one. All I know now is I'm losing weight and that's not good nice I'm already thin to begin with. And my enlarged node under my arm and my swollen salvary glands are really worrying me.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/7/2009 9:52 PM (GMT -7)   
Hi Kim,

From what my doctor told me: mono can be caused by 2 different virus' = EBV or the cytomegalo virus. Most people get it in the form of the flu or some illness when they are young, and are then typically immune to catching it again. In rare cases, you can get it twice (which I did).
 
Get yourself to a rhuematologist, maybe even see your OB and have her make sure that swelling under the arm is a lymphnode and not your breast? She/he can also rule out any hormonal influence causing these issues. Will they do the test for Sjorns again? Are you on any medications that could be causing the dryness?
 
Be peristent. It seems when auto=immune issues strike, they come in various forms of issues before they settle down and show what they really are. Hang in there and keep us posted.
***
 


kimw.
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/9/2009 6:51 AM (GMT -7)   
Hi Camama,

I'm trying to find a good Rhumy in Miami. I did go to the OB and she felt the enlarged node under my arm. She sent me for a Mamogram and Ultrasound. Everything seemed ok. It did pick up the node on the Mamogram, my ob being concerned got me a apt to a dr for internal medicine at University of Miami. My salivary glands have been enlarged going on a year and half and now the enlarged node for 6 weeks. For sure I have been diagnosed with EB but its not active now, MG which is in remission and Hashimoto's. My eye dr says he is sure I have sjogren's as well because when doing the schimmer test I have 0 tears and thats with plugs in. However my blood test came back negative, could that be because of the other diseases????


sad
Kim

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/10/2009 10:34 PM (GMT -7)   
If the test that came back negative was your SED rate, that result isn't worth a hill of beans. I'm not sure why some people have an elevated level and others who are obviously dealing with arthritis issues have a normal or close to normal rate. I don't know if it's a swelling issue, type of arthritis issue, or what. It's very odd.
 
I don't have the other issues you are dealing with, so I can't really say much about them. I know I have/had issues with severe dryness from medications, I know my SED rate is often fine when I'm doing terrible, I have met people who have had debilitating and all sorts of odd issues come about that can't be diagnosed until they find out something they are taking (med or herbal) was doing it to them all along.
 
I feel for you, it is frustrating not to know and having to deal with all these doctors to help you pinpoint and find the problem. Then you have to hope that your doctors are good ones who care enough to help find the problem and not dismiss you when the easy fix isn't the answer. There are so many kinds of auto-immune diseases out there, even just in the arthritis family alone.....many symptoms cross over each other....it's not always an easy task to figure out.
 
Hang in there.
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 9:02 PM (GMT -7)
There are a total of 2,732,388 posts in 301,013 threads.
View Active Threads


Who's Online
This forum has 151175 registered members. Please welcome our newest member, melissapsa.
234 Guest(s), 11 Registered Member(s) are currently online.  Details
desert bound, Ides, compiler, mpost, mbisoux, Hawaii3654, poohcheez, Mustard Seed, BostonMarigold, Kmuth, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer